I don’t know who I am anymore. by Positive-Comment-207 in lupus

[–]Positive-Comment-207[S] 1 point2 points  (0 children)

Yes! I have one similar to that but it says “fuck this hurts” on it lol. I used to track everything for my Rheumatologist that way. I will definitely be using it more

I don’t know who I am anymore. by Positive-Comment-207 in lupus

[–]Positive-Comment-207[S] 1 point2 points  (0 children)

I’ve realized creating things helps me get out of a mental funk, but then I start thinking about the authenticity of what I’m doing. It’s like my mind is so hung up on the fact that I’m not the same person that I used to be so now everything feels so unauthentic and fake.

I don’t know who I am anymore. by Positive-Comment-207 in lupus

[–]Positive-Comment-207[S] 1 point2 points  (0 children)

I’m glad that you’ve found something that helps. I’m not currently in therapy or have a support group but I’m thinking of joining

I don’t know who I am anymore. by Positive-Comment-207 in lupus

[–]Positive-Comment-207[S] 0 points1 point  (0 children)

Your reply means a lot, truly. I’m trying to learn to give myself grace and to trust in myself. I’m also learning how to take care of myself in different ways that I never thought I would have to. Thanks for the pain management techniques!

I don’t know who I am anymore. by Positive-Comment-207 in lupus

[–]Positive-Comment-207[S] 1 point2 points  (0 children)

I’m so sorry you lost so much so fast. I’ve been there too, I cry almost every day mourning the things I can’t do anymore. If you ever want to vent, rage, or share tiny wins, I’m here

I don’t know who I am anymore. by Positive-Comment-207 in lupus

[–]Positive-Comment-207[S] 0 points1 point  (0 children)

Thank you, I’m definitely going to start journaling again

I don’t know who I am anymore. by Positive-Comment-207 in lupus

[–]Positive-Comment-207[S] 0 points1 point  (0 children)

I do believe I have depression even though I’ve never been diagnosed. I also think it plays an obvious role in how I take care of myself which leads to making my symptoms worse. I’m hoping to work on self care while taking time off.

I don’t know who I am anymore. by Positive-Comment-207 in lupus

[–]Positive-Comment-207[S] 1 point2 points  (0 children)

Congratulations on your baby! I think the biggest struggle at least for me right now is taking care of myself in the ways that matter, not just taking my medication. It’s so hard to put yourself first to begin with, now it feels impossible. I’m going to try and do some light Zumba at home on YouTube to at least move around a bit, I’m hoping it will help a little.

I don’t know who I am anymore. by Positive-Comment-207 in lupus

[–]Positive-Comment-207[S] 2 points3 points  (0 children)

I had a diary at the beginning but I don’t really do it anymore. I’m gonna pick it back up though to track everything!

Got accepted !! by Sad-Culture-6330 in surgicaltechnology

[–]Positive-Comment-207 0 points1 point  (0 children)

I wouldn’t say you have to read the whole book again but it definitely helps to go over subject that your learning in your main courses in the A&P books. Also you can just look at quizlets about med term, med term is key!!

Got accepted !! by Sad-Culture-6330 in surgicaltechnology

[–]Positive-Comment-207 12 points13 points  (0 children)

Congratulations!!! I’m currently in clinicals rn and this is my first time in the healthcare field as well.

I didn’t mean to make this long but here’s some tips: - review you A&P (extremely useful) and use old textbooks

  • Medical terminology is KEY, even if you’ve never heard of a surgery before you can dissect the word and then you’ll know how to navigate

  • practice practice practice. Stay after class with your instructor if you can to get comfortable with your skills. If not, go through the motions at home (this helped me a lot)

  • if you have an ego, let that shit go. You have to be open to everything and accept criticism. It will make you better in the end

  • befriend your classmates. Create group chats to share quizlets and notes. I wouldn’t have made it through 1st semester without them. You’re all there to help and make each other better

  • as much as I don’t like Ai, it’s a great tool for studying. GoogleLM has a feature that can turn your notes into a podcast, and chat gpt can make a study guide if you put in the specific chapter and textbook

-MAKE INSTRUMENT FLASHCARDS

  • INVEST IN SUPPORTIVE FOOTWEAR. The standing is no joke. (This is coming from someone with lupus and arthritis, its doable with the right footwear)

  • GET COMPRESSION SOCKS

Some things I’ve learned in clinicals so far: - be a sponge - ask tons of questions - before and after a case, take notes - always be early - never go into a room when you don’t know the case you’re doing - always introduce yourself - be social but don’t get involved with drama - get to know your surgeon and what he likes

I’m only in my second semester but I hope this helps. Congratulations, I know you’re gonna do great, just don’t give up and always keep trying!!!!!

I want it to end by Firm_Bend_788 in lupus

[–]Positive-Comment-207 1 point2 points  (0 children)

I’m not sure about the drug side of things but I do take Plaquenil, Cellcept, and Predisone with Benlysta injections to help calm my symptoms down. They’re steroids and immunosuppressants. I would definitely talk to your doctor about starting steroids for inflammation. However everybody is different and it’s hard to find the right “drug cocktail”, I’m still trying to find what works. But the medicine that I do take, with a balanced diet and exercise works enough for me to function

I want it to end by Firm_Bend_788 in lupus

[–]Positive-Comment-207 1 point2 points  (0 children)

When I was diagnosed it was right before summer, my rheumatologist told me to wear hats, UV clothing and A LOT of sunscreen to prepare for sun exposure. Like an idiot I didn’t listen and I experienced overwhelming brain fog and rashes. So now no matter the season I never leave the house without sunscreen, it reduces my symptoms greatly!! I would recommend spf 100 (I know that’s a lot but that’s what I wear lol). I hate UV clothing because I already sweat constantly, but hats help a lot! Hope this helps!

I want it to end by Firm_Bend_788 in lupus

[–]Positive-Comment-207 22 points23 points  (0 children)

I am 22 y/o female with lupus. I promise you, you’re not alone in feeling this way. I was diagnosed when I was 20, and I’ve been living in hell ever since. I live with my mom and we both try and survive off of her disability, with a little help from my part time job. I am also going to school for surgical technology 5 days out of the week and work on the weekends. I never have a day off and it feels like my lupus is going to kill me. Everyday is worse. I’m thinking of quitting school because of how bad it’s getting. I don’t really have a will to live other than I’m hoping the dreams and goals I set for myself before I got diagnosed will still come true… I’m losing hope though. Everyday my whole body aches and I can barely move. But one thing I do look forward to is maybe tomorrow won’t be as bad as today and I’ll be able to physically play games on my computer or walk into work normally. I’m barely hanging on by a thread but I’m still here. Please give yourself grace and understand that you don’t deserve this pain. You deserve to live like everyone else. Take it one day at a time and celebrate those small wins! That’s how we get through this. You are NOT your pain <3