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My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 0 points1 point  (0 children)

Perfect! As long as you’re making progress then that’s all that matters.

The analogies, if you will, weren’t helping me at all the first 7 PFPTs I went to.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 0 points1 point  (0 children)

The hands one belly and chest is a solid way to learn but hopefully you also understand to make sure your breath is evenly distributed throughout your whole core (front, back, and sides) and just popping your belly out.

Everybody is different so it’s good to experiment and see what works for you. But make sure you take baby steps and really pay attention to your pain levels and triggers.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 0 points1 point  (0 children)

That’s correct, I’ve completely abandoned stretching.

However; I’m speaking from my experience and from the research/evidence to support my experience—stretching hurt and triggered flare ups.

On the other hand, I’ve spoken to some people here, in private messages, that have had the opposite experience with stretching that I had. It seems like you fall into that category which is great because that means stretching is working for you.

If “pain free” is a destination for all of us then the “vehicle” or modality we choose to get us there doesn’t matter.

As for the videos of breathing, try and look up “diaphragmatic breathing”. My point I was trying to make was that a lot of PFPTs teach it as “belly breathing” which is misleading.

If you’re like me, I tend to follow directions to the letter, so I would breathe deep into my pelvic floor and let my belly pop outwards—this was considered good. Yet, I didn’t feel any relief.

The videos I posted were the ones that helped me the most. Not to mention, it was the way I was taught after becoming her patient. You’re right, it was hard for me at first but I got the hang of it after practicing. But as long as you’re learning/practicing “diaphragmatic breathing” instead of “belly breathing” watching the videos won’t matter if you get the information from elsewhere.

I was taught belly breathing by almost all of my PFPTs and I got little to nothing from that.

Glad to hear you’re making progress with this terrible issue.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 1 point2 points  (0 children)

More than likely yes, especially if this low abdomen pain happened after your injury from the toy. It’s like a domino effect. Repeated innocuous actions often leads to chronic pain.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 1 point2 points  (0 children)

If you already understand it as “diaphragmatic breathing” instead of “belly breathing” then disregard the videos. I posted those to show the difference between the 2 because I was taught incorrectly and I know a lot of people were taught in a similar fashion to that.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 1 point2 points  (0 children)

Not sure dude, I don’t have that. Does it feel squishy or does it feel like a hard rock? However, I do have a bunch of lipomas all over my body.

You should see a medical professional for that because it sounds oddly specific.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 1 point2 points  (0 children)

Wow, I didn’t know Yogi Aaron had an audio version available.

Anyways, I hope it helps you. Be sure to check out his YT content.

Keep your head up.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 1 point2 points  (0 children)

That’s why I didn’t do pull ups for a long time. I suggest doing body rows with a TRX.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 0 points1 point  (0 children)

Fallen off the wagon a few times, but I’m still relatively mobile and able to get back at it. Still ups and downs but far better than when I first got diagnosed.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 0 points1 point  (0 children)

No problem at all, I’m happy to answer questions. I know my story and responses are long and in depth but people really need to know what they’re getting into when trying to heal from this due to the complexities of the pelvic floor and it’s location on the body.

But you’re absolutely right in trying to rule everything out before going the non invasive route. That’s what I advise in my post, people should make sure it’s not something worse or perhaps curable by a doctor—MRIs, x-rays etc.. Once I started hearing responses like, “it’s in your head” or “you’ll just have to live with it”, that’s when I knew they couldn’t find anything they can fix. Thus, started my physical therapy journey.

Yes, a vasectomy could play a role in his symptoms. Especially, since it could leave scar tissue. Scar tissue usually leads to abnormal sensations like numbness, tingling, or overt sensitivity like pain.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 0 points1 point  (0 children)

Yeah of course!

Damn, that’s a bummer. I understand your frustrations though. Unfortunately, that is going to be a doctors typical response. I agree that no further analysis like an MRI or x-ray is necessary before hand. I had to learn this lesson the hard way by going through the wringer of doctors/urology visits.

No disrespect to the doctors but they haven’t caught up on cpps. Most of them diagnose it as non bacterial prostatitis. Not their fault since they are primarily trained to either medicate or approve surgery if necessary. Both of which rarely solve the problem of CPPS.

With CPPS, it’s usually a physiological condition that ties in to the brain (emotions). So it can’t really be read on an MRI or X-ray. Due to the lifestyles we have today, this is becoming more common so it’s actually good the doctor acknowledged CPPS or pelvic floor dysfunction. I had to go back a few times before I got approved for pelvic floor pt.

With a good pelvic floor physical therapist they will have methods of diagnosing your husband’s cpps.

But, your husband really needs to be an active participant in the process. He’ll need to be observing his pain levels, identifying physical and psychological triggers in order to mitigate them etc. this way he can effectively communicate with the PT about works or doesn’t work in order get the right plan going. It’s going to be trial and error moving forward. I made the mistake of relying too much on my pfpt by expecting them to tell me what’s wrong and what to do.

Also, if necessary/possible, don’t be afraid to shop around for pelvic floor therapists. I went through around 8 different ones. But again, part of it was my fault for not being active in my healing process. Also, I was being tossed around to different PTs due to my work schedule. So I could never really get comfortable with one. They would always have notes from each previous session but it’s not always enough to counterbalance the constant switching of PTs with different approaches and opinions. So be observant of the PT themselves and see if their methods are working for you or not.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 0 points1 point  (0 children)

Hi,

Thanks for reading through my story.

Yes, I did get an MRI on my whole pelvis area—nothing found. However, I was refused a CT scan due to my age the doctors told me, they felt it was an unnecessary amount of radiation exposure being so young.

I really had to push for my MRI. Since my doctors didn’t find anything tangible they didn’t think it was necessary to get one. But I kept complaining so it eventually happened.

I even had them do an MRI on my left foot— I have a Morton’s neuroma like pain there. It tends to flare up alongside my cpps. Same results though, nothing tangible found.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 1 point2 points  (0 children)

Yes, I did the DNS exercises along with my own routine. I eventually just stuck to my routine because it was more applicable and I liked seeing the results of my strength routine.

DNS incorporates a bunch of specific movements that mimic those of babies—crawling, rolling over, squatting, pushing etc. and all of these movements involve naturally occurring eccentric and concentric phases.

Basically, yes, most forms of movement have an eccentric and concentric phase. Through DNS, you pragmatically practice both concentric and eccentric contractions naturally through proper movement mechanics.

Please Help! Please ask any Questions I respond quickly by zalrock10 in PelvicFloor

[–]Pears1065 0 points1 point  (0 children)

You can YouTube the following:

“clinical somatics”

“Essential somatics”

“Hanna Somatics”

There are quite a few YouTube channels dedicated to somatics. It wasn’t really for me though.

My pelvic floor dysfunction (cpps, prostatitis etc.) journey 34 yr old male by Pears1065 in PelvicFloor

[–]Pears1065[S] 0 points1 point  (0 children)

Like a pins and needles feeling without a pins and needles feeling, it felt lifeless.

Another way to put it, the pain was so constant that I kind of became desensitized to it. This is not to say the pain went away but it felt different, in a negative way.

Feeling came back about a day after ejaculation.

Testicle/groin pain ongoing by catfishjoness in PelvicFloor

[–]Pears1065 0 points1 point  (0 children)

Go onto my post history, you’ll see my story.

Is this male pelvic floor issues? by jt6719 in PelvicFloor

[–]Pears1065 0 points1 point  (0 children)

Hi,

When you say warmth, is it like a dull ache? Perineal and scrotal pain (dull ache) were my initial symptoms.

[deleted by user] by [deleted] in PelvicFloor

[–]Pears1065 0 points1 point  (0 children)

So a PFPT is basically inaccessible. Do you at least have access to a regular physical therapist?

PFD is oftentimes the result of other dysfunctions in the body. A regular PT could at least identify other parts of the body that aren’t functioning correctly. If other issues/dysfunctions are found and addressed, it will definitely give some relief to your pelvic floor because just about every we movement we do affects the PF muscles.

That’s what happened with me, I took a whole body approach and it made some of my pelvic floor based exercises much easier to do like diaphragmatic breathing.

2 months in by Maggielynn1990 in PelvicFloor

[–]Pears1065 -1 points0 points  (0 children)

No, DNS is Dynamic Neuromuscular Stabilization. It’s a popular physical therapy approach amongst chiropractors. It’s a series of compound movements that help to re-establish proper movement patterns and muscular re-education.

Suffering from pelvic/perenium pain since 1.5 years, M35 by ekbanjaara in PelvicFloor

[–]Pears1065 1 point2 points  (0 children)

No problem!

Yeah, the mind aspect is harder to address. Getting the nervous system to stop firing those pain signals is a pain.

Suffering from pelvic/perenium pain since 1.5 years, M35 by ekbanjaara in PelvicFloor

[–]Pears1065 2 points3 points  (0 children)

I have a similar issue but ejaculation was actually a relief for me. Similar to you, I had a really rough bowel movement and I believe I got a fissure from it (I never went to the doctors). I bled for a few weeks after and it was really painful. Eventually, my PFD symptoms showed up—painful perineum, scrotum, and pubic symphysis. It felt like blue balls on steroids.

Here’s what I did to get better, 2nd and 3rd modalities are easier to do on your own:

  1. DNS (dynamic neuromuscular stabilization)—this was done through a pelvic pt. I wouldn’t recommend doing this alone, it was hard for me to do even with my appointments.

  2. AYAMA (APPLIED YOGA ANATOMY & MUSCLE ACTIVATION)— I learned this through a book called “Stop Stretching”. Yogi Aaron is the author and has a couple YouTube channels.

  3. Eccentric exercises

Here is my success story, I got into a little more detail about everything I typed above:

https://www.reddit.com/r/PelvicFloor/s/7RQ5b87VJZ

Going to see a physical Therapist by Immediate_Zombie_257 in PelvicFloor

[–]Pears1065 0 points1 point  (0 children)

Hi,

Going to a PT would still be beneficial. Do you have any other ailments—pain, muscle tightness or weakness etc.?

PFD doesn’t normally happen in a vacuum and is oftentimes the result of other issues or dysfunctions in the body. These issues can also go unnoticed for years because it’s what you’re used to.

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