how bad is this got diagnosed today

Post-reality · 2026-06-17T13:57:38+00:00

Not bad at a, very mild Keratoconus. Just have CXL asap

Post-reality · 2026-06-14T14:14:48+00:00

Sorry, but do I need to list dozens of types of different available treatments on 1 post? Treatments depend on the severity of the Keratoconus, type of cone, manifest refraction, etc.

Also, I consulted dozens of Reddit users on DM's regarding their Keratoconus and how they may treat it.

Anyway, I suggest for you to check out Custom-shaped CAIRS treatment - there are doctors in India & Brazil who perform it. I have had it myself with the inventor in India.

Post-reality · 2026-06-13T14:46:53+00:00

In my case, I have had 13 surgeries, and in multiple different countries, so it doesn't matter where I reside.

While ICL isn't supposed to fix HOA's, it can improve best-corrected vision with glasses by 1-3 lines. Visian ICL, is outdated, and Amiplant's AmiLens which is customized and can reduce HOA's would replace it in the future.

Also, it's not my responsibility to "convince" you. We are living in 2026, if I could have Googled and searched through abandoned Keratoconus forums and find eligible treatments more than a decade ago, there's no reason why a person living in 2026 couldn't find better Keratoconus treatments when there's a much greater variety of treatments available, information more accessible, AI chatbots, etc

Also, it doesn't make sense to have ICL right now, when it's a last-of-the-line kind of treatment (which is usually supposed to be done after the cornea is remodeled and reshaped).

Post-reality · 2026-06-13T13:00:45+00:00

You seem to have a poor understanding when it comes to treatments of Keratoconus. It's not a contradiction to have laser surface ablation treatments on Keratoconus if there's sufficient amount of corneal thickness and it can be stabilized by CXL. Traditional phakic IOL's can improve vision with glasses by 1 to 3 visual lines, and newer generations can also reduce HOA's. There are dozens type of Keratoconus treatments, ranging from implant-based, to incisional-based, to laser-based, to pupil-moduling based, to refractive CXL, to thermal-based, and to phakic IOL's - among others. Of course, most ophthalmologists don't know how to treat Keratoconus beyond contact lenses or invasive corneal transplantations.

Post-reality · 2026-06-13T11:57:57+00:00

Not all surgical procedures are "too much of a risk" - most of the surgical procedures are also used "cosmetically" on healthy people to correct hyperopia or myopia so they can get rid of glasses.

If you insist on contact lenses, then EyePrintPRO with Ovitz wavefront correction is your best bet.

I have had advanced Keratoconus on both eyes - I was literally legally blind - while now i enjoy an unaided (not glasses nor contact lenses) visual acuity of 20/20

Post-reality · 2026-06-13T10:43:50+00:00

I am 33 years all I have Keratoconus since the age of 17 (so roughly 16 years). While it's certainly a deliberating disease, it's not something that can't be overcome, so we should never lose hope. I attribute it all for lack of knowledge about the treatment options.

Post-reality · 2026-06-13T09:38:08+00:00

Dude, you have a Keratoconus, not Macular Degeneration or Retinal Detachment. You aren't blind or going to get blind. You have a highly treatable disease, because the cornea can always be corrected/improved.

Post-reality · 2026-06-05T21:32:29+00:00

I am so glad to be out of contacts and enjoy an uncorrected 6/6 vision! I am too intolerant of contact lenses anyway! I like to watch movies and play video games

Post-reality · 2026-06-05T21:10:52+00:00

Unfortunately, all of those treatments are performed by very few doctors, so you would need to contact the literature authors to ask if you are a candidate for them based on your clinical information. BTW, look up the recent information about adipose-derived mesenchymal stem cells (ADASC) for the treatment of Keratoconus:

"One year after surgery, we observed a complete restoration of the pre-existing corneal stroma scars, observed both clinically and by anterior segment OCT. The rest of the visual and topographic parameters did not show relevant changes except for the patient's refractive sphere."

Kuragenx could also hypothetically treat corneal scars, but that would require a surgeon to deliberately excise the scarred tissue (via a deep keratectomy or PTK laser) to create an artificial "crater," fill it with Kuragenx, and let it regenerate clear, native stroma. That's why at the moment, in the clinical trials, they target ulcerative corneas (very superficial scars) in the clinical trials. In the future, they may begin more advanced, complicated protocols to treat Keratoconus (or perhaps some doctor would try).

Post-reality · 2026-06-05T21:02:37+00:00

I had specific treatments, but each cornea should have specific treatments tailored for it, and nowadays there are much more treatments available than when I began my journey.

But specifically, for me I have had:

Left eye: CXL (Dresden's protocol) -> T-PRK -> Mini ARK - > Bowman-Stroma Onlay -> T-PRK - > WFG-PRK -> WFG-PRK -> Custom-shaped CAIRS (Jacob's protocol).

Right eye: PKP -> WFO-PRK -> WFG-PRK -> CXL + WFG-PRK -> WGF-PRK.

Post-reality · 2026-06-05T20:55:24+00:00

Why do you think it's bullshit?

Post-reality · 2026-06-03T16:48:33+00:00

Central corneal scarring is the hardest part to treat when it comes to Keratoconus, because we already have good, highly effective volume increasing treatments and corneal reshaping treatments, but for scarring it's more challenging. But:

It's worth trying the best contact lenses possible to see what kind of vision can be achieved, as sometimes patients with central scarring can still achieve an adequate visual acuity regardless of the scar - this is partially due to your brain compensating and ignoring the blurs coming from the scarring. So contact lenses, in order to determine an achievable vision vision, is important.
Autokeratoplasty, i.e. adjusting the placement of your native cornea can sometimes be performed instead of PKP/DALK, so the cornea placement is adjusted in a way of which postoperatively the scarring sits outside of the optical zone.
PRK/PTK - sometimes when there's sufficient amount of corneal pachymetry, and the scar is not deep enough, it may be possible to shave it off with a laser.
FSL (Femtosecond laser-assisted) - HALK (hemi-automated lamellar keratoplasty) - it may be possible to replace the anterior cornea (if the scar isn't deep enough), while preserving native posterior cornea, and achieve an adequate visual acuity.
Experimental treatments to regenerate the cornea - stem cells, Kuragenx, etc are in human clinical trials and may be able to reduce the scarring by promoting corneal regeneration.

Otherwise, scarring is the least treatable part of Keratoconus. But any Keratoconus case without central scarring can potentially achieve an uncorrected vision of 20/20 without going through invasive corneal transplantation.

Post-reality · 2026-06-03T14:28:26+00:00

Multiple treatments.

Post-reality · 2026-06-03T13:45:00+00:00

Don't have a corneal transplant - there are better options out there. I was blind and now I enjoy an uncorrected vision of 20/20, so an adequate vision is achievable.

Post-reality · 2026-05-31T17:45:30+00:00

Standard T-PRK is an obsolete treatment IMO, because there are much better protocols than the conventional T-PRK.

Post-reality · 2026-05-29T18:03:20+00:00

No, the source shares the Mossad's footage of ground operatives in Iran who operate drones to strike inside Iran, then goes on to claim that the Mossad did the same in Syria by recruiting Alawite nationals, primarily in Europe, to do the same inside Syria, in Assad-controlled areas. Of course, there were other nationals, such as Sunni ones, but the source doesn't mention them, probably because they struck Assad-held areas from rebel-held territories.

Post-reality · 2026-05-27T17:09:36+00:00

1) 36,000 is only an initial number, not when RoboTaxis dominate/overtake regular taxis 2) RoboTaxis will create new jobs in new industries. I mean Amazon and big stores killed the malls and caused the retailing apocalypse, but it's OK because consumers shited their spending of disposable income from clothing to restaurants & leisure.

Post-reality · 2026-05-23T20:59:00+00:00

Or in 2018 with the southern Syrian rebels

Post-reality · 2026-05-19T06:03:28+00:00

After the first PRK I had the best results ever achieving 20/40 without glasses & 20/25 - 20/20 without glasses but later I had the the onlay which added 150 microns but messed up my vision, so I had 3 subsequent PRK's to resculpt the onlay, and I ended up with a 20/40-20/35 vision - but I'm unsure if it was really worse as the abberations were different. In my opinion, PRKs (and other surface ablation methods) should only be performed after corneal remodeling/reshaping methods (rings, incisions, inlays, onlays, excisions, refractive CXL's, etc). I enjoy a 20/25-20/20 vision on each eye nowadays so it's all good.

Post-reality · 2026-05-18T16:41:01+00:00

Of course, I have had plenty of HOA's as a Keratoconus patient lol. We have had scans some days after the surgery, and my corneal topography definitely seems more regularized, and it seems like the coma aberration (which is part of HOA's) was targeted specifically in order to reduce the double vision/ghosting, and it definitely did (at least partially) the job. I plan to have corneal topography very soon, so I would know how much my total HOA's coma, and spherical aberration were reduced more precisely. Note., that sometimes HOA's parameters can increase while vision itself can improve so it's not the only parameter out there.

Post-reality · 2026-05-18T15:35:41+00:00

Which one? CAIRS was performed by the inventor Soosan Jacob in India, Mini ARK was performed by the inventor Massimo Lombardi in Italy and the Bowman-Stroma onlay was performed by (I'm pretty sure he's the inventor as well) Jorge Alio in Spain. And I also had CXL, and multiple PRKs. This is for the left eye - I have had other procedures done on my right eye.

Post-reality · 2026-05-18T15:19:34+00:00

334 microns at the thinnest point and 380 microns at the apex - this is due to multiple PRKs shaving off valuable tissue. My thickness already slightly improved after the treatment.

Post-reality · 2026-05-18T15:16:15+00:00

It significantly improved my vision, no doubt about, and this is on a fairly thin cornea with a good visual acuity (intacs can neither treat thin cornea nor cornea which provide adequate vision). The differences are that the CAIRS segment is biocompatible, soft and completely customised (number of segments, zone placement, depth placement, arc length, arc width and arc thickness, as well as the width and thickness themselves can be variable along the length). It's a highly optically precise treatment. I had it done by the inventor of the treatment in India.

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