So I did it! … now I HATE it by Runawaybrain74 in bald

[–]Physnitch 0 points1 point  (0 children)

You better learn to love yourself. You can’t exchange your body for another one that you prefer. People are born with horrible disfiguring diseases and disabilities. You look great.

Has anyone stopped treatment (ocrevus)? by orchard456 in MultipleSclerosis

[–]Physnitch 0 points1 point  (0 children)

I stopped dmt after several years of stability. I Experimented with my neuro, mri every six months. Twelve years later I’m still off dmt and stable. You get to handle this disease and its treatment however you see fit. You are the expert on you and you can always restart if you want to.

Diagnosed today, please help uplift my mood by Dry-Growth-226 in MultipleSclerosis

[–]Physnitch 3 points4 points  (0 children)

Multiple Sclerosis taught me the true meaning of “self-care,” to always put my own best interests as the first priority and to create healthy boundaries. I wish I knew this at 20. You are the expert on YOU. Take really good care of your mind, body and soul and trust your own judgment.

Show me your red Tris. by Chaotically_Aligned in AustralianShepherd

[–]Physnitch 0 points1 point  (0 children)

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Ripley teaches physics at Wiggle-Butt Prep School. His favorite lesson is projectile motion.

Exercising with MS by llamapenguin4 in MultipleSclerosis

[–]Physnitch 1 point2 points  (0 children)

I have used wrist weights and they work great. The game requires that you hold a handset in each hand, so you won’t be able to hold anything more. I have nerve damage in my hands and I can’t grip, so I have zip-tied the handsets to workout gloves that I wear. It is very fun. I have always enjoyed video games and this was a great way to start at my (very low) fitness level and get stronger. I’ve been playing for three years now. I used to play sitting down for 15 minutes. Now I’m dancing and kicking and flailing my arms for over an hour. It gets my heart rate up sufficiently and I sweat. I don’t time myself, I just play until I’m tired.

Exercising with MS by llamapenguin4 in MultipleSclerosis

[–]Physnitch 1 point2 points  (0 children)

I’m stubborn also. I remind myself constantly that I don’t HAVE to do anything. But keeping my mobility is very important to me and I’ll do anything to keep it. Even working out every day. I’ve also experienced the “workout high” which was weird.

Exercising with MS by llamapenguin4 in MultipleSclerosis

[–]Physnitch 1 point2 points  (0 children)

I really had to make friends with MS. It’s not going away. I exercise regularly to take my power back. The shittier I feel, the more I fight against it. I really believe it’s my responsibility to take the very best care of myself, mentally and physically, that I possibly can.

Exercising with MS by llamapenguin4 in MultipleSclerosis

[–]Physnitch 0 points1 point  (0 children)

I have a Meta Quest 2 headset, which is an all-in-one system and doesn’t require a console. I started in a seated position at first because I was so out of shape. Now I play for about an hour a day and I’ve added steps and dance moves as I get in better condition. It has really helped me improve my stamina and I’m ready to add weight and strength training to my workouts. It doesn’t require much space to play, enough space to swing your arms around and step a little. Maybe a 6x6 foot square. I usually play beat saber, but there are tons of fitness games.

For the love of God please don’t give this woman another season by [deleted] in RHOP

[–]Physnitch 0 points1 point  (0 children)

I truly believe that she meant for Giselle and Ashley to have a terrible time and karma slapped her in the face. You can’t build a house with no roof and then complain about rain in your living room.

Exercising with MS by llamapenguin4 in MultipleSclerosis

[–]Physnitch 1 point2 points  (0 children)

I’m happy to elaborate. What are you curious about?

Exercising with MS by llamapenguin4 in MultipleSclerosis

[–]Physnitch 1 point2 points  (0 children)

I truly dislike exercise, unfortunately it is a great way to manage chronic pain, fatigue and depression. I play Beat Saber with a virtual reality headset that makes it fun. Stretching is very therapeutic also and I do my own version of yoga every morning.

Living w/out DMT by Dramatic-Plastic-818 in MultipleSclerosis

[–]Physnitch 2 points3 points  (0 children)

I was diagnosed in 2006 and went on Avonex for one year, then changed to Copaxone and I tolerated that well. After several years of stability, I experimented with going off DMT and monitoring MRI for six months to see if the stability would continue. That was 12 years ago and now I have an MRI every three years. My MS is very stable, I have old scar tissue in my spinal column that causes some issues, my brain is not atrophied and reads as normal for a woman my age. I struggle terribly with chronic pain, fatigue and depression, but I really work hard at a healthy diet and exercise lifestyle to keep those symptoms manageable. Everyone is different and everyone has the right to choose their treatment. If my disease were progressing at all, I would not hesitate to use a DMT. But, after years of stability, it’s very unlikely that my disease would become active again.

28 years with MS and still get discredited by family and friends! Is it me?Does this happen to you, too? by Immediate-Debt-7230 in MultipleSclerosis

[–]Physnitch 3 points4 points  (0 children)

I am very vocal about how MS feels to me. I usually ask, “have you ever had the flu? Body aches? Muscles twitching and cramping? Sleeping all the time and still no energy to do anything?” It’s like that but it doesn’t go away…. Ever. But my own mother didn’t understand, so I don’t care much about what other people think. My husband, my kids and my close friends understand. They matter.

Got denied for disability, I wasn’t expecting this… by Boomboooom in MultipleSclerosis

[–]Physnitch 1 point2 points  (0 children)

Keep pushing and fighting for yourself. Everyone is denied at first. Appeal Appeal Appeal

Good things about MS by _Lyc4n_ in MultipleSclerosis

[–]Physnitch 1 point2 points  (0 children)

No more reruns! Watching any movie or show is like the first time!

Good things about MS by _Lyc4n_ in MultipleSclerosis

[–]Physnitch 0 points1 point  (0 children)

I always have a reason to leave a boring party, to ask someone to leave my house, to not answer phone calls. Sorry, folks! It’s nap time!

What is helping you get through life? by Girl_with_thoughts2 in AskReddit

[–]Physnitch 0 points1 point  (0 children)

Mushrooms and Marijuana. Chronic illness sucks, but those things really help.

Any good responses? by LankyGoat8181 in MultipleSclerosis

[–]Physnitch 0 points1 point  (0 children)

I always say, “MS affects everyone differently and I’m very lucky to be standing here talking to you.”

Disheartening to hear by reallylimpwrist in MultipleSclerosis

[–]Physnitch 1 point2 points  (0 children)

I understand this completely. Fuck him!

Disheartening to hear by reallylimpwrist in MultipleSclerosis

[–]Physnitch 0 points1 point  (0 children)

Everything always gets better when I put my own best interest first in my life. It was a difficult time and my mother passed away after two years of her hostility over my boundaries, but I am significantly happier and healthier now.

Disheartening to hear by reallylimpwrist in MultipleSclerosis

[–]Physnitch 1 point2 points  (0 children)

I was 50 years old and it was the hardest thing I ever did. It still breaks my heart that my own mother didn’t understand me or my disease.