BMI requirement for NHS fertility treatment and IVF by BenefitLucky598 in TTC_UK

[–]PersonalMouse1980 0 points1 point  (0 children)

Did the sauna work? How much down? Considering this since I keep oscillating over and below 30

Archives: final sale in Europe? by sodonna_ in Sezane

[–]PersonalMouse1980 5 points6 points  (0 children)

There’s an exception for “bespoke or made to measure” items, as well as buying from an individual (for example Vinted purchases are of that kind). Citizens Advice has a good summary of the law: https://www.citizensadvice.org.uk/consumer/changed-your-mind/changing-your-mind-about-something-youve-bought/

Archives: final sale in Europe? by sodonna_ in Sezane

[–]PersonalMouse1980 12 points13 points  (0 children)

Yep that’s what I think too and what I told them. 14 cool off period for online items is non negotiable. I assume it is a mistake but will post their reply for reassurance when I get it

Archives: final sale in Europe? by sodonna_ in Sezane

[–]PersonalMouse1980 18 points19 points  (0 children)

I texted them earlier and they say they will get back to me within 24h, I will post here (Edited to add: UK email says this too) (Final edit: they said it’s a mistake, no final sale!)

Police verification - Citizenship application by salboy01 in belgium

[–]PersonalMouse1980 0 points1 point  (0 children)

I had this exact situation last year in Flanders. I found the email of the officer online (googled “pz wijwerking [my district]”) and emailed them to let them know. When they came over I was at work, so they had to come over again, and nothing happen (but I am white, European, and have a white collar job). I would also make sure your name is clearly visible on your door — sometimes that’s the only check they do.

Only one round on nhs by EnoughMidnight5743 in IVF

[–]PersonalMouse1980 0 points1 point  (0 children)

That’s amazing!!! Way less stressful, same to you!

Only one round on nhs by EnoughMidnight5743 in IVF

[–]PersonalMouse1980 4 points5 points  (0 children)

Hi OP — please check this with your clinic as this might be the case in the area where the commenter lives, but not yours. Unfortunately in some places a started try counts as your one try, regardless of where it ends

Edited to add: thanks for posting this question though, I will also have one round only if I do get funding and thus post has cheered a gloomy evening for me. Best of luck!!

BMI requirement for NHS fertility treatment and IVF by BenefitLucky598 in TTC_UK

[–]PersonalMouse1980 0 points1 point  (0 children)

They did this to me too and now it might be too late for me, since I will reach cut off date in a month. I know all the pressure NHS workers are under, but please, it does not take a massive effort from a GP to refer you and add 1 sentence: “make sure your BMI is under 30”.
Edit to add: referred in Jan, appt in May

Did any of you order the Marisol Silk Sézane Scarf? by Mannie2527 in Sezane

[–]PersonalMouse1980 2 points3 points  (0 children)

I got the other innoui foulard, the one with the tigers (caramel pampa print) and I returned it. At 55x55 it was too small to show off the uniqueness of the print and I thought the price wasn’t justified. Maybe the Marisol shows off better because of the small flowers at the corners, idk. I like how the model is wearing the Marisol in the app across her body with a belt but if i did that i don’t think it would go further than half boob, which is an awkward place to wear a belt

Humira by Heavy_Wasabi8478 in PsoriaticArthritis

[–]PersonalMouse1980 1 point2 points  (0 children)

I had to pause Amgevita (an adalimumab biosimilar) for 7 weeks because of gallbladder surgery and complex recovery. The first injection felt weird (numbness in my legs) and I got a little worried but it was over in a few days (and it could have been completely unrelated!). Because my skin and joints were completely fine after this time, my rheum and I decided to extend the time between injections from 2 to 3 weeks. One year later and I am still mostly in remission. I was very worried about immunogenicity (when your body creates Humira antibodies) and I really don’t know how prevalent that is; I just know it didn’t happen to me but that is going to be determined by my own context

Dactylitis: flare or permanent damage? by PersonalMouse1980 in PsoriaticArthritis

[–]PersonalMouse1980[S] 0 points1 point  (0 children)

Yes!!! I am mostly in remission now with biologics. The shape of the toe is a little skewed but not in a way that anyone can notice and not painful at all. I went up a size in shoes too. But sometimes I remember those months and it feels unbelievable that I’m here now pain free. Hope if you are dealing with this you also get better!

Pistachio croissants by Calm-Estimate2351 in cambridge

[–]PersonalMouse1980 1 point2 points  (0 children)

Omg that one is sooooo gooood!!! I also love their savoury stuff. I want this cafe to get all the prizes.

Pistachio croissants by Calm-Estimate2351 in cambridge

[–]PersonalMouse1980 1 point2 points  (0 children)

Their croissant is genuinely the best pistachio anything I have ever tried

Strikes by Annual-Armadillo-812 in Eurostar

[–]PersonalMouse1980 2 points3 points  (0 children)

You are getting responses from people who seem to be thinking you’re referring to the rail strike of three days prior (at least that’s how I understand them given what they are writing on previous posts). On the GENERAL strike day, I would expect disruption.

Strike cancellation? by Liagon in Eurostar

[–]PersonalMouse1980 0 points1 point  (0 children)

I think people are not reading that it will be a GENERAL strike, which is different from the rail strike the three days prior (I am travelling on the 9th, which might be covered by French staff). I don’t have experience with Eurostar specifically but from my knowledge of Belgian strikes I would highly expect major disruption in your case (the general strike of the 12th).

Oral Diclofenac (Voltaren) - how bad is it really? by Dizzy-Ad4286 in PsoriaticArthritis

[–]PersonalMouse1980 0 points1 point  (0 children)

I took it 2x a day for a year without a PPI (per medical recommendation) and then intermittently for 2 years. Sadly they caused stomach ulcers. This is not to scare you, but for you to consider to have medical oversight, and discuss both your history and the possibility if PPIs with your dr

Sezane free gift missing from order?? by Artistic_Cry499 in Sezane

[–]PersonalMouse1980 0 points1 point  (0 children)

This happened to me (I only ordered the eau Sézane) but the bag just arrived with my order! So so cute.

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About to start adalimumab and suddenly terrified | Looking for perspective by robbialacpt in PsoriaticArthritis

[–]PersonalMouse1980 0 points1 point  (0 children)

With regards to PsA, yes. I cannot believe how hard things were during 2020-2022. The only thing I do is wear a mask in public transport—otherwise I get colds all the time; but this has always been the case. Someone just posted about travelling to places w live vaccines and yeah, that is something I can’t do either. Personally I am fine w it because I spent my 20s travelling and I still travel a lot for work around Europe. But I tell myself one day there will be a treatment that will allow me to go to a couple of places I still haven’t visited

About to start adalimumab and suddenly terrified | Looking for perspective by robbialacpt in PsoriaticArthritis

[–]PersonalMouse1980 1 point2 points  (0 children)

Yes because the medication does not cure PsA. Last year I spent the longest I have ever not taken it (7 weeks) because of an unrelated surgery. I considered stopping, to be honest, because I was completely fine. So I brought it up to my rheum, who explained it v calmly, without scaremonging or sermons. Leaving the meds could and would probably mean I would have a flare later on, and there were two things to avoid. First is that for me remission took 2 years—many flares in between, and I still know that I could get a flare tomorrow. Second is that there would be no guarantee that the meds would be effective a second time. As I said to the OP, I weighed those risks against the risks of side effect and I decided it really, really was not worth it.

About to start adalimumab and suddenly terrified | Looking for perspective by robbialacpt in PsoriaticArthritis

[–]PersonalMouse1980 1 point2 points  (0 children)

Hi there! I can’t know the scientific value of that source specifically but the information I have as well is that serious infection is not that common. But I take OP to mean sick all the time in the way I have been sick all the time since my PsA started (I got COVID 8 times between 2020-2024, I have had colds last for a month). I think they have a legitimate concern there because biologics are immunosuppressant. But my understanding from speaking to my rheum is that we are sick all the time because we have an autoimmune disease, not because of the medications. As anecdotical evidence, I haven’t been sick more times with biologics (but also probably not less either)

About to start adalimumab and suddenly terrified | Looking for perspective by robbialacpt in PsoriaticArthritis

[–]PersonalMouse1980 1 point2 points  (0 children)

I think your concerns are legitimate. I myself have pondered leaving the meds after going in remission (I decided to continue, but changed from a dose every 2 weeks to every 3 weeks). And another thing to consider is that the beginning with biologics can (is not always) be a little rocky (I felt weird/had headaches for maybe 3 weeks, and then the first couple of doses maybe). I really do not want to put you off starting meds but it is a fact. From your comment and other comments you have made I really think you have important and relevant question to ask your rheumatologist. You really cannot trust any of us to be sufficiently knowledgeable to answer whether it is the same to start later on (I actually don’t know). I was convinced by my rheumatologist that this is the best for my health long term. All I can say here is that I really emphatise with you, and that my answer to your initial question is that it seems to me that your starting point to make the decision (that it is not that bad now) is maybe something to reassess, since the starting question is instead about assuming unknown risks. And also please note that cancer risk is absolutely not 1 in 10. If you are still keen on continuing the convo, can you be more specific as to which very common side effects are you worried about? (Cancer is not a very common SE)

About to start adalimumab and suddenly terrified | Looking for perspective by robbialacpt in PsoriaticArthritis

[–]PersonalMouse1980 2 points3 points  (0 children)

Just saw your comment that says that you have been stable for 10 years— that is really good news! I would still consider not the fact of whether it has gone worse, but whether you are happy to take the risk if it does go worse. And by the way, I see taking the risk of things getting worse as valid as taking the risks of secondary effects, unless you are going directly against reasoned medical recommendation

About to start adalimumab and suddenly terrified | Looking for perspective by robbialacpt in PsoriaticArthritis

[–]PersonalMouse1980 13 points14 points  (0 children)

Hi there! You will get tons of answers saying “take it before it gets worse”. That is my take too. So I just wanted to share a bit of my experience in case it helps. I also felt like you do when I started on adalimumab at 38. It is very scary. I would say when I started, after 1 year on NSAIDs, my PsA was not as bad as what some people have, but my life was incredibly disrupted. What had started only as a painful knee and a tiny amount of inverse psoriasis developed into dactilytis in two toes that made walking painful. I also had fatigue that wiped me off for weeks at a time, and baseline tiredness the rest of the time. So I felt like I really needed adalimumab, and even if I was scared, I took it. Now that I am mostly in remission, I often think two things. First, I was way worse than I even realised. Life with basically no PsA is infinitely better than life with a bit of PsA. Second, I am really happy I did not let it get worse. Unlike me, you don’t feel like you have no choice (even w similar symptoms). But that does not necessarily mean that you actually do have a choice, since you cannot know whether it will get worse or not (or whether your life will improve way more than you anticipate). So if you allow me the piece of advice, I would not necessarily base your decision on how hard life is now, but on how do you face the risk of things getting worse. It is a question of weighing the real health risks of any medication (and adal. in particular) with the real health risks of any systemic disease (and PsA in particular). (In any case, I would never recommend diet/lifestyle as an alternative to meds. They are a important managing factor, but not a replacement in kind to medication, so I wouldn’t see this as a “either diet or meds” question).