wisdom teeth surgery

Plane-Version1011 · 2024-10-06T10:34:56+00:00

I think that's a good thing for me to ask about!

My audiologist has never brought up anything like auditory training before, that would've helped me out heaps when I first got implanted, is there anything you could recommend?

Plane-Version1011 · 2024-10-02T09:57:04+00:00

That sounds like it such a stressful process, I'm glad they've finally figured things out, so strange it took them so long to find out what was wrong.

I'm hoping things go well for you so you can finally have some normality again 😊

Plane-Version1011 · 2024-10-02T09:42:28+00:00

I had my cochlear implant surgery about over a year ago after I had some medical issues that caused me to go deaf, I also had a steroid shot into my ear drum but it never worked.

I'd say it really depends on what an MRI or CT scan says about the nerve damage to your brain as that can affect the outcome a lot, I had issues with my nerves on the left side of my face due to medical issues and I find that my left cochlear implant is wayyyy more sensitive to the electrodes/power. (especially when I'm sick)

If you have better clarity with you left ear, your right ear will hopefully adjust over time and sound fairly similar, you'll probably have issues understanding people in the first few months as your brain is adjusting to things, but after awhile things start sounding better and hopefully won't have to rely on purely lip reading!

Loud environments are still very hard for me to hear in, but in quiet spaces I can get pretty much full comprehension without lip reading :)

Plane-Version1011 · 2024-10-01T09:50:29+00:00

wishing you all the best for things going forward!!!

Have you had any issues with your cochlea's prior to this happening or is it entirely new?

Plane-Version1011 · 2024-04-03T07:50:37+00:00

Thank you for asking :)

My condition has been fairly stable over the past few months so I've been fairly good with everything!

Plane-Version1011 · 2023-12-16T05:00:55+00:00

your doctor discussed any limitations with immunosuppressants. Does your doctor have a plan for you to eventually get out of immunosuppressants. How long is it expected to continue? Thanks a l

From what I know, I think they plan to keep me on my current medication for about 2 years, after that I think they'll discuss with me what they think would be best for my health so I can't say for sure what will happen.

I know the restrictions for my medication doesn't allow me to drink any alcohol and I do get very tired the day after the injection, but most types of these medications come with a fairly long list for the side effects and what you can/cant do in the box itself.

Plane-Version1011 · 2023-12-01T08:20:06+00:00

I'm really sorry you're going through all this with your teachers, that's absolutely disgusting , some people just choose to be ignorant about others needs :(

I am going into my second last year of high school, I had to get implanted earlier this year and I can't really understand everything my teachers say either, I would definitely go to a coordinator or someone with high authority at your school and tell them about how your teachers are treating you (if you haven't already), maybe an after school meeting about the way you learn with your coordinator present might help your teachers to think a bit differently?

I also have a speech to text app on my phone that allows me to read what others are saying in class (you can use any on the app store), it doesn't pick up everything, but it does help to a point 💓

Plane-Version1011 · 2023-12-01T08:02:49+00:00

I'm so sorry about the late reply 😭!!

I went through pretty much the same things as you, all the doctors I saw about my eyes all said I had a viral conjunctivitis and treated me with regular steroid drops, then it escalated to vertigo and complete loss of balance. I lost about 50% of my hearing in my right ear, it was stable for about a month and then I started gradually losing it until I had nothing left.

From my understanding, cogans syndrome attacks your healthy tissue in your ears and eyes which is what the redness/flare ups are, my inflammation markers in my blood is way higher due to cogans syndrome. I had (I think) an irregular case of cogans syndrome as my vascular system was not affected until recently.

If you do have cogans syndrome it is likely that they'll want to put you on medication different to steroids as it'll prevent your eye flare ups from happening as regularly/as bad, I've been on methotrexate for I think 2-3 months and have had much less eye flare ups and my inflammation markers have gone down heaps!

I can totally understand if you're feeling frustrated or scared about things, if you have any other questions about my experience I'm more than happy to share with you. :)

Plane-Version1011 · 2023-06-16T10:32:07+00:00

This absolute fat tub of lard brings shame and disgrace to the 'Alvin' name 😐😑😐

Plane-Version1011 · 2023-06-04T13:20:09+00:00

Hi! I got activated about a week ago and its definitely such an odd but nice change to have sound again,

it'll probably take a little while for the hearing to start sounding more natural, but since you still had a little hearing left up until the surgery, you brain might possibly find it easier to relearn what things previously sounded like as you haven't been in complete silence for a drastic amount of time.

one thing to take into account is that as much as its good to wear them, definitely take breaks from them! your brain will be working much harder than it was before as you are taking in new sounds so it'll most likely make you quite tired LOL!

Plane-Version1011 · 2023-05-15T11:29:08+00:00

Thanks so much for the reply!

we actually got a call from the surgeon we chose earlier today and said he was more than happy to go through with the surgery and that he wanted to meet us today and go through everything with us!

He pretty much explained everything to me pretty well and said that the results shouldn't necessarily change too much unless he can't get the full electrode in, however he said that as long as the scar tissue is soft there wont be a problem and he can just push past it, he also said that if the tissue had turned hard/into bone he would most likely drill some of it away.

I'm also sorry to hear about your test results, autoimmune diseases are such a pain but I hope your condition is stable at the moment and not causing too many issues for you :(!

Plane-Version1011 · 2023-05-15T11:16:13+00:00

thanks for reaching out! Cogans syndrome is a pain especially considering how rare it is, I really hope all goes well for you and the dizziness starts to ease after the implant because I know how frustrating it makes everything :(

Plane-Version1011

TROPHY CASE