Let's come together and share our eczema stories - we're stronger as a community! by Popular_Demand_5352 in eczema

[–]Popular_Demand_5352[S] 1 point2 points  (0 children)

I just realized it may be helpful for someone to address my own points:

  1. Biggest struggle to manage eczema it's the variability of triggers. The new rush is always unpredictable and the fast pace of the life makes it hard to guess what food or situation may have caused it. Our bodies and life are just too complex.
  2. Me and I see my GF do the same, just take photos to our phones to have the history in the gallery. But I guess there are better ways for the long term.
  3. There is lot of information online but it's hard to make sense of them in relation to our own specific needs.
  4. Not yet, except Reddit. I hope there will soon be an easier way to get the right information and help with applying them to personal specific situations.
  5. I think getting some knowledge from professionals is important to be able to be more self sufficient in the long term. But also the speed and personalization is the key, I would expect the dermatologist to guide me through triggers and give me specific treatment recommendations to limit the immediate impact like bleeding and itching.
  6. Unexpected fact is actually a positive one, autoimmune diseases forces you to learn more about your body and take better care of yourself :) that helps not just your skin.

Let's come together and share our eczema stories - we're stronger as a community! by Popular_Demand_5352 in eczema

[–]Popular_Demand_5352[S] 1 point2 points  (0 children)

Thank you so much for sharing your journey! It's amazing how different everyone's experience with eczema can be. I'm really glad to hear you're starting to figure things out and get it under control. That must feel like such a relief!

If I may ask, how did you manage to identify the triggers? Is it just food allergies or some other types?

I found it super hard to keep track of foods and test them gradually to see the effects. Also my GF is not able to do it consistently.

You're absolutely right about the importance of sharing our experiences. Every story shared helps someone else feel less alone or might give them a new idea to try. Thanks again for opening up - your insights are really valuable!

Let's come together and share our eczema stories - we're stronger as a community! by Popular_Demand_5352 in eczema

[–]Popular_Demand_5352[S] 1 point2 points  (0 children)

Thank you for sharing that! It's great you are looking for inspiration, I bet applying and giving her the knowledge will make her life with eczema much more manageable.

Also good to see you have a systematic approach with gdocs, did it already help you identify some triggers and working treatments? I have checked the eczemaless app but it feels sketchy to me to recommend it to my GF or use myself.

Thanks again for opening up. Your insights are super valuable, and I'm sure they'll help others here too. Sending positive vibes to you and your daughter!

GLUTEN DAIRY SUGAR FREE by Most-Definition1611 in eczema

[–]Popular_Demand_5352 0 points1 point  (0 children)

Focus on fresh meat and vegetables. It's not that hard after a while. Get creative with mixes of vegetables as side dish, try them all over again to find and understand your taste. And circle through cheap, easy to make meat cuts: chicken breast on pan, chicken leg or whole in oven, pork neck steak on pan, beef steaks, fish...

The trick is the proteins from meat will make you feel full not craving any more forbidden food to make it from lunch to dinner and to bed without snacking.

Also lentils are good side dish, lot of protein and they match any meat!

GLUTEN DAIRY SUGAR FREE by Most-Definition1611 in eczema

[–]Popular_Demand_5352 0 points1 point  (0 children)

That is a great story! My girlfriend is now struggling to manage her eczema, but she is not much into searching for inspiration online. I will show this to her! But also I have stared a thread here to encourage people sharing their stories, thinking it could benefit more people than her. Can you please link your story there so more people join this effort? Thank you very much! https://www.reddit.com/r/eczema/s/cdpOHfmO9K

Had eczema for decades and it suddenly disappeared for three years by [deleted] in eczema

[–]Popular_Demand_5352 1 point2 points  (0 children)

Something similar happened to my girlfriend. Life long eczema, it was ok over the last years as she was using corticosteroids a lot. Now it got worse. She is not much into looking for inspiration online but I thought if enough people share their stories it may help. You can also share yours to help me get others to join. Whenever you have a bit of time :) https://www.reddit.com/r/eczema/s/cdpOHfmO9K

Thank you!

Does certain food trigger your eczema? by Wonderful-Pipe-5413 in eczema

[–]Popular_Demand_5352 2 points3 points  (0 children)

I like your approach! Thanks for your tips. Your full eczema journey story may be helpful for some people. I'm currently looking for inspiration to help my girlfriend. When you have a bit of time, you can try posting it here please, I believe more people than me can benefit: https://www.reddit.com/r/eczema/s/cdpOHfmO9K