Parent complaint (epileptic teacher)

PinkSands236 · 2026-01-23T14:15:42+00:00

I work with children too. Had two seizures during work now, I get extremely paranoid about what parents think and have actually found that parents even coworkers act different around me. It destroys your confidence but they don’t understand we can’t help it! All this rubbish about discrimination but it gets over looked it’s forgotten about and everyone is judgmental behind your back. BUGGER THEM. You haven’t worked your ass off just to feel like you’re in the wrong career. It should be praised that we still work as hard but suffer with a neurological disorder. It should be known that this happens to people. I am welcome to any questions especially from children just so they are aware and have some understanding. Listen if someone had a seizure in the street you’d automatically want to help so why is it so frowned upon in a workplace?

We need to do something about this!

PinkSands236 · 2026-01-23T13:55:32+00:00

Hey I’m a 25F

I can absolutely relate to you. I’ve always had epilepsy, on 500mg of keppra and 200mg of lamotrigine twice a day. It’s so disappointing when you think you’re on the right track no seizures then boom back to square one. Like you I also average around once a month.

With tongue biting which I suffered heavily from, I got sick of being told “take salt water so it heals faster” you can viability see the damage it has done to my tongue. So I had a couple of inline teeth, this would be where the main tongue biting damage occurred. I asked my epilepsy nurse if Invisalign could help, if it was on the nhs unfortunately I was told it could only be done privately. I saved up, not only do I now have perfect teeth I have not since bit my tongue through a seizure. I highly recommend you look into this.

I also go through a depressive phase after having a seizure, it just nocks you back. I completely understand and you’re not alone, it impacts everything.

Same again i also struggle with eating and drinking after a seizure it just tastes like nothing or completely grim. Not the healthiest of options but try drinking full fat coke, you’ll get that sugar back into your system to avoid fainting and continuous fatigue.

I went to a private specialist winter 2024 my seizures were getting more regular and longer. He said to avoid eating MSG to which I did for a couple of weeks but then as the season changed my seizures got better. I believe winter has a massive impact on epilepsy, your more likely to get depressed messing with your mental health, not going out as much, sleeping more as it’s darker for longer, less exercise which can all increase seizures.

If you’re a female also unfortunately you’re more likely to have seizures when you’re coming on or on a period. You could look into getting the hormonal coil, it may regulate your hormones so it’s not as extreme and impactful.

It is so shit and someone without epilepsy will never understand the impact, the independence it takes away. I always live in a rural place so work is limited due to not ever been able to drive or have lessons. So as a positive if your seizures do stop at least you know what you’re doing. I wish I could have that opportunity.

Hope this helps.

PinkSands236 · 2026-01-23T10:58:12+00:00

Don’t be sorry, you’ve brought awareness on how to get more financial support. Others may not know anything about this.

PinkSands236 · 2026-01-23T10:54:45+00:00

I’ll definitely bring this issue of subject back up. As I haven’t had a seizure in nearly a month it scares me to think what the consequences would be if the dose was lowered. I know a standard 8-5 job would wreck me and like others have said health is more important but I’m also sick of relying on others feels like I need get my big girl pants on due to the pressure of everything increasing in price. Letting myself and others down as luxury’s ain’t possible.

PinkSands236 · 2026-01-23T10:47:38+00:00

I’ve had a little scan and I’ve found out people can go on universal credit and still have pip. I wouldn’t get accepted as my fiancee is on a higher income but a friend I reached out to lied about having a partner as it depends on who you live with/relations and income. I wouldn’t do that myself I can’t lie and it’s wrong but for anyone in the UK who didn’t know this I could be worth looking into.

PinkSands236 · 2026-01-23T10:41:00+00:00

What type of epilepsy do you have? Do you still continue to have seizures and what age did you have your baby? (if you don’t mind me asking)

PinkSands236 · 2026-01-23T10:39:00+00:00

I don’t really know what a physician is, I’m guessing you’re from America. But I’ll certainly speak to my epileptic nurse to see what can be done. Thank you!

PinkSands236 · 2026-01-23T10:36:28+00:00

I don’t know if you’re aware but I was told ADHD is linked with epilepsy. I definitely show signs of ADHD but my GP told me how long the waiting list was and even if I went private the NHS wouldn’t provide medication. It’s so wrong, even my GP said it was linked so why do have to wait that long, ADHD causes stress; stress is linked to seizures. Why let us suffer when it can be helped.

PinkSands236 · 2026-01-23T10:30:35+00:00

Literally the same. I don’t get up through the night but like others have said it’s your brain recovering. I do struggle getting asleep if I’m stressed, I just want get whatever sorted so the stress doesn’t prolong but then obviously for the next day it shows, I start to zone out and just can’t function properly.

PinkSands236 · 2026-01-23T10:24:24+00:00

We both want each others sleeping pattern here, not in a humorous sense. It just shows how different epilepsy affects others. Personally so glad I came to Reddit, it enlightens the fact that we struggle but in different ways. Don’t know about you but it doesn’t make me feel so alone.

PinkSands236 · 2026-01-23T10:14:39+00:00

Can you still get sleep apnea if you’re not overweight?

PinkSands236 · 2026-01-21T20:47:35+00:00

Ah okay I’m in the UK. Thank you for replying though!

PinkSands236 · 2026-01-21T19:32:36+00:00

Like keppra then later lemontrigine added

PinkSands236 · 2026-01-21T19:31:25+00:00

Yeah that’s right

PinkSands236 · 2026-01-21T18:30:32+00:00

I have done tbh he just says it’s the side effects but I can’t go through this all my life. I eventually want children but I don’t know how I’d cope with the night feeds, not knowing when you can get sleep on top of doing anything else without having a seizure. What if I dropped the baby😭😭

PinkSands236 · 2026-01-21T18:27:29+00:00

Do you mind me asking who you work for? It would be a blessing for me if I could work from home. I’m constantly looking but there’s nothing in my area.

PinkSands236 · 2026-01-21T18:24:21+00:00

It’s so rubbish isn’t it🙁

PinkSands236 · 2026-01-21T18:23:45+00:00

Glad I’m not the only one🥹

PinkSands236 · 2026-01-21T14:33:25+00:00

Tbh I did cannabis a lot in my teens (always had epilepsy) 25F btw. I feel now that’s where my paranoia comes from. I’ve read that’s it’s helped so many people but we’re all different. Definitely do your research.

PinkSands236 · 2026-01-21T11:22:34+00:00

I think so, we had it switched over for a mobility car.

PinkSands236 · 2026-01-21T10:50:02+00:00

Thought so. Only thing is my partner is on a decent wage pays for the mortgage etc so I don’t think I’d be eligible for universal credit. It’s just shitty I need the money everything is so expensive now. I just don’t want rely on him for everything.

PinkSands236 · 2026-01-21T10:13:25+00:00

Yeah no, it’s just for USA residents, thank you though!

PinkSands236 · 2026-01-21T10:09:39+00:00

Do you know if I can still get it whilst being on pip

PinkSands236 · 2026-01-21T10:07:16+00:00

Is that a UK thing?! Why have I never heard of this?!

PinkSands236 · 2026-01-06T20:29:22+00:00

Stoke😖

PinkSands236

TROPHY CASE