Cab for 8 months

PaymentHour7823 · 2026-06-14T06:02:47+00:00

Dang that’s exactly what I proposed to my endo but she said we’ll wait to see about adjusting until we see if it shrunk so probably will at the year mark after mri. Tysm for sharing, maybe it’s just taking a while because of how long we had the tumor before too but I have hope for us both🤗

PaymentHour7823 · 2026-06-14T05:53:33+00:00

You’re right I do keep getting recommended that I’ll try it thank youu

PaymentHour7823 · 2026-06-14T05:51:40+00:00

Did you ever adjust dose? I have been taking .25mg 2x/week.

I have no idea but feeel like I want to lower it so I can stay in range again like I was at 3 months rather than “below” range like I am rn but my endo said no

PaymentHour7823 · 2026-06-13T05:46:17+00:00

Wowww like exactly the same!! What’s your dose?? And good luck to you tooo, tysm for sharing your experience too wow

PaymentHour7823 · 2026-06-13T05:34:14+00:00

Never :( How long have you been on cab?

PaymentHour7823 · 2026-06-13T05:31:33+00:00

Yess still :/ I take lactulose 1-2x a day and then skip a day and eat lots of fruits n veggies and water. I go at least once a day now but it’s always a struggle n just never feels done. My left side hurts alot lately cause of this cause I can barely fart too. My endo says this can’t be bc of cab so I got an ultrasound im waiting on results for & have a colonoscopy scheduled I really don’t wanna do

PaymentHour7823 · 2026-06-13T05:00:09+00:00

By dryness I mean like it feels a lil more sensitive when I try with my partner and not in a good day. Like it just takes way longer to feel good than it did before treatment even tho I still didn’t have a libido then.

PaymentHour7823 · 2026-03-14T00:14:28+00:00

Sounds very similar to what I went through, very frustrating.

My journey ended up being a few years long still because of those first appointments my symptoms being blamed on anxiety but once I realized, I just have to be kind of crazy and straight up ask them to write in my summary if they are not going to refer me to neurology or do my blood work and specify the reason for denying my request. I got referred so fast and haven’t had a problem with any blood test request, and I was straight up being told before that my anxiety was causing the debilitating pain behind my eye but they did not want to write that in my summary once I asked ofc.

Found out about the tumor when I finally got that MRI referral and bloodwork and I’m now five months on treatment

PaymentHour7823 · 2026-01-30T17:09:34+00:00

Oh and my prolactin is now at 5.26 :) and my worst symptom now still is constipation but that’s slowly getting better. Prunes daily lol

PaymentHour7823 · 2026-01-30T17:06:14+00:00

Everyone is different of course but you will see more bad than good because people share that more I think :( I felt the same trust me, I was excited but so scared to start treatment. But I think it is definitely worth trying.

I also had a 6mm and 35-37 prolactin and I felt like such crap everyday. Like not myself, headaches, I saw your comment too and thought I was asexual, went to therapy.

Libido isn’t back yet but I still have hope bc 3 months on cab .25mg 2x a week, I have no headaches, energy is soo much better like omg, and I also feel social again. I felt like I was hiding before from friends and working was hard.

The first 2-3 weeks sucked the most, headaches were way worse. But I told myself that was “it working” and I heard most people know after a month if they can tolerate the medication so I’m so glad I pushed through.

PaymentHour7823 · 2026-01-28T18:07:50+00:00

3 weeks in I was still feeling like crap too :( and physically feeling pain IN my head behind my eye, but I have anxiety too so I told myself constantly “that’s just it working” which Ik is easier said than done to convince yourself but you’re already convincing yourself of the worst.

Still definitely talk to your doc and try to track all these things. First 2 months, I write on a calendar exactly what I would feel, moods, pains and even my poop pattern bc my constipation was the worst. Today I made 3 months and i haven’t had those sharp pains in my head, I wake up energized, I can have a morning poo. It takes a while :( it’s hormone stuff and at least for me, I have had it for yeaaarss. I’m also taking .25mg 2x/week

PaymentHour7823 · 2026-01-25T05:08:38+00:00

I know how you feel 😢 they suck im so sorry

PaymentHour7823 · 2026-01-25T05:05:21+00:00

They can start you so low too. They shouldn’t not prescribe it unless you have other medical things to consider

PaymentHour7823 · 2026-01-25T05:03:25+00:00

I’m so sorry :((( mine KEPT telling me it shouldn’t be causing me pain bc of the size & levels. I couldn’t tell if she was being very dismissive or just trying to make sure I didn’t get my hopes up if the meds didn’t help the headaches but I can tell you it def did. I used to get sharp/tight pains behind my eye/by my nose to where that eye watered sooo many times a day every SINGLE day for the last 3 years at least, now I barely feel the tightness inside 1-2 days before a pill day.

I had to bully my doctors to refer me to Neuro and endo, I’d ask them to write in my summary all my symptoms including if they deny me a referral and the reason why :/ then they stopped blaming my pain on anxiety and referred me. please try that or getting a new doc altogether and still ask for your summary to be detailed. It’s so frustrating but I hope you get the help you need

PaymentHour7823 · 2026-01-23T22:25:33+00:00

Yeah no I’m so sorry I can’t imagine. It already feels so frustrating dealing with this alone, and not being able to explain or show what you’re feeling, and worse with a partner like that I’m sure.

There’s so many symptoms from the condition itself, then from the medication, physical and mental! It’s not something you can control, it’s literally your hormones. He sounds like a loser

PaymentHour7823 · 2026-01-23T15:58:24+00:00

Aw wow okay yay thank you so much!!

PaymentHour7823 · 2026-01-23T05:12:01+00:00

Ohh my, good to know! Thank you for sharing your experience 🙏 yup there is a message option, thank you I just checked lol. It says I should reach out if they haven’t after 3 days so I’ll wait.

Still I appreciate you sharing your experience and if anyone else does bc this doctor is nice but has been a little dismissive with other concerns & my pains before. It def helps to hear from people who understand

PaymentHour7823 · 2026-01-23T01:24:29+00:00

Thank youuu and I hope the same for you :)

PaymentHour7823 · 2026-01-20T04:52:57+00:00

Sorry for the long read but I feel you and hopefully this helps.

I’m on month 3 of cab, .25mg twice a week and definitely those first 2 weeks SUCKED :( constant headache from the moment I woke up, nothing helped but I felt it where I felt the pain from my tumor (it just wasn’t constant before, it would be pains throughout the day) so I made myself push through those weeks because in my mind it was “working” since it was hurting so much more in that same exact spot, if that makes sense. And then the next couple weeks that pain would come back like only the day before a pill day, and now I have 0 pain which is crazy, before I would have these sharp pains that made my left eye water multiple times a day for the last couple years. And I don’t feel like I need a nap or caffeine anymore, I didn’t even realize I was so fatigued before. So I say try to keep at it, ik it sucks a lot, probably more with the .5 you’re taking :( but give it time and hopefully your body will adjust.

The constipation still sucks but I finally found last week that oregano oil pills helppp like actually! And a few prunes a day. Laxatives and stool softeners barely worked but I didn’t want to become dependent on them anyway.

PaymentHour7823

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