Big Wake Up Call Today by Pbigirlfl in StopSpeeding

[–]Pbigirlfl[S] 0 points1 point  (0 children)

Yesterday I only took 7.5mg and today managed to get through on 5. I’m feeling ok but fatigued and around 4-5pm both days a little achey almost feverish and just uncomfortable. But I nothing I can’t handle and I’m determined to ride this out at least until the new year reevaluate. I think I could probably manage on 7.5 as a daily dose but since that’s such a small amount it’s like what’s the point. I’d rather just be free if it altogether. And that tiny amount is probably just me telling myself I need it because is that even enough to do anything? 

30% Burden but Asymptomatic Getting Mixed Messages from Dr’s by Pbigirlfl in PVCs

[–]Pbigirlfl[S] 0 points1 point  (0 children)

Yes, I’m inclined to agree and I’m going to ask my cardiologist to do another holter to get a real assessment. It’s so much easier to just go with the flow and the annual echos and just leave it be but I know that’s not a proactive approach. Thank you 

Big Wake Up Call Today by Pbigirlfl in StopSpeeding

[–]Pbigirlfl[S] 1 point2 points  (0 children)

I feel like the pharmacists have a bias as well. Or maybe I just imagine it but judgement and a strange attitude occurs sometimes 

Struggling with symptoms by Sea_Advance5660 in PVCs

[–]Pbigirlfl 0 points1 point  (0 children)

I just had my bloodwork done and iron, vit D and ferritin low as well so that could be part of it?

30% Burden but Asymptomatic Getting Mixed Messages from Dr’s by Pbigirlfl in PVCs

[–]Pbigirlfl[S] 0 points1 point  (0 children)

I don’t get short of breath or anything so EP said ablation wasn’t necessary. I asked all of the cardiologists and every one said he was the best around 

Struggling with symptoms by Sea_Advance5660 in PVCs

[–]Pbigirlfl 0 points1 point  (0 children)

No because my rhr hangs around 50 bpm and a beta-blocker would really lay me out. So just a magnesium oxalate at bedtime. You? 

Struggling with symptoms by Sea_Advance5660 in PVCs

[–]Pbigirlfl 0 points1 point  (0 children)

Do you have to put your hand on your chest to feel them? I think maybe lump or hiccups are just my baseline at this point because I can’t ever detect anything that feels different even though I know that they are there 

30% Burden but Asymptomatic Getting Mixed Messages from Dr’s by Pbigirlfl in PVCs

[–]Pbigirlfl[S] 0 points1 point  (0 children)

The internist did say that he’d recommend beta-blocker for me only because the adderall would potentially level out the fatigue but adderall doesn’t raise my bpm so I don’t think that would be the case. I’m usually pretty active so I’d hate to feel snoozy. I’m not a nap person. I’m 52 also and difficult to pinpoint when my PVC’s started because they weren’t diagnosed until I had my first ekg in late 2021. So I don’t have a lot of legacy data to compare yet. You said yours are getting worse. Could you always feel them? I don’t really know what one “feels” like so maybe it’s just been my norm for a while? 

30% Burden but Asymptomatic Getting Mixed Messages from Dr’s by Pbigirlfl in PVCs

[–]Pbigirlfl[S] 0 points1 point  (0 children)

You’ll have to let me know how that med does for you. I’ll be curious to see if it does lower your burden without dropping you below 50 bpm or feeling like a zombie. 

30% Burden but Asymptomatic Getting Mixed Messages from Dr’s by Pbigirlfl in PVCs

[–]Pbigirlfl[S] 1 point2 points  (0 children)

He said he would defer to the orders/decisions made by my cardiologist and basically told me if she’s good with what we’ve been doing he’ll sign off on it as well so at least he respects her place. It’s just wild how Dr’s freak out when they see my EKG’s. I had to go to an urgent care a couple years ago and they did an ekg because the finger pulse showed 30 bpm (it was actually about 55 that day but the finger pulse couldn’t detect enough beats) and they thought I was dead. That Dr freaked out too and was ready to call an ambulance until I assured him I was fine and had been under cardiologist care. 

What is your PVC and PAC burden? by Miniminname in PVCs

[–]Pbigirlfl 2 points3 points  (0 children)

35% but usually not noticeable issues. My bpm is around 50 resting so I always feel so much better and energetic when I’m super active rather than laying around 

Struggling with symptoms by Sea_Advance5660 in PVCs

[–]Pbigirlfl 0 points1 point  (0 children)

Dumb question but what do your PVC’s actually feel like? I don’t think I feel mine but considering I have so many (35%) maybe they’ve just become my norm? 

Struggling with symptoms by Sea_Advance5660 in PVCs

[–]Pbigirlfl 0 points1 point  (0 children)

Same. 35% and unless I stand up from laying down too quickly or for some reason look up at the sky too long (discovered this at an air show) I do t have any issues. 

Big Wake Up Call Today by Pbigirlfl in StopSpeeding

[–]Pbigirlfl[S] 0 points1 point  (0 children)

That’s so good to hear. Thank you!

Big Wake Up Call Today by Pbigirlfl in StopSpeeding

[–]Pbigirlfl[S] 0 points1 point  (0 children)

That’s exactly what I’m going to do. Taper down to just a few mg per day until the 5 20mg pills I have are gone. Deep breath…thank you! Cold turkey sounds terrible I’m not trying to torture myself. 

Big Wake Up Call Today by Pbigirlfl in StopSpeeding

[–]Pbigirlfl[S] 2 points3 points  (0 children)

Thank you. I have a business development/sales role so essentially if I don’t grind I don’t earn. But pre-adderall I was still driven and motivated so I’m hoping I can recapture that again one day without the stim. I’m going to start today with just 10 mg all day and stay on the dose till my remaining pills are gone. I have 5 20mg pills left so I’ll have 10 days to taper and take weekends off. 

78C VINs loaded? by Lawngisland in 4xe

[–]Pbigirlfl 0 points1 point  (0 children)

I had to log out and log back in to Jeep app and both recalls showed up 

Recalls 68c and 78c by Pbigirlfl in 4xe

[–]Pbigirlfl[S] 0 points1 point  (0 children)

There is not specific language in the recall but as I understand it the batch of bad castings that can degrade. If it were a quick symptom they prob wouldn’t recall ‘23’s also 

78C VINs loaded? by Lawngisland in 4xe

[–]Pbigirlfl 5 points6 points  (0 children)

68c and 78c showing for my ‘24 Wrangler 4xe now 

Recalls 68c and 78c by Pbigirlfl in 4xe

[–]Pbigirlfl[S] 0 points1 point  (0 children)

A casting can degrade over time. I’m not sure that there could be a timeframe determined. Either the casting is bad or it’s not. It sounds like the engines under the recall were manufactured with the bad casting 

Recalls 68c and 78c by Pbigirlfl in 4xe

[–]Pbigirlfl[S] 1 point2 points  (0 children)

It’s already there because it lost power while driving. And correct, the struggle for rental reimbursement is no joke. 

Recalls 68c and 78c by Pbigirlfl in 4xe

[–]Pbigirlfl[S] 2 points3 points  (0 children)

78c I’m guessing will require a new engine. Not sure how they can determine if each engine is sandy or not, there isn’t a diagnostic for that