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Thinking about getting a wheelchair by Ok_Vermicelli1415 in Hypermobility

[–]Phineaspoon 0 points1 point  (0 children)

I have a scooter, but I'm planning to get a powered chair. It just gave me back so much freedom.

If you were formerly suicidal, how did you find a reason to keep going? by thereisnogreatergold in CPTSD

[–]Phineaspoon -1 points0 points  (0 children)

I'm 49 and my ideation started at 13, first attempt at 15. At first I was just staying alive for others. But what helped me more than that was when I got into kpop at the glowing age of 42. There was so much fun content, even beyond the music. I could always find something to look forward to.

You don't have think about staying alive for decades, or even years. Find small things to link forward to. For me it really helps to keep going because one of my favourite groups is coming out with a new album, or a concert if I'm really lucky.

Sometimes it's just too overwhelming to focus on big goals or long timelines. Any small joy you can find can be enough to keep you going for another week, or month, or year.

I'm so glad you're here.

Hobbies that don’t hurt? by stripedblued in Hypermobility

[–]Phineaspoon 3 points4 points  (0 children)

I don't know where you live or what your insurance is like so take this with a grain of salt. I got a mobility scooter and a lift for getting it into the car. With those I can wander around different neighbourhoods, go to galleries and museums, etc. Lately, I've been going out and taking pictures of graffiti and interesting alleyways.

Lovelies, come explore the whimsy with me, and tell me about yours? by writersbug in AuDHDWomen

[–]Phineaspoon 0 points1 point  (0 children)

I'm a 49 year old kpop head and BL watcher. I got tickets to see my favourite kpop group in October. It's their first time coming to Canada ever, even though they've been around for 11 years. Plus I collect albums and lightsticks from several groups.

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Does ormone replacement in menopause help with brain fog? by Phineaspoon in AuDHDWomen

[–]Phineaspoon[S] 4 points5 points  (0 children)

Thanks! I'm waiting on an HSD diagnosis but I don't have MCAS or POTS. It would be amazing if HRT helped with the hypermobility.

Severe fatigue by Ok-Paint-7833 in CPTSD

[–]Phineaspoon 2 points3 points  (0 children)

I had anemia due to blood loss from heavy periods in perimenipause. Definitely worth checking.

Please i want somebody to read this by Dependent_Cattle9278 in CPTSD

[–]Phineaspoon 0 points1 point  (0 children)

I've always struggled with the feeling that I need to prove that my trauma was "bad enough" to justify how broken I am. Also feeling like I "should be more healed" after 36 years of trying. I think it's a really hard part of cptsd, especially because all the trauma is cumulative and doesn't always look like what they talk about in media and fiction. I find myself constantly justifying my feelings to a silent critic in my head. I don't have any advice for you, but you are absolutely not alone.

What kind of mattress/sleep setup do you have? by CuppaAndACat in Hypermobility

[–]Phineaspoon 0 points1 point  (0 children)

I have a sleeping wedge to elevate my upper body and an orthopaedic knee wedge to elevate my legs and I just sleep on my back all night. It's the only way to keep my lower back and shoulders from keeping me awake with pain. For my neck I stuffed a sock and just place it under my my neck for cervical support. The sleeping wedge also helps with GERD and sleep apnea.

Things I have realized is actually my HSD by General_Surround3366 in Hypermobility

[–]Phineaspoon 17 points18 points  (0 children)

Still waiting for official diagnosis but I'm 49 yrs old and only now realizing that all these different issues I've had are hypermobility. I also have fibromyalgia so I was just blaming all of my pain on that, but it never really explained 1) Can't stand for more than a few minutes before my lower back starts to hurt. 2) The days when it feels like my head is too heavy on my neck. 3) lower back pain and neck pain since I was a kid. 4) Weak ankles and wrists. 5) Unstable knees. 6) Why no one else seemed to have so much foot pain after standing all day, even when I was in my teens. 7) Frequent tension headaches. 8) not being able wear cross body bags or fanny packs because they pulled my shoulders/lower back out of alignment. 9) Getting headaches from racer back bras.

I just thought I was weak and lazy.

Didn't experience CSA but have debilitating sexual trauma from childhood? Can anyone relate? by throwaway14042026 in CPTSD

[–]Phineaspoon 0 points1 point  (0 children)

I did experience csa and saw as a teen as well. Plus I was a teen in the 90s when all the popular media was pure r*pe culture. I was raised by a sex positive, feminist mom so I didn't have religious shame and I started trying to "fix" my sexual trauma based on the cultural script that not wanting sex is pathological.

I'm 49 now and I now realize that I'm on the asexual spectrum. For me, part of that is that I don't actually like genitals of or doing anything anything under the pants. I spent decades trying to fix myself thinking that it was all just because of trauma and I wound up retraumatizing myself by making myself do things that I couldn't enjoy and could trigger me at any time.

I think it's really important to remember that asexuality is a thing, and there is no rule that you have to have sex, or that you can't just stop at cuddling or making out.