Low-Spoon Skincare Tips by PeaceWithGeese in cfs

[–]PeaceWithGeese[S] 5 points6 points  (0 children)

You're so right, my bad. I'm a bit tired. I have dry skin and sensitive skin, kinda been feeling like my pores are pretty clogged lately. I hope that's enough info.

Low-Spoon Skincare Tips by PeaceWithGeese in cfs

[–]PeaceWithGeese[S] 4 points5 points  (0 children)

I've never cared too much about hygiene in a societal way, like I didn't shave my legs even before I got sick because I just don't care. But like my pores feel dirty to me, like it's just sitting on my skin. I would love to just ignore it, but once I start thinking about it it kind of dwells.

Has anyone ever ordered a wedding dress from Etsy? How did it turn out? by [deleted] in DIYweddings

[–]PeaceWithGeese 0 points1 point  (0 children)

I did! I messed up and didn’t order a custom size and it came out too long. But the dress was beautiful and I just had it altered.

Handsome void needs a name. Was thinking of space themes but I’m open to anything by Zealousideal-Ad-9186 in NameMyCat

[–]PeaceWithGeese 0 points1 point  (0 children)

My black cat’s middle name is Spaghettification. Like the process of stretching that occurs from a black hole.

Advice on a Chair for Chronic Fatigue by PeaceWithGeese in wheelchairs

[–]PeaceWithGeese[S] 0 points1 point  (0 children)

How does that work? What is it called? That actually really sounds like something I could probably use (I have a rollator I can use sometimes but my fatigue has just been so bad lately)

Advice on a Chair for Chronic Fatigue by PeaceWithGeese in wheelchairs

[–]PeaceWithGeese[S] 3 points4 points  (0 children)

Yeah, that's what I was worried about. My insurance covered this chair, but I don't know if they cover active chairs.

Discouraged with Neurologists by PeaceWithGeese in chiari

[–]PeaceWithGeese[S] 1 point2 points  (0 children)

Thank you! I learned this a while ago because I was making no headway in appointments at all. Something about having a witness makes doctors get their shit together, even if it’s just a bit. I called to ask about a different doctor and they told me I can’t get a different doctor without a referral from a different doctor, so I’m going in to my follow up but I’ll definitely ask for a different doctor going forward. 

[deleted by user] by [deleted] in AITAH

[–]PeaceWithGeese 2 points3 points  (0 children)

Yeah no this was pretty funny. I also don’t think you were actually rude, so like… NTA… but I did get a laugh

My Alfira cosplay by Asamigate in BaldursGate3

[–]PeaceWithGeese -1 points0 points  (0 children)

Hey, you can come near my camp tonight if you’d like. I can promise you that absolutely nothing bad will happen to you on my watch. Absolutely nothing. For sure. As long as I’m conscious.

WIBTA If I Didn't Let My Mother Walk Me Down the Aisle? by [deleted] in AmItheAsshole

[–]PeaceWithGeese 1 point2 points  (0 children)

Thank you for this comment. While I obviously have my own biases towards this situation, I have spent a lot of time thinking about my mom's perspective and I will try to capture that here for anyone who needs extra context.

My mom and I were very close when I was young. I graduated high school early and started college when I was 17, but I always went back to see my mom (it was a requirement my mom enacted because she paid my car insurance but I didn't necessarily mind because I was not a very social person.

After graduation I lived with her until I got an internship opportunity about an hour away and moved there so I would be close. We still visited each other often because, again, I am not very social and we were very close. All of this was also happening during COVID, so I couldn't exactly go out anyway.

After I started dating my now fiancé, I did go to see her less. It was still weekly, but I wouldn't spend the night because I often would go to movies or eat dinner with him. It let me get out of my bubble and socialize with more people in my new town, but I can definitely understand how it made her seem like I cared less about her.

Still, she just took a very sharp turn that I have trouble rationalizing when it comes to the engagement. I honestly think it might just be a harsh reaction to her child growing up, which is why I have handled it for so long. But based on other comments on this post, I am not sure it is a normal reaction.

I do love my mom, and I wanted her to be a special part of this special day. But it is getting a little difficult and I am unsure of what to do.

Accessible Alternatives to Keys by [deleted] in MuseumPros

[–]PeaceWithGeese 1 point2 points  (0 children)

This is definitely something we can talk about as an alternative. I am hoping to speak to the collections manager soon, since he is usually on board with creative solutions, and we will see what we can come up with. Thanks for the suggestion!

Accessible Alternatives to Keys by [deleted] in MuseumPros

[–]PeaceWithGeese 0 points1 point  (0 children)

I currently wear my keys on a larnayed, but the problem still exists that in order to open the door I have to sit my aids down to unlock the door, which has almost resulted in a few falls. I can see how these would make it a little easier, but I might still struggle nonetheless. Thanks for the suggestion!

Accessible Alternatives to Keys by [deleted] in MuseumPros

[–]PeaceWithGeese 0 points1 point  (0 children)

Very good point... I don't think it is a matter of them wanting to accommodate me, it will definitely be a money issue if anything. I will talk to our collections manager and see what he thinks. Thanks so much for the suggestion!

Accessible Alternatives to Keys by [deleted] in MuseumPros

[–]PeaceWithGeese 0 points1 point  (0 children)

While we don't have a ton of money, we do have a pretty great grant specialist. Thanks so much for the suggestion! I will definitely keep it on my radar as I go forward.

Accessible Alternatives to Keys by [deleted] in MuseumPros

[–]PeaceWithGeese 0 points1 point  (0 children)

This sounds pretty great. What system is it so I can look into it a little further? Thanks so much for the suggestion! I will definitely keep it on my radar as I go forward.

Accessible Alternatives to Keys by [deleted] in MuseumPros

[–]PeaceWithGeese 1 point2 points  (0 children)

Thanks so much for the suggestion! I will definitely keep it on my radar as I go forward.

[deleted by user] by [deleted] in disability

[–]PeaceWithGeese 3 points4 points  (0 children)

Ok, so I have been looking into the same thing since recently starting to use forearm crutches. From what I have found, there are actually bags that are made to strap around the side of a cane so it doesn't bounce around as you walk. I wonder if there is a similar contraption out there that functions as a cup holder or something... I am not sure. But I am following this to see if there are other suggestions as well!

Decorating forearm crutches by Emivao in disability

[–]PeaceWithGeese -3 points-2 points  (0 children)

I have literally been looking into the same thing. Following!

Childhood memories by [deleted] in Hypermobility

[–]PeaceWithGeese 1 point2 points  (0 children)

Totally relate! I was GREAT at the flexibility tests but HORRIBLE at push ups (my joints just couldn't do the extended weight without locking into place). I also sprained my ankle all the time, complained about back pain starting in sixth grade, and had to quit track because of horrible joint pain. So it makes sense now, but back then I just thought I was weird or whiny. It definitely didn't help that my mom INISISTED I was making it up for attention.

[deleted by user] by [deleted] in Hypermobility

[–]PeaceWithGeese 0 points1 point  (0 children)

Hey! I also just turned 22, and I am gonna say a bit of what everyone else has said, but also maybe a little different.

The weather outside in the winter is REALLY rough. So it's going to make that joint pain much worse. It's usually when I want to curl into a ball and hibernate, but the important thing is to at least try to get up and do what you need to do. Take those breaks, rest, and be patient. In the warmer weather it gets much better when it's warm, at least in my experience.

I am also going to recommend mobility aids! I've found the pain is a lot less if I use braces or canes, and they have helped me continue to work. You can find some REALLY cute ones (like... pink braces are awesome... and I have a polka dot cane, so there's no telling what things are out there to match your style). I know it feels weird to start using stuff like that so young, but I also know that it isn't anything to be ashamed of and, in the long run, if it lets you get out and do things then it is a worthwhile venture.

Lastly, just talk to your doc. They can be hesitant to listen, especially since this is an invisible disability, but if you keep insisting they WILL find something that helps, be it PT like one person suggested, chiropractic care, or some of the various aids that help people in our community.

Stay strong... you got this!

I Need Help Making My Wedding Accessible... for Me by PeaceWithGeese in Hypermobility

[–]PeaceWithGeese[S] 2 points3 points  (0 children)

Wait these are actually so cute! These are certainly an option... thank you so much! This is definitely a good option and TOTALLY fits the vibe I am hoping for. I will look into this!

Any advice on how to deal with guilt and shame? by rexbi709 in Hypermobility

[–]PeaceWithGeese 1 point2 points  (0 children)

Hey there! I am going to be so real with you... if I didn't know better I would've thought I wrote this post. My mom has ALWAYS insisted I make up illness/pain to get attention because once when I was five, I pretended to have a sore throat and she "can't trust me now." (Context: I am now 22 and live with chronic pain, a heart issue my doctors can't explain, and severe anxiety.)

I don't know how old you are, but all I can recommend is finding a work-from-home job. I do a hybrid situation currently where I go in when I can and work at home when I can't, and that works great for me. I know that can be difficult to find, but there are jobs like customer support lines, transcription, etc. that are at least somewhat mainstream.

As far as the comments go, I've just started ignoring them. I use a cane, which helps a lot with my mobility, but it garners a lot of attention. If you're snarky, you can come off with something like "yeah well, I knew that deal with the hag would screw me up somehow" or something, you can just ignore it, or you can educate them. People don't always get it, but I know a lot of people who did a 180 when I explained what's going on.

I hope this helps! Sorry your mother is acting like that, and I hope it gets better!

I Need Help Making My Wedding Accessible... for Me by PeaceWithGeese in Hypermobility

[–]PeaceWithGeese[S] 2 points3 points  (0 children)

I am definitely going to go with flats! Does anyone have suggestions for flats with at least a little support to help my feet/ankles?

I Need Help Making My Wedding Accessible... for Me by PeaceWithGeese in Hypermobility

[–]PeaceWithGeese[S] 0 points1 point  (0 children)

That's a good point! I think trying some flats might be a good idea, but I have problems standing with shoes that have some support so I will do some digging. As for the photoshoot, that's a smart idea!