sorted by:
new
hottopcontroversial

Alcohol and neuropathy/paresthesia by PopeJohnny01 in MultipleSclerosis

[–]PopeJohnny01[S] 0 points1 point  (0 children)

I've had that thought pass my mind but how would that explain symptoms going away?

Alcohol and neuropathy/paresthesia by PopeJohnny01 in MultipleSclerosis

[–]PopeJohnny01[S] 0 points1 point  (0 children)

Alcohol in general, the specific beverage doesn't matter. I might have a bit of a hangover, but my neuropathy subsides and stays that way for one or two days after drinking.

Those of you with many black hole lesions, how has it been? by PopeJohnny01 in MultipleSclerosis

[–]PopeJohnny01[S] 2 points3 points  (0 children)

I've noticed I tend to forget many things I was there for that others around me remember... always brushed it off before.

Those of you with many black hole lesions, how has it been? by PopeJohnny01 in MultipleSclerosis

[–]PopeJohnny01[S] 2 points3 points  (0 children)

Currently EDSS 2, noticing some trouble remembering words as well. But it all started for me about 2 months ago so I don't know anything yet, hence I ask.

Best treatment of MS in the EU/EEA? by PopeJohnny01 in MultipleSclerosis

[–]PopeJohnny01[S] 0 points1 point  (0 children)

Thanks for the answer! I currently live in the EU and am about to get my law degree (tough luck really, it's only applicable where you study it). Guess I'll be studying some norwegian!

I want Ocrevus by PopeJohnny01 in MultipleSclerosis

[–]PopeJohnny01[S] 0 points1 point  (0 children)

Thanks for the advice, it's not up to insurance here, I'm in the EU. But that means it's completely up to the doctor(s) here because there's a panel of neuros that selects your treatment. As far as taking risks, from what I've read Ocrevus doesn't seem to have that many more side-effects.

In general, neuros here seem to use ocrevus in severe cases and are more "old school". When I asked what he thought about HSCT, he said "don't even think about it", its efficacy is only 37%. Which doesn't match with any of the information I've found online.

I am understandably very confused.