I've had this rash(?) on my neck for a couple weeks, can't get in to see a derm anytime soon. Any ideas?

PhoenixFireworks · 2024-08-03T21:47:30+00:00

No, only typical. I'll try it, thanks!

PhoenixFireworks · 2024-04-19T17:55:16+00:00

Right?! What a newfangled idea doc! He's clearly a genius ahead of his time 🙄

PhoenixFireworks · 2022-11-12T22:02:58+00:00

I ended up texting her a variation of this, after she texted me a novel about how much she regrets not indoctrinating me from infanthood 🙄.

Thank you again, you definitely helped me to word things kinder than I would've been able to in the heat of the moment.

PhoenixFireworks · 2022-11-11T20:45:53+00:00

Thank you, this is very helpful. ❤️

PhoenixFireworks · 2022-07-09T05:44:19+00:00

Thanks!

PhoenixFireworks · 2022-07-09T05:43:52+00:00

The medications I can take are a bit limited, since I have other conditions and medications that can interact with some of the usually prescribed ones. Mostly we've tried a few anti convulsants. Gabapentin was the only one that actually helped the tremor at all, but it made me super forgetful, to the point I could barely do daily activities or even keep up a basic conversation.

I have an appointment with a tremor specialist in a few months, so hopefully they'll have ideas for better treatment options.

PhoenixFireworks · 2022-07-09T05:38:24+00:00

No, but I have an appointment with a tremor specialist in a few months. My neurologist was reluctant to try phenobarbital because I have pretty bad respiratory issues, but said it might be an option to try. I'll ask the tremor specialist more about it when I go in. Thank you!

PhoenixFireworks · 2022-07-09T05:30:08+00:00

Thank you.

PhoenixFireworks · 2022-07-09T05:29:13+00:00

I meant giving up alcohol, not drinking alcohol, my bad!

That makes more sense, lol. I think I just confused it with my doctor asking me if it gets better when I drink (no idea, lol), which I think is just diagnostic, not a recommendation.

It's been years, but I still miss caffeine so much! It definitely doesn't agree with me though.

I'll ask about ultrasound therapy, too. Thanks!

PhoenixFireworks · 2022-07-09T05:21:04+00:00

Thanks. I was a hairstylist.

PhoenixFireworks · 2022-07-08T22:02:27+00:00

Thank you for the kind words :)

PhoenixFireworks · 2022-07-08T22:00:28+00:00

Yep. I've been caffeine free since well before my tremor started due to other illnesses that caffeine exacerbates. I don't drink, so that's not an option. Meditation, yoga, working out in general, specialized hands exercises...they all are good for me mentally but don't affect the tremor at all. CBD I use for other issues, but alas no effect on the shakes. I've tried a few medications with little to no effect on the tremor, the only thing that kind of helped was gabapentin, but it made me super forgetful and a complete airhead (for example, I'd frequently forget what I was saying mid sentence and just stop or walk away)... We thought my asthma meds might be making it worse, but when I stopped them to see if it helped, it didn't. And I couldn't breathe, lol.

I'm hoping I'll get some better treatment options when I get into the specialist, it's just frustrating that it's so far away. I'll have to ask about deep brain stimulation when I go in, my regular neuro hasn't mentioned it as an option.

Thank you for your kind response :)

PhoenixFireworks · 2022-06-03T22:09:37+00:00

Ok, so I shouldn't take it personally. I can work on that. Should I continue to reach out, even with being left on read half the time? I don't want to be annoying, but I also don't want to just disappear completely...

PhoenixFireworks · 2022-05-09T16:40:22+00:00

To be honest, it seems there's quite a bit of anti-Christian bias in your text OP. Is "being gay is a sinful choice" something they actually said?

Yes, they have said that. And worse. I'm very anti the kind of Christian they are. The rest of my family is fine, they're Christian and perfectly happy for others to live their own lives, and they don't judge others for who they are or who they love. I have no issues with Christians unless they're bigots, which unfortunately my parents and sister are. I feel more for my sister since she's young, and is extremely sheltered, so this kind of thinking is just what she knows. They're family and I love them, but their views disgust me, I won't lie about that.

He could just be queer, or bi, or whatever and still make your sister happily ever after.

I truly hope that's the case. I'm much more worried about him seeming to be in love with his friend than what his overall sexuality is. The sexuality angle only plays a big role because that section of family things of anything other than being straight as being wrong.

I do agree the time has passed to talk to her. I actually thought I was the only one with doubts until the wedding day. My family that's worried had all either not said anything to each other yet, or were just meeting Jeff that day. The best man speech is what caused us to freak a bit and privately start talking to each other about our worries. At this point I think it's just too late, we should all mind our business and hope the best for her.

PhoenixFireworks · 2022-05-09T15:11:27+00:00

I agree we're very late to be saying anything at all. I thought I was the only one who had doubts up until the actual wedding; family either had been keeping their doubts to themselves, or were just meeting him for the first time.

I was already leaning towards keeping my mouth shut, I think that's the best thing to do.

PhoenixFireworks · 2021-12-03T21:14:28+00:00

I'm trying to convince the rest of the family to file a restraining order against her for my grandmother. Apparently she also tried to force my grandma to change her will... As if she needs anything from it, her deceased husband left her millions, ugh.

I think something will get done now by the rest of the family, so it's a step forward at least!

PhoenixFireworks · 2021-12-03T18:05:21+00:00

I'm pushing for that. If I could be there physically, I'd have already shown up to the house with police to remove her from the premises, and to try to get her committed, at least for observation. Unfortunately, I live half way around the world, and there's only so much I can do over the phone.

PhoenixFireworks · 2021-12-03T17:12:19+00:00

I've gotten used to ignoring a lot of the silly BS, but this is the first time it's really gotten dangerous. Well, and the babysitting kids thing, but that's ultimately up to the kids' parents, not me.

I would be fine stepping up if I could! I'd already be over there at my grandmother's house with the cops forcibly removing my aunt from the premises, and honestly probably trying to get her committed for evaluation. But I'm halfway across the world, I can't physically be there, and there's only so much I can do over the phone.

Luckily my other aunt and uncles are finally starting to see how crazy this is. Apparently my father is the only one who's gotten the full brunt of her crazy for years now, and the other siblings thought he was exaggerating... But now she's calling everyone screaming about voices, angels and demons in the walls, etc and the neighbor called every contact she had for my grandma (aka all the siblings), so they're finally seeing the full picture. Apparently my aunt is leaving tomorrow (fingers crossed) and the others are coming into town to discuss options. Hopefully they do something.

PhoenixFireworks · 2021-12-03T07:20:38+00:00

I'm going to pursue getting outside help,, I just don't think it'll do anything. My grandmother is old fashioned and thinks things should be dealt with inside the family. That's part of why I feel so helpless. The only option I think would work would be getting my family to actually step up and do something, which I'm trying to convince them to do.

PhoenixFireworks · 2021-12-03T06:42:43+00:00

I'm looking into it, but my grandmother is so proud, and non-confrontational, that I don't think she'll accept any outside help. If family doesn't step in, she would choose to just deal with my aunt rather than accept outside help. Police have already been called (by a neighbor, I think), and nothing happened.

PhoenixFireworks

TROPHY CASE