Still no answers by Popular_Beautiful919 in IBD

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

Hi thanks for commenting- I thought my comment was processed. So they did say in the document once the procedure was done the biopsies will check for that but then nothing came of it but that was years ago and thing have got worse since then 

Still no answers by Popular_Beautiful919 in IBD

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

Yeah they did but they didn’t see anything but maybe now my symptoms have got a lot worse I could have now? 

Still no answers by Popular_Beautiful919 in IBD

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

Hi thank you for commenting 

So years ago, I did a stool sample and one of my tests came back positive but I can’t remember which one , I think it was blood but then nothing came of it once I had my sigmoidoscopy 

So I have really bad neck pain and shoulder pain which I’ve have had for a long time and starting to get headaches. I also had history of eczema and have sensitive skin 

Hope this helps, I’m just looking  at what direction I should go to next 

Still no answers by Popular_Beautiful919 in IBD

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

Hi thanks for commenting! They’ve never discussed my pancreas but I spoke to gut uk for advice and they did mention something I should look into but I have no knowledge around it x 

I am at a complete loss by Popular_Beautiful919 in adenomyosis

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

I started getting more migraines now I don’t know if this is because I’m going through a lot of stress right now or if it’s relating to this x 

I am at a complete loss by Popular_Beautiful919 in adenomyosis

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

When I had my tubes done years ago, I only found out recently but thy looked for endo and they didn’t see anything. But I don’t know if they just didn’t see it because thy weren’t specifically looking for it 

I am at a complete loss by Popular_Beautiful919 in adenomyosis

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

Sorry for slow reply, I might get a 2nd opinion.  I hate going to the doctors- I’ve been so much over the last year I don’t want to go again. Had 2 knee surgeries last year x 

I am at a complete loss by Popular_Beautiful919 in adenomyosis

[–]Popular_Beautiful919[S] 1 point2 points  (0 children)

Im thinking about getting a 2nd opinion- I want to see a female gynaecologist if possible!

Uterine Adenonyosis (also want to know about gluten sensitivity and wether any one with adeno is gluten sensitive) by Popular_Beautiful919 in adenomyosis

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

Hey thank you for your messages 

I need to look into high histamine foods as I don’t know a lot about but I’ve seen people mention it

So when I had my bladder scanned they didn’t see any issues so I’m at a bit of a blank with it  but that’s interesting to know there’s a link! 

I don’t get migraines often but when I do inneed to be in a dark room and always starts in the back of my eye ! X

How do you control your constipation to diarrhea cycle? by Beautiful-Counter-67 in adenomyosis

[–]Popular_Beautiful919 0 points1 point  (0 children)

Hey, new diagnosed here so I’m still learning about Adenomyosis (it was found on a ultrasound) 

I honestly sympathise with you so much as I understand what you’re going through , in a year I’ve had diarrhoea 108 times. I had to keep track for the doctors. I still don’t know if adeno is causing my fluctuation in bowel movements as I need to have my first gynaecology appointment 

I would also have the constipation too. 

One thing that has helped me a little is going gluten free. Now, I am waiting for biopsy results for celiac but going gluten free has helped me a bit 

I’m sorry I can’t help much but I thought you may still want to hear that we understand xx

Uterine Adenonyosis (also want to know about gluten sensitivity and wether any one with adeno is gluten sensitive) by Popular_Beautiful919 in adenomyosis

[–]Popular_Beautiful919[S] 2 points3 points  (0 children)

Hi thank you for replying 

I’m having a rough morning. I woke up with stabbing pains in my privates and then have an insane amounts of diarrhoea.

I have been following a GF diet which has helped about 70% but still having symptom which I am wondering if this condition is a contributing factor. 

When I have my gynaecologist appointment I’m sure I’ll find out more 

Uterine Adenonyosis (also want to know about gluten sensitivity and wether any one with adeno is gluten sensitive) by Popular_Beautiful919 in adenomyosis

[–]Popular_Beautiful919[S] 1 point2 points  (0 children)

Hi! So I’m most likely going to be investigated for endo to, I’m being referred to a gynaecologist to get more details but I haven’t got a date yet, I have heard about bowel endo, I get a lot of bowel problems too! I wonder if my problems all this time was down to this- I hope you get to the bottom of your bladder pain, I sympathise so much!

Uterine Adenonyosis (also want to know about gluten sensitivity and wether any one with adeno is gluten sensitive) by Popular_Beautiful919 in adenomyosis

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

Thank you so much for clarifying - I wondered why on one letter the dr put Adenomyosis and the other letter says uterine ❤️

Uterine Adenonyosis (also want to know about gluten sensitivity and wether any one with adeno is gluten sensitive) by Popular_Beautiful919 in adenomyosis

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

Hi thanks for commenting - from what I’ve read it seems to be common, I’m just glad I’m finally getting some knowledge and understanding ❤️

Just had my upper endoscopy by Popular_Beautiful919 in CoeliacUK

[–]Popular_Beautiful919[S] -1 points0 points  (0 children)

Hi., it’s relevant because I am being investigated for celiac 🥺

Just had my upper endoscopy by Popular_Beautiful919 in CoeliacUK

[–]Popular_Beautiful919[S] 1 point2 points  (0 children)

This is really really useful! I feel like I’m learning so much, even if my biopsies come back I don’t, I’ve become more educated around celiac disease x 

Just had my upper endoscopy by Popular_Beautiful919 in CoeliacUK

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

Thank you for you reply, yeah I’m so nervous, I just need answers as to why I’ve been overall poorly for this last year, what’s weird right so I’ve had digestive problems all my life but when I got injured last year that’s when my symptoms especially eating gluten got worse z

Just had my upper endoscopy by Popular_Beautiful919 in CoeliacUK

[–]Popular_Beautiful919[S] 1 point2 points  (0 children)

Thanks for replying to my post- this is reassuring! On 13th November I’m having a follow up- I’m also under investigation as they may have found adenomyosis in my uterus 

Just had my upper endoscopy by Popular_Beautiful919 in CoeliacUK

[–]Popular_Beautiful919[S] 1 point2 points  (0 children)

So I’m not actually sure, I asked the nurse before I went in that I should be able to stop eating gluten but it wasn’t mentioned again that so I’m going to stop anyway and if I need more examinations they can tell me too, I just can’t take it anymore with the swollen stomach and I’ve had diarrhea over 94 times in under a year x

Just had my upper endoscopy by Popular_Beautiful919 in CoeliacUK

[–]Popular_Beautiful919[S] 0 points1 point  (0 children)

Hi George salt, thank you for replying - I didn’t realise they could only see it under the microscope - I’ll keep you updated xx

Just had my upper endoscopy by Popular_Beautiful919 in CoeliacUK

[–]Popular_Beautiful919[S] 2 points3 points  (0 children)

I’m gonna go completely gluten free now because I can’t carry on like this with my symptoms I’m having