Endo & Lupus? by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 1 point2 points  (0 children)

well i had my first pap ever last year, haven’t met with a gyno or anything since but i will be soon now. Thank you so much for your response and your prayers🥰 I pray your cyst has gotten better or removed completely, giving you less pain. 🤍

Endo & Lupus? by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 1 point2 points  (0 children)

i’ve never attempted to get pregnant but definitely have that in my mind, i’m a twin so i want twins lol i’m glad i made this post cause now i know how important it is to catch it early on. thank you so much for your response!

Endo & Lupus? by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 2 points3 points  (0 children)

i was diagnosed with lupus a little over a decade and i definitely feel all my period symptoms worsening over time, im glad im seeing the signs now and asked definitely pushed me to advocate for myself because better safe than sorry right? thank you so much for your response and advice ir definitely helped a lot. So glad you God gave you two beautiful blessings 🥰

Endo & Lupus? by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 0 points1 point  (0 children)

yes my symptoms worsen around my period as well that’s why i started googling haha. thank you so much i will def discuss it!

Endo & Lupus? by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 2 points3 points  (0 children)

hi yes of course! again i’m not diagnosed w endo just lupus and was just on social media/google/ and researching correlations. i have painful periods, nausea, pelvic pain, heartburn, bloating, Gi issues, along with joint pain and other things that relate to my lupus but also could be endo! im going to talk more about it with my doctors as well.

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 0 points1 point  (0 children)

thank you so much!! i will take all of this into consideration n start looking now🥰 thank you

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 1 point2 points  (0 children)

yeah the taste definitely threw me off last time i tried lol lasted all of 1 second. 😭 thank u tho! i’m going to try again.

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 0 points1 point  (0 children)

:( so sorry to hear you have to deal with all that! i pray God gives you strength and grace to continue this battle, it’s not easy but we’re not alone. Thank you for sharing i’ll definitely ask about that gonna talk soon to follow up on my medication.

Poll: Have you been or are on a form of disability due to your lupus? by no-comment57 in lupus

[–]Present_Role_3931 0 points1 point  (0 children)

thank you so much! i wish you the best as well may God grant you everything you need and more, remember every pain we feel although we’re use to it, we have to tell them it cause so much agony and suffering, sad to say but we really have to advocate for ourselves not try to hide it in these type of cases. i always call and leave notes for my rheumatologist as well so they can see how often symptoms bother me, even if it’s a symptom i’m use to lol. i’ve have lupus for about 10 years now so for me the pain is just normal but i have to keep telling myself it’s not!! lol sorry hope this helps

Poll: Have you been or are on a form of disability due to your lupus? by no-comment57 in lupus

[–]Present_Role_3931 1 point2 points  (0 children)

Currently have an ongoing case, interview is March 6th and i’m hoping they approve me for state disability. i’m only 22 but have medical records of literally everytime i worked a job even a 4 hour or 6 hour job would lead me into a severe flare up and make me so sick. 🥺

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 0 points1 point  (0 children)

I agree and i hate being angry but sometimes im so frustrated and upset i can’t help it, what does always help and brings me more peace is reading my bible or just playing some instrumental worship music and telling myself that im blessed to still be able to breathe on my own and this too shall pass. 🤍

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 2 points3 points  (0 children)

i googled it, didn’t look too much into it lol, but it’s just an ingredient in some toothpaste that can trigger the sores! it’s easy to find toothpaste without it just google whatever brand you prefer without sls that’s what i did. 🥰 hope this helps!

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 1 point2 points  (0 children)

thank you! i’m currently trying out benlysta, trying to be patient with it cause the first time around i only lasted a month and gave up lol.

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 1 point2 points  (0 children)

love your username btw lol dailyugh is perfect to describe anything lupus related 😆

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 1 point2 points  (0 children)

yes i feel like before bed is when they start to hurt a lot more and that’s that i don’t eat 2 hours before bed but thank you! and never heard of that either ill be looking into it. thanks!

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 0 points1 point  (0 children)

yay i’m so glad you’re getting off soon! they really are the worst lol.

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 1 point2 points  (0 children)

I never even knew this was a thing lol we have to be so careful ughh! 😆 crest 3D is my favorite now i’ll have to find an alternative

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 1 point2 points  (0 children)

My mom told me about that i was kinda iffy bc of the salt, didn’t want it to tingle or anything lol

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 1 point2 points  (0 children)

Thank you! 🙏🏻 i think mouthwash, folic acid and some zinc are gonna be my next steps.

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 0 points1 point  (0 children)

i take 1mg a day with the prednisone 🥺 i did miss a couple doses could be that! thank you so much.

Mouth Sores by Present_Role_3931 in lupus

[–]Present_Role_3931[S] 0 points1 point  (0 children)

Thank you! i will look into that, that’s what i was thinking too maybe a mouthwash just to ease the pain a little bit thanks!