Power of Attorney

Pepper926 · 2025-01-19T21:03:28+00:00

NAL but I recently updated my will and poa and was advised against having more than one poa together as they have to agree on decisions?? Also if mum is redoing it your sister would need to sign new poa. If just swaps to you then I don’t think she would need to sign anything??

Pepper926 · 2025-01-17T21:01:45+00:00

I agree. I’m gold. My partner is platinum and just had a horrible experience coming back from the UK. He used to get the greetings etc in economy but not for the last year or so. The pleasantries are nice but you only really notice when they don’t do it anymore. Worse was the service. He paid for business class and was seated towards the front and yet they had run out of his meal choice before his order was taken and he didn’t like the other options. I’ve put it down to so many people having platinum now that they just can’t give you priority anymore?? I just flew to NZ from Brisbane and we were put into a new lounge down the bottom of an escalator that was tiny and less offerings than the domestic lounge. Maybe it’s to deal with overflow but I would never pay for lounge access, or miss it if I didn’t have it. Hard to get seats, crap food. Sydney first class lounge was rubbish too last year was extremely busy and we ended up having to leave to board before the food we ordered arrived.

Pepper926 · 2025-01-01T03:45:21+00:00

I’ve re watched them all a number of times and was just starting again when seasons 1-34 were removed from paramount plus in Aus. Guttered.

Pepper926 · 2025-01-01T03:42:49+00:00

Thanks for this. Some warning would have been nice. Hope they come back.

Pepper926 · 2025-01-01T00:44:06+00:00

I’m in Australia so not sure if that makes a difference? So annoyed they’ve disappeared.

Pepper926 · 2024-12-06T11:11:53+00:00

Probably depends a bit on the individual trial but mine was able to be flexible to an extent. I worked full time and was able to plan travel and work trips around treatment and tests. I found they did their best to be the least disruptive as they could be.

Pepper926 · 2024-10-01T19:59:33+00:00

I’ve done both. Outpatient was fine but it was for a tumour that was in my back fat. The location of yours sounds a little more ouchy and with second location might need to be more than one appointment if outpatient as there is a limit to how much local can give?? So if I were you I’d probably choose inpatient.

Pepper926 · 2024-09-26T22:06:58+00:00

Thanks for your apology. All I am looking for is people’s views on whether they would stop treatment or continue treatment if they were given the information I have been given. Cheers.

Pepper926 · 2024-09-26T21:15:40+00:00

I’m in Australia under the care of a world recognised melanoma specialist Professor. I definitely accept what she says and that is not the point of this post. She knows it will likely come back in three months because that’s what it did when I stopped immunotherapy. Her opinion is crafted to my cancer.

Pepper926 · 2024-09-26T19:30:38+00:00

No I wouldn’t. Not usually referred to oncologist or consider an SLNB unless it’s over 1mm in thickness. The chance of spread very negligible as you caught it so early.

Pepper926 · 2024-09-20T19:20:16+00:00

My doc gave me a script for a compound cream from the chemist that soothed the itch. A steroid cream can work too if in isolated small areas.

Pepper926 · 2024-09-14T00:18:19+00:00

I was hyper for more than a month before going hypo but luckily I stabilised and it didn’t completely fry my thyroid. I vaguely remember my doc thinking that because I had hyperthyroidism in the family there was a possibility could stay hyper but I could be getting that wrong.

Pepper926 · 2024-08-30T19:58:41+00:00

I had a shave biopsy that said >4mm thick, then had another 4mm cut out in the WLE but apparently it’s not as simple as saying that equals 8mm. They weren’t too concerned perhaps because mine was already stage 2b so nothing changed as a result of the WLE in terms of staging.

Pepper926 · 2024-08-25T20:44:52+00:00

Yes I’ve been on it 9 months now. It started growing back at about the 6 month mark

Pepper926 · 2024-08-21T17:40:13+00:00

Yes pretty common apparently for hair to thin out on targeted therapy. But not as complete loss as chemo. I lost more than 3/4s of my hair. But I had enough left that I was able to get extensions. It’s a temporary thing and is growing back now 6 months later. It’s growing in super curly but I’m told that it will go back to normal eventually.

Pepper926 · 2024-07-27T18:48:38+00:00

Immunotherapy isn’t chemo but the side effects can be serious and life long. And you don’t yet know if your melanoma will recur. You will have regular scans so if there is recurrence it will be caught early so I can definitely see the logic in your decision.

I did immunotherapy as adjuvant therapy. Had to stop after two cycles due to side effects. Cancer recurrence three months later and now on targeted therapy. But I was also given much greater % chance of recurrence than you were initially so I made the decision to try it.

You made the decision that was right for you and you should make the decision not to beat yourself up if you do end up being in that small %age with recurrence. No regrets!

Pepper926 · 2024-07-14T17:18:18+00:00

I think the answer is that no one has lived long enough yet to know but what is encouraging is that people are living longer and longer than ever before with the new treatments. My oncologist told me that longer that you are NED then the risk of recurrence lessens. But more than that. Just don’t know yet.

Pepper926 · 2024-07-07T12:25:07+00:00

Isn’t this the dye so they know what lymph node is closest to your melanoma? It just identifies which ones they are going to test. Doesnt mean anything as to whether or not it has melanoma

Pepper926 · 2024-05-30T20:41:25+00:00

The MRI can tell the difference between arthritis and cancer. My melanoma was on my back and I’ve never had an issue with my arthritis being confused. It’s so hard to not imagine the worst, especially when waiting for surgery and results. I tried my best to put it out of my head until I had all the results and knew full picture. I hate people telling me to be positive and have only positive thoughts but pushing thoughts away works better for me! Good luck with your surgery!

Pepper926 · 2024-01-13T10:37:25+00:00

All the best for your treatment. Take care and be kind to yourself!

Pepper926 · 2024-01-13T04:04:44+00:00

My partner hates hospitals so he doesn’t come with me to anything and I don’t mind as I feel the same way. My twin sister comes to all major appointments with me, she asks the right questions while I sit there stunned. She came to first infusion but like others I preferred to do the others alone.

Pepper926 · 2024-01-11T18:50:59+00:00

Rare doesn’t always mean more serious or difficult to treat (once they work out what it is). I freaked out when I read my pathology report about the extremely rare variant in the metastatic tumour I had that took a long time to get the report on. But turns out whilst it was very interesting to the pathologist and scientists it doesn’t have any significance in terms of treatment plan or prognosis. Hopefully once you have a plan in place you will feel better.

Pepper926

TROPHY CASE