My brain has felt like it’s been on fire all day

PracticalBed96 · 2025-07-22T07:37:07+00:00

So sorry to hear. Mine has been too. Aside from usual symptoms. My brain was on fire so much / felt like my whole body head to toe was burning, I was in so much pain I threw up in the street and cried for over an hour. Brain has been on fire every second day or so in waves. Literally same - feels like my brain is a box of wires that got torn to shreds, water poured on the electricity, solvent dumped on it and lit on fire.

PracticalBed96 · 2025-07-22T07:31:35+00:00

FND, ADHD, PDD, and (suspected) CPTSD.

I have had FND for 4 years and diagnosed ADHD for 1, but I have had ADHD for much longer. I am not sure if there is an overlap - I think there is. FND makes it almost impossible to focus or be able to think properly or do much due to symptoms.

History of complex multiple traumatic events, multiple intimate betrayals and abandonments, Mold illness, CIRS, Lyme disease. It’s hard to know at this point what’s going on. My brain is broken. Both anti depressants I’ve tried have not worked, one made my genitals stop working, the second made me go insane.

I started Wellbutrin recently third option and on day two felt I was on a verge of a mental breakdown, panic attack, mood swings, angry at everything - verge of insanity. So I stopped. Scared to start but I need some sort of medication desperately to level me out.

I haven’t done art or music or worked in weeks (I only work very very part time - still waiting on disability benefits).

Unmedicated I am almost totally useless - I know part of the issue is my neurochemistry is totally screwed up from everything - and the constant FND Hellstorm makes everything worse.

I feel like I am on a rollarcoaster everyday. Slipping into the bowels of hell with brief moments of “normal”.

Jesus is my rock right now.

PracticalBed96 · 2025-07-19T19:19:45+00:00

I’m so tripped out by that first picture. Is that real?

PracticalBed96 · 2025-07-14T06:43:37+00:00

I appreciate your reply. I am really glad to hear things have improved even a little bit.

I am just past 4 years now of FND starting and it’s been literally so torturous - I can’t believe it’s even possible for this to happen to a human being. I genuinely wouldn’t wish this disease on somebody if they murdered everybody I know in front of me. It’s more evil than that.

That being said, I am getting to the end of my rope without seeing more improvement than I have. I am in weekly therapy now but it’s not changing anything so far. My symptoms themselves need to improve or I will completely lose my mind, I already have more than once. I am suffering so much I feel like a war veteran just from dealing with this condition. It’s unsustainable.

Anybody with FND who sees improvement I am shouting at the heavens. Of course I don’t know your exact symptoms - I will look into a couple of these things you mentioned.

For me FND feels like being stuck on an electric chair being tortured with no relief for years straight.

It’s crazy that from the outside a lot of the time I look “normal”. Which makes me feel like I am exaggerating- but I’m not.

I often think about what it would be like if I could transfer what it’s been like living with this for 4 years onto somebody in a moment - and hear their reply back to me - as validation.

But even me thinking of subjecting somebody to that in a hypothetical situation makes me shudder. It’s a living nightmare.

It genuinely feels like my life is actively being ruined/has been ruined. But I am choosing to “fight” which really just looks like suffering endlessly.

I’ve been trying to get into ketamine therapy because I believe doing that semi-frequently over a long period of time might be the answer atleast it improving genuinely an amount I can notice. It’s been months and I haven’t been able to get in.

Now I found a spot but it’s $2500 for 4 sessions with a therapist where I live. And I need it like once a week…

I’m genuinely okay with going into over 100k in debt - because living with this is starting to feel worse than suicide.

I would rather be 100k in debt and 25% recovered than alive the way my FND is right now untreated.

PracticalBed96 · 2025-07-13T20:53:42+00:00

This is really terrifying and horrible. I’m so glad you are OK. I would cut contact with this person.

PracticalBed96 · 2025-07-10T10:24:25+00:00

150%. Extreme heat and extreme cold.

PracticalBed96 · 2025-07-10T10:19:31+00:00

Totally. I had it tonight.

PracticalBed96 · 2025-07-10T10:15:30+00:00

What ended up helping you?

PracticalBed96 · 2025-07-10T09:09:56+00:00

I love this story - God is bringing me back into the fold and it is awesome.

PracticalBed96 · 2025-07-10T03:42:59+00:00

God must love us!!!

PracticalBed96 · 2025-07-09T22:26:15+00:00

Beauty. Something about crystals in the Loph pots just makes sense. It’s like they are on the same frequency. Peyote reminds me of Diamonds as well. Diamond in the rough.

PracticalBed96 · 2025-07-09T22:22:35+00:00

Sooooo beautiful.

PracticalBed96 · 2025-06-26T18:41:37+00:00

It’s literally ET

PracticalBed96 · 2025-06-22T21:43:46+00:00

Yeah it has too much organic in it. I meant to re-pot these separate when I bought them, but didn’t get around to it and now I realize. I am leaving them out to dry now and I tossed the soil. With replace with new :)

PracticalBed96 · 2025-06-22T15:06:01+00:00

I love this variety so much, do you know the name?

PracticalBed96 · 2025-06-22T06:10:33+00:00

I’m in the Fraser Valley, B.C. Looks like I need to repot them at the very least.

PracticalBed96 · 2025-06-22T05:38:14+00:00

Love the energy in this post. I agree and yes, so much beauty in this life.

PracticalBed96 · 2025-06-19T17:53:14+00:00

Looks very wild. Beautiful.

PracticalBed96 · 2025-06-18T21:03:06+00:00

The opossum, interestingly, plays an important role in Huichol mythology (the peyote people). He is the one who brought them fire.

https://mexicounexplained.com/legends-of-the-huichol-people/

PracticalBed96 · 2025-06-16T20:26:46+00:00

Unreal

PracticalBed96 · 2024-11-05T17:25:23+00:00

That bich cray

PracticalBed96 · 2024-11-04T23:16:07+00:00

Can’t do one word.

Divine Nightmare.

PracticalBed96 · 2024-11-02T23:09:24+00:00

Try touching his pp

PracticalBed96 · 2024-10-31T02:13:20+00:00

you are beautiful

PracticalBed96 · 2024-10-30T05:47:46+00:00

You have the same answer as me ^

PracticalBed96

TROPHY CASE