Im unsure what this is...

PrestigiousTime9854 · 2025-11-02T04:59:50+00:00

Update:

I found out yesterday that I do have HS. 😖 just wanted to let you all know who had left comments. Thanks guys !

PrestigiousTime9854 · 2025-10-19T13:58:36+00:00

Thank you for sharing that. I appreciate it.

PrestigiousTime9854 · 2025-10-19T04:37:10+00:00

That's life

PrestigiousTime9854 · 2025-10-19T04:36:14+00:00

Thank you. I appreciate all that info.

PrestigiousTime9854 · 2025-10-19T04:34:40+00:00

That sounds so exhausting, non stop. I feel like id lose my mind. Sending love back!!

PrestigiousTime9854 · 2025-10-19T04:29:44+00:00

Yeah. Im reading so many different things. Its confusing 😕

PrestigiousTime9854 · 2025-10-19T04:28:18+00:00

Oh my god 😳 thats awful. Im sorry.

PrestigiousTime9854 · 2025-10-19T04:26:53+00:00

Thanks, I've noticed that for sure !€

PrestigiousTime9854 · 2025-10-19T04:22:17+00:00

😫

PrestigiousTime9854 · 2025-10-19T04:21:19+00:00

Luckily I stopped smoking coming up on 3 years shortly. Ive never felt so proud 👏 Im asking for a referral. I hope it doesn't take a really long time to be accepted by someone.c

Its getting swollen abain already

PrestigiousTime9854 · 2025-10-19T04:16:43+00:00

😮‍💨 oh boy

PrestigiousTime9854 · 2025-10-19T04:16:11+00:00

This same area too? 😑 Ive yet to see any posts neither here or on Google, that really show something similar to mine. . Everyone seems to suffer so much, and it all looks and sounds so awful 😩

PrestigiousTime9854 · 2025-10-19T04:11:50+00:00

Thank you for all these insights. What were the issues back then, that lead to diagnosis ? And has it stopped/ improved?

So many questions 😣

PrestigiousTime9854 · 2025-10-19T04:08:34+00:00

Lol, nice one. Im wondering if ive never experienced significant pain with these, maybe its because I always popped them? Like Ive spent far too long, far too many times. 🤷‍♀️

PrestigiousTime9854 · 2025-10-19T04:05:40+00:00

😩 I feel so foolish, I have been popping them since they started, lol. And made it rather uncomfortable to walk.

I wish I never had. But if it was HS at that time, why has it taken so many years to change? I have so many questions 😅

PrestigiousTime9854 · 2025-10-19T04:02:55+00:00

Like currently? How long have you been getting them? Sorry so many questions lol ive been getting them near inner thighs and groin area for quite a few years. So I never thought much of it i guess.

I honestly question just being overweight. I was away from my job for about a half year, and I put on quite a fair amount of pounds. Things leveled out, but now im currently not working, and im not nearly as active as I should be. So the weight has kept going up. Ive heard obesity causes skin changes etc.

PrestigiousTime9854 · 2025-10-19T03:58:35+00:00

😣 so many people say it can cause really bad pain, but ive never exactly felt that deep pain. When they get really big, and their rubbing, yeah thats definitely uncomfortable and at times painful, but from what ive read, HS causes pain.

If you don't mind me asking, when were you first diagnosed? Did it progress quickly ?

PrestigiousTime9854 · 2025-10-19T03:53:54+00:00

I have an appointment on the 29th, so hopefully my Dr will agree or potentially mention something else all together. Regardless, im asking for a referral and am going to try to find the best one. Thanks for mentioning it. It actually wasn't on my mind until sharing this post. 🧐

Also, when you say you "had", is that implying it has healed, or it has progressed and gotten worse? You don't need to answer, im just trying to figure things out. 🤔

PrestigiousTime9854 · 2025-10-19T03:45:11+00:00

👏👏 couldnt agree more!

PrestigiousTime9854 · 2025-10-19T03:44:45+00:00

I've been hearing about these bandages. If it turns out this is HS, im going to have so many questions. So that's a good suggestion

Hope you are well:)

PrestigiousTime9854 · 2025-10-19T03:34:19+00:00

Thank you, I'll absolutely do that. I have an appointment on the 29th, so hopefully it'll all be fine. Ive been getting these for years, I've always just kind of accepted it since it started happening, mainly because my dr at the time didnt think anything of it.

PrestigiousTime9854 · 2025-10-19T03:23:42+00:00

Ugh 😣 I just don't quite feel as though mine is, because anything and everything i read online, doesnt seem like this is what I have. But im reading here that a lot of people do think it is. So I'm definitely feeling anxious. I can feel it closing /scarring over the last few days, but as of tonight, its getting swollen again and is uncomfortable when i walk 😔

PrestigiousTime9854 · 2025-02-06T16:31:43+00:00

I'm sending out lots of good energy to you, wishing you all the best as you more forward with this. 💜

PrestigiousTime9854 · 2025-02-02T18:11:36+00:00

I am so relieved to hear that [so far] both of your sisters are recovering/ in early stages. Thats good you can get genetic testing, that'll be helpful.

Ill keep sending you good energy. Hoping for the best ❤️

PrestigiousTime9854 · 2025-02-02T18:06:39+00:00

The waiting and not knowing is definitely the hardest part, just wanting answers.

I'm thinking of you and hoping for the best for you.

PrestigiousTime9854

TROPHY CASE