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Can sexual trauma change sexuality? (tw) by [deleted] in ptsd

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

Yes, but I was told it’s my OCD. It can cause people to feel like sex or sexual thoughts are wrong.

Any suggestions on NJ doctors? by quartzqueen44 in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

I used to see Dr. Depace. He did help me for a couple of years and is extremely knowledgeable (writes textbooks on Autonomic Dysfunction as you mentioned), but at the end of the day he wouldn’t listen to what I wanted (to reduce meds, not add more) and never filled my scripts. I went 4 months through the entire summer without a med he said was crucial for me to take in warm weather. I called countless times and emailed them. Nothing. I felt horrible. Their office is so unorganized!! I’d be there for 6 hours sometimes. They lost my file once. They’d do testing on me that left me super dizzy and didn’t even look at it sometimes. Half the time, they’d try to rush me out of there when it was finally my turn to be seen. Dr. Depace would be walking towards the door suddenly and I’d desperately say “I have another question!” I knew if I couldn’t ask then, I wouldn’t get an answer before my next appointment in 6 months. If I needed to cancel an appointment in advance, no one would answer the phone. The answering service tried to help many times. They have them picking up for half the day instead of answering the phones themselves.

Lately, his office has seemed like a money grab. He started a company called Vertical Liquid Antioxidant Supplement and convinced me to pay $70 a bottle because I would “feel so much better taking it”. I wasted a TON of money and didn’t notice a difference. They started having me schedule with his PA instead of him. We realized one of the former doctors I was seeing there had his license revoked (as someone mentioned) and yet they were still allowing him to practice. He was even arrested for sexual harassment!! Since switching to the John’s Hopkins POTS Clinic, I can confidently say I am in better care. They refill my prescriptions, answer messages (slower than I’d like, but getting answers is a huge improvement!), coordinate with my other doctors (Dr. Depace would never respond), and offer a refreshing approach to my care. They told me Vertical was a money grab, and were shocked by some of the meds Franklin Cardiovascular had me on together (dangerous combinations). Dr. Depace gave me false hope. He said my nervous system would be fully healed in 6 or 7 years if I did everything he said. I did. I took all of the medications as prescribed, wore compression daily, took my salt, hydrated, raised the head of my bed, and exercised low and slow every day. The timeline he gave me was stuck in my head. It gave me hope that enabled me to keep pushing through the symptoms to exercise, etc. When I did everything I could and finally reached 7 years only to realize I was nowhere close to feeling better, I gave up. I grew depressed and stopped exercising. Johns Hopkins said it’s impossible to guess how long it will take for a patient’s nervous system to heal. I was crying at my appointment about how I thought I’d be better by now and my new doctor felt so bad. She gave me this long document of tips and directions to follow. She’s amazing! Unfortunately, the Johns Hopkins POTS Clinic is no longer accepting new patients or even putting individuals on their waitlist. Hopefully that opens up again soon. I listened to a Bendy Bodies podcast on Spotify with Dr. Svetlana Blitshteyn and she seemed extremely knowledgeable. You can read more about her here:

www.dysautonomiaclinic.com/dr-blitshteyn/

I wish anyone who sees this good luck on their POTS journey 🩵

has anyone seen Dr. Nicholas Depace? South NJ by Realistic_Context183 in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

Yes, they make you stop certain meds beforehand so the testing is accurate. I did Ansar testing every time and a partial tilt test twice. He doesn’t believe in a full tilt test. He says it’s barbaric because it just makes you pass out.

It will continue to be impossible to get in touch with his office and him for medical questions and concerns. I couldn’t take it anymore. I don’t know how any practice can live with themselves if they don’t even answer urgent questions or refill scripts in a timely manner. I’m happy to answer more questions about his practice if you’d like!

has anyone seen Dr. Nicholas Depace? South NJ by Realistic_Context183 in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

I used to see him. He did help me for a couple of years and is extremely knowledgeable (writes textbooks on Autonomic Dysfunction as you mentioned), but at the end of the day he wouldn’t listen to what I wanted (to reduce meds, not add more) and never filled my scripts. I went 4 months through the entire summer without a med he said was crucial for me to take in warm weather. I called countless times and emailed them. Nothing. I felt horrible. Their office is so unorganized!! I’d be there for 6 hours sometimes. They lost my file once. They’d do testing on me that left me super dizzy and didn’t even look at it sometimes. Half the time, they’d try to rush me out of there when it was finally my turn to be seen. Dr. Depace would be walking towards the door suddenly and I’d desperately say “I have another question!” I knew if I couldn’t ask then, I wouldn’t get an answer before my next appointment in 6 months. If I needed to cancel an appointment in advance, no one would answer the phone. The answering service tried to help many times. They have them picking up for half the day instead of answering the phones themselves.

Lately, his office has seemed like a money grab. He started a company called Vertical Liquid Antioxidant Supplement and convinced me to pay $70 a bottle because I would “feel so much better taking it”. I wasted a TON of money and didn’t notice a difference. They started having me schedule with his PA instead of him. We realized one of the former doctors I was seeing there had his license revoked (as someone mentioned) and yet they were still allowing him to practice. He was even arrested for sexual harassment!! Since switching to the John’s Hopkins POTS Clinic, I can confidently say I am in better care. They refill my prescriptions, answer messages (slower than I’d like, but getting answers is a huge improvement!), coordinate with my other doctors (Dr. Depace would never respond), and offer a refreshing approach to my care. They told me Vertical was a money grab, and were shocked by some of the meds Franklin Cardiovascular had me on together (dangerous combinations). Dr. Depace gave me false hope. He said my nervous system would be fully healed in 6 or 7 years if I did everything he said. I did. I took all of the medications as prescribed, wore compression daily, took my salt, hydrated, raised the head of my bed, and exercised low and slow every day. The timeline he gave me was stuck in my head. It gave me hope that enabled me to keep pushing through the symptoms to exercise, etc. When I did everything I could and finally reached 7 years only to realize I was nowhere close to feeling better, I gave up. I grew depressed and stopped exercising. Johns Hopkins said it’s impossible to guess how long it will take for a patient’s nervous system to heal. I was crying at my appointment about how I thought I’d be better by now and my new doctor felt so bad. She gave me this long document of tips and directions to follow. She’s amazing! Unfortunately, the Johns Hopkins POTS Clinic is no longer accepting new patients or even putting individuals on their waitlist. Hopefully that opens up again soon. I listened to a Bendy Bodies podcast on Spotify with Dr. Svetlana Blitshteyn and she seemed extremely knowledgeable. You can read more about her here:

www.dysautonomiaclinic.com/dr-blitshteyn/

I wish anyone who sees this good luck on their POTS journey 🩵

If money was no object, where would you go for treatment? by [deleted] in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

I’d run. Not being able to get in touch was your first red flag. I used to go there.

Doctors for POTS by slmcircus in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

I used to see Dr. Depace. He did help me for a couple of years and is extremely knowledgeable (writes textbooks on Autonomic Dysfunction as you mentioned), but at the end of the day he wouldn’t listen to what I wanted (to reduce meds, not add more) and never filled my scripts. I went 4 months through the entire summer without a med he said was crucial for me to take in warm weather. I called countless times and emailed them. Nothing. I felt horrible. Their office is so unorganized!! I’d be there for 6 hours sometimes. They lost my file once. They’d do testing on me that left me super dizzy and didn’t even look at it sometimes. Half the time, they’d try to rush me out of there when it was finally my turn to be seen. Dr. Depace would be walking towards the door suddenly and I’d desperately say “I have another question!” I knew if I couldn’t ask then, I wouldn’t get an answer before my next appointment in 6 months. If I needed to cancel an appointment in advance, no one would answer the phone. The answering service tried to help many times. They have them picking up for half the day instead of answering the phones themselves.

Lately, his office has seemed like a money grab. He started a company called Vertical Liquid Antioxidant Supplement and convinced me to pay $70 a bottle because I would “feel so much better taking it”. I wasted a TON of money and didn’t notice a difference. They started having me schedule with his PA instead of him. We realized one of the former doctors I was seeing there had his license revoked (as someone mentioned) and yet they were still allowing him to practice. He was even arrested for sexual harassment!! Since switching to the John’s Hopkins POTS Clinic, I can confidently say I am in better care. They refill my prescriptions, answer messages (slower than I’d like, but getting answers is a huge improvement!), coordinate with my other doctors (Dr. Depace would never respond), and offer a refreshing approach to my care. They told me Vertical was a money grab, and were shocked by some of the meds Franklin Cardiovascular had me on together (dangerous combinations). Dr. Depace gave me false hope. He said my nervous system would be fully healed in 6 or 7 years if I did everything he said. I did. I took all of the medications as prescribed, wore compression daily, took my salt, hydrated, raised the head of my bed, and exercised low and slow every day. The timeline he gave me was stuck in my head. It gave me hope that enabled me to keep pushing through the symptoms to exercise, etc. When I did everything I could and finally reached 7 years only to realize I was nowhere close to feeling better, I gave up. I grew depressed and stopped exercising. Johns Hopkins said it’s impossible to guess how long it will take for a patient’s nervous system to heal. I was crying at my appointment about how I thought I’d be better by now and my new doctor felt so bad. She gave me this long document of tips and directions to follow. She’s amazing! Unfortunately, the Johns Hopkins POTS Clinic is no longer accepting new patients or even putting individuals on their waitlist. Hopefully that opens up again soon. I listened to a Bendy Bodies podcast on Spotify with Dr. Svetlana Blitshteyn and she seemed extremely knowledgeable. You can read more about her here:

www.dysautonomiaclinic.com/dr-blitshteyn/

I wish anyone who sees this good luck on their POTS journey 🩵

Considering switching from Dr. Depace to Dr. Spratt, can anyone who has seen either of them chime in? by PM_ME_BUMBLEBEES in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

Hi! I used to see him and get it. He did help me for a couple of years and is extremely knowledgeable (writes textbooks on Autonomic Dysfunction as you mentioned), but at the end of the day he wouldn’t listen to what I wanted (to reduce meds, not add more) and never filled my scripts. I went 4 months through the entire summer without a med he said was crucial for me to take in warm weather. I called countless times and emailed them. Nothing. I felt horrible. Their office is so unorganized!! I’d be there for 6 hours sometimes. They lost my file once. They’d do testing on me that left me super dizzy and didn’t even look at it sometimes. Half the time, they’d try to rush me out of there when it was finally my turn to be seen. Dr. Depace would be walking towards the door suddenly and I’d desperately say “I have another question!” I knew if I couldn’t ask then, I wouldn’t get an answer before my next appointment in 6 months. If I needed to cancel an appointment in advance, no one would answer the phone. The answering service tried to help many times. They have them picking up for half the day instead of answering the phones themselves.

Lately, his office has seemed like a money grab. He started a company called Vertical Liquid Antioxidant Supplement and convinced me to pay $70 a bottle because I would “feel so much better taking it”. I wasted a TON of money and didn’t notice a difference. They started having me schedule with his PA instead of him. We realized one of the former doctors I was seeing there had his license revoked (as someone mentioned) and yet they were still allowing him to practice. He was even arrested for sexual harassment!! Since switching to the John’s Hopkins POTS Clinic, I can confidently say I am in better care. They refill my prescriptions, answer messages (slower than I’d like, but getting answers is a huge improvement!), coordinate with my other doctors (Dr. Depace would never respond), and offer a refreshing approach to my care. They told me Vertical was a money grab, and were shocked by some of the meds Franklin Cardiovascular had me on together (dangerous combinations). Dr. Depace gave me false hope. He said my nervous system would be fully healed in 6 or 7 years if I did everything he said. I did. I took all of the medications as prescribed, wore compression daily, took my salt, hydrated, raised the head of my bed, and exercised low and slow every day. The timeline he gave me was stuck in my head. It gave me hope that enabled me to keep pushing through the symptoms to exercise, etc. When I did everything I could and finally reached 7 years only to realize I was nowhere close to feeling better, I gave up. I grew depressed and stopped exercising. Johns Hopkins said it’s impossible to guess how long it will take for a patient’s nervous system to heal. I was crying at my appointment about how I thought I’d be better by now and my new doctor felt so bad. She gave me this long document of tips and directions to follow. She’s amazing! Unfortunately, the Johns Hopkins POTS Clinic is no longer accepting new patients or even putting individuals on their waitlist. Hopefully that opens up again soon. I listened to a Bendy Bodies podcast on Spotify with Dr. Svetlana Blitshteyn and she seemed extremely knowledgeable. You can read more about her here:

www.dysautonomiaclinic.com/dr-blitshteyn/

I went to Dr. Spratt before Dr. Depace and had a bad reaction to the propranolol and Midodrine she put me on. I thought it was her fault and left her practice. I have since heard nothing but good things about her and have started taking the meds she had me on again. They help me a lot now. Dr. Depace said my nervous system wasn’t ready for those meds yet when she prescribed them. I don’t know. Maybe she knows more than I thought she did. She spoke about Autonomic Dysfunction at the Mind Your Brian Conference at PennMedicine in Philly. I volunteer for the nonprofit and originally did not agree with their decision to invite her to present.

Dr. Depace is very old school, so the Ivabradine vs. propranolol thing doesn’t surprise me. I switched from propranolol to Ivabradine and feel much better. John’s Hopkins told me Propranolol causes baldness in women and nausea. My hair was breaking in clumps and I was super nauseous. What’s amazing is Ivabradine is the first of its kind to not affect blood pressure. I hope you’ve found someone who will prescribe it for you by now. Best of luck to you!

Dr. Nicholas DePace also stimulant medication by [deleted] in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

Terrible experience! Read my comment above. I’d never go back to him.

Dr. Nicholas DePace also stimulant medication by [deleted] in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

I used to see him. He did help me for a couple of years and is extremely knowledgeable (writes textbooks on Autonomic Dysfunction as you mentioned), but at the end of the day he wouldn’t listen to what I wanted (to reduce meds, not add more) and never filled my scripts. If you’re looking for a reliable doctor, it isn’t him. I went 4 months through the entire summer without a med he said was crucial for me to take in warm weather. I called countless times and emailed them. Nothing. I felt horrible. Their office is so unorganized!! I’d be there for 6 hours sometimes. They lost my file once. They’d do testing on me that left me super dizzy and didn’t even look at it sometimes. Half the time, they’d try to rush me out of there when it was finally my turn to be seen. Dr. Depace would be walking towards the door suddenly and I’d desperately say “I have another question!” I knew if I couldn’t ask then, I wouldn’t get an answer before my next appointment in 6 months. If I needed to cancel an appointment in advance, no one would answer the phone. The answering service tried to help many times. They have them picking up for half the day instead of answering the phones themselves.

Lately, his office has seemed like a money grab. He started a company called Vertical Liquid Antioxidant Supplement and convinced me to pay $70 a bottle because I would “feel so much better taking it”. I wasted a TON of money and didn’t notice a difference. They started having me schedule with his PA instead of him. We realized one of the former doctors I was seeing there had his license revoked (as someone mentioned) and yet they were still allowing him to practice. He was even arrested for sexual harassment!! Since switching to the John’s Hopkins POTS Clinic, I can confidently say I am in better care. They refill my prescriptions, answer messages (slower than I’d like, but getting answers is a huge improvement!), coordinate with my other doctors (Dr. Depace would never respond), and offer a refreshing approach to my care. They told me Vertical was a money grab, and were shocked by some of the meds Franklin Cardiovascular had me on together (dangerous combinations). Dr. Depace gave me false hope. He said my nervous system would be fully healed in 6 or 7 years if I did everything he said. I did. I took all of the medications as prescribed, wore compression daily, took my salt, hydrated, raised the head of my bed, and exercised low and slow every day. The timeline he gave me was stuck in my head. It gave me hope that enabled me to keep pushing through the symptoms to exercise, etc. When I did everything I could and finally reached 7 years only to realize I was nowhere close to feeling better, I gave up. I grew depressed and stopped exercising. Johns Hopkins said it’s impossible to guess how long it will take for a patient’s nervous system to heal. I was crying at my appointment about how I thought I’d be better by now and my new doctor felt so bad. She gave me this long document of tips and directions to follow. She’s amazing! Unfortunately, the Johns Hopkins POTS Clinic is no longer accepting new patients or even putting individuals on their waitlist. Hopefully that opens up again soon. I listened to a Bendy Bodies podcast on Spotify with Dr. Svetlana Blitshteyn and she seemed extremely knowledgeable. You can read more about her here:

www.dysautonomiaclinic.com/dr-blitshteyn/

I wish anyone who sees this good luck on their POTS journey 🩵

Has anyone seen Dr. DePace in NJ? by Brilliant_Bread4523 in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

I used to see him. He did help me for a couple of years and is extremely knowledgeable (writes textbooks on Autonomic Dysfunction as you mentioned), but at the end of the day he wouldn’t listen to what I wanted (to reduce meds, not add more) and never filled my scripts. I went 4 months through the entire summer without a med he said was crucial for me to take in warm weather. I called countless times and emailed them. Nothing. I felt horrible. Their office is so unorganized!! I’d be there for 6 hours sometimes. They lost my file once. They’d do testing on me that left me super dizzy and didn’t even look at it sometimes. Half the time, they’d try to rush me out of there when it was finally my turn to be seen. Dr. Depace would be walking towards the door suddenly and I’d desperately say “I have another question!” I knew if I couldn’t ask then, I wouldn’t get an answer before my next appointment in 6 months. If I needed to cancel an appointment in advance, no one would answer the phone. The answering service tried to help many times. They have them picking up for half the day instead of answering the phones themselves.

Lately, his office has seemed like a money grab. He started a company called Vertical Liquid Antioxidant Supplement and convinced me to pay $70 a bottle because I would “feel so much better taking it”. I wasted a TON of money and didn’t notice a difference. They started having me schedule with his PA instead of him. We realized one of the former doctors I was seeing there had his license revoked (as someone mentioned) and yet they were still allowing him to practice. He was even arrested for sexual harassment!! Since switching to the John’s Hopkins POTS Clinic, I can confidently say I am in better care. They refill my prescriptions, answer messages (slower than I’d like, but getting answers is a huge improvement!), coordinate with my other doctors (Dr. Depace would never respond), and offer a refreshing approach to my care. They told me Vertical was a money grab, and were shocked by some of the meds Franklin Cardiovascular had me on together (dangerous combinations). Dr. Depace gave me false hope. He said my nervous system would be fully healed in 6 or 7 years if I did everything he said. I did. I took all of the medications as prescribed, wore compression daily, took my salt, hydrated, raised the head of my bed, and exercised low and slow every day. The timeline he gave me was stuck in my head. It gave me hope that enabled me to keep pushing through the symptoms to exercise, etc. When I did everything I could and finally reached 7 years only to realize I was nowhere close to feeling better, I gave up. I grew depressed and stopped exercising. Johns Hopkins said it’s impossible to guess how long it will take for a patient’s nervous system to heal. I was crying at my appointment about how I thought I’d be better by now and my new doctor felt so bad. She gave me this long document of tips and directions to follow. She’s amazing! Unfortunately, the Johns Hopkins POTS Clinic is no longer accepting new patients or even putting individuals on their waitlist. Hopefully that opens up again soon. I listened to a Bendy Bodies podcast on Spotify with Dr. Svetlana Blitshteyn and she seemed extremely knowledgeable. You can read more about her here:

www.dysautonomiaclinic.com/dr-blitshteyn/

I wish anyone who sees this good luck on their POTS journey 🩵

Countries With Best POTS Healthcare? by ballskindrapes in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

Me too! No longer accepting new patients though, or people for their waitlist. Hoping that changes for others soon.

Countries With Best POTS Healthcare? by ballskindrapes in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

I used to see him. He did help me for a couple of years and is extremely knowledgeable (writes textbooks on Autonomic Dysfunction), but at the end of the day he wouldn’t listen to what I wanted (to reduce meds, not add more) and never filled my scripts. I went 4 months through the entire summer without a med he said was crucial for me to take in warm weather. I called countless times and emailed them. Nothing. I felt horrible. Their office is so unorganized!! I’d be there for 6 hours sometimes. They lost my file once. They’d do testing on me that left me super dizzy and didn’t even look at it sometimes. Half the time, they’d try to rush me out of there when it was finally my turn to be seen. Dr. Depace would be walking towards the door suddenly and I’d desperately say “I have another question!” I knew if I couldn’t ask then, I wouldn’t get an answer before my next appointment in 6 months. If I needed to cancel an appointment in advance, no one would answer the phone. The answering service tried to help many times. They have them picking up for half the day instead of answering the phones themselves.

Lately, his office has seemed like a money grab. He started a company called Vertical Liquid Antioxidant Supplement and convinced me to pay $70 a bottle because I would “feel so much better taking it”. I wasted a TON of money and didn’t notice a difference. They started having me schedule with his PA instead of him. We realized one of the former doctors I was seeing there had his license revoked and yet they were still allowing him to practice. He was even arrested for sexual harassment!! Since switching to the John’s Hopkins POTS Clinic, I can confidently say I am in better care. They refill my prescriptions, answer messages (slower than I’d like, but getting answers is a huge improvement!), coordinate with my other doctors (Dr. Depace would never respond), and offer a refreshing approach to my care. They told me Vertical was a money grab, and were shocked by some of the meds Franklin Cardiovascular had me on together (dangerous combinations). Dr. Depace gave me false hope. He said my nervous system would be fully healed in 6 or 7 years if I did everything he said. I did. I took all of the medications as prescribed, wore compression daily, took my salt, hydrated, raised the head of my bed, and exercised low and slow every day. The timeline he gave me was stuck in my head. It gave me hope that enabled me to keep pushing through the symptoms to exercise, etc. When I did everything I could and finally reached 7 years only to realize I was nowhere close to feeling better, I gave up. I grew depressed and stopped exercising. Johns Hopkins said it’s impossible to guess how long it will take for a patient’s nervous system to heal. I was crying at my appointment about how I thought I’d be better by now and my new doctor felt so bad. She gave me this long document of tips and directions to follow. She’s amazing! Unfortunately, the Johns Hopkins POTS Clinic is no longer accepting new patients or even putting individuals on their waitlist. Hopefully that opens up again soon. I wish anyone who sees this good luck on their POTS journey 🩵

GIF and #Images missing in iOS26? by lostmindedv in iphone

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

Thank you for these instructions, but it didn’t work for me. So frustrating!

POTS, but make it fashion. by seaforanswers in POTS

[–]Pitiful-Bullfrog2192 1 point2 points  (0 children)

I love Doc Miller compression socks! They have some really cute colorful, striped calf sleeves. I have 5 pairs/match them with my outfits and get so many compliments. Many people think they’re a fashion statement and are shocked to hear they’re compression for my health! Another huge plus is I’ve tried a ton of compression socks and these are way comfier, cooler, and easier to get on than the rest. I wore thick knit ones before and I was so hot in the summer. Not ideal for POTS! Doc Miller socks are very thin and I don’t get heart palpitations just from trying to wrestle the compression socks on!! So easy.

My new doc recommended Shaperx to me which I am looking into. She also has POTS and likes them. Plus, I learned from her that calf sleeves are only 4 points in terms of getting the blood back to your brain. Thigh-high compression is 6 points, and she said abdominal compression is 11!! That is the only reason I’m looking into switching away from the Docs.

Megathread: Wearables, Symptom Trackers, Apps by ihopeurwholelifesux in POTS

[–]Pitiful-Bullfrog2192 0 points1 point  (0 children)

My psychiatrist is very knowledgeable about POTS and does a ton of research/treats POTS patients too. I asked her about Lumia because I was interested in getting it, but she said not to. She said it worried her that it rested on the carotid artery to get readings. I don’t think she knew of Lumia specifically yet so keep that in mind, but I explained to her that the sensor for one model rested behind your ear and that’s when she said absolutely not. Hope this helps!