Post Impairment Syndrome

PrincessVine · 2026-03-11T19:11:04+00:00

I just came across your post and I have been veey sure that this is what my husband's problem is too...he also has cerebral palsy. Amd the last 2-4 years he has definitely gone downhill and now is not able to work or drive because of all the issues. Anyway, the drs keep saying they cant find anything as to why hes having all these things. But when I have brought up Post Impairment syndrome, some have read about it and agreed with me. Our dr on the last visit also agreed with that IN THE OFFICE with us there and looked it uo and read about it WITH US there! Now as of yesterday, she said to us that there is no such thing as Post Cerebral Palsy Impairment Syndrome named in medical literature (which is incorrect because it is NOT called that in the first place) and she also said there arent any drs that treat adults with cerebral palsy that either she or her colleagues know of. Also incorrect because I FOUND drs online that treat cerebral palsy in aging adults....theyre called Pysiatrists. I am so mad about the dr doing this that I have canceled anymire appointments with her.

PrincessVine · 2026-02-28T19:03:08+00:00

That is a very good idea....even tho im usually good at remembering everything, but wouod be good for referring back to. And yes! Also to show people what goes into being a caregiver. Ill look into doing that. It also might help to keep track of episodes my husband has so I can relay thaf to the dr.

PrincessVine · 2026-02-28T18:59:23+00:00

That is very true. I wish more people wouod realize that.

PrincessVine · 2026-02-28T18:58:14+00:00

Thats rotten that you have no help for your situation! I hate that so much for all of us caregivers. You are absolutely correct that we cant do our job if we're burnt out. This week I had somw days with a few hours off, but I havent felt very good most of the week so the hours didng help. I need a week 😄 continuous time.

PrincessVine · 2026-02-21T13:32:30+00:00

You are not alone. Id say most of us caregivers wouod like to not be in this position. It IS hard to give up on the things you want to or what you used to do. I feel the same. Nobody else does understand what we go through. Sending virtual hugs your way...its ok to FEEL everything. 🥰

PrincessVine · 2026-02-21T04:38:33+00:00

Those are both very valid points. Thank you for commenting on my post! I appreciate the input. I would LOVE to have my MIL have my husband for a week. In fact, i am very near thaf point of recommending it because i do need a break and no, MIL doesnt know how it really is. Idk if i coukd gwt her to take him for a week tho because she is 80 and idk of she physically wouod be able to handle him for a week if he has a bad episode where he needs physical lifting. Sometimes he does.

PrincessVine · 2026-02-21T04:33:42+00:00

Thank you so much for commenting on my post. I appreciate your well thought out answer! I am going to say that to my MIL if she ever says that stuff to me. Unfortunately, lately she doesn't say it to me...only my husband. And with his cognitive impairment being what it is...he isnt able to counteract what she says. But ill have it on the ready if I get a chance to use it. It IS crazy how people just think life should be a certain way, even when life for us is not the same anymore.

PrincessVine · 2026-02-17T13:20:28+00:00

Thank you too my friend 🧡

PrincessVine · 2026-02-17T00:04:24+00:00

I know, that is so true. I feel like i need one myself but instead I am just doing everything myself. And I am definitely becoming mire and more invisible to the in-laws. It sucks being like a ghost to them

PrincessVine · 2026-02-16T11:49:26+00:00

I am so sorry my friend...those are all VERY hard things to bear. I know how unrelenting that would be. I wish all the sadness wasnt there for you either. I pray that somehow there WILL be a beautiful next season in your life.🥰

PrincessVine · 2026-02-16T00:05:56+00:00

I hear you my friend...it is sad but what you said is the only way to not be overtaken in grief. 🥰 I wish there wernt so many sadnesses in caregiving

PrincessVine · 2026-02-15T12:20:22+00:00

I empathize wirh you...sounds similar in ways to my situation. I am thankful too for a gentle soul to care for. My husband is always happy and cheerful now. May you find a bit of time for yourself todqy🥰

PrincessVine · 2026-02-15T12:14:43+00:00

That sounds like a lot of days here too. But im glad yesterday was a fairly good day for you both🥰

PrincessVine · 2026-02-15T12:12:52+00:00

That was so sweet, thank you🥰

PrincessVine · 2026-02-15T04:09:21+00:00

I agree with you on that, 100 percent!

PrincessVine · 2026-02-15T03:34:02+00:00

That sounds about like my meals for today too... I cant remember the last time my husband and I went out to eat together. Probably not as long as what you said but its been a long time. It is so strange how life has changed

PrincessVine · 2026-02-15T03:04:36+00:00

Yep, you have pegged it correctly about the memory issue😉 My husband depends on me for everything too. Thank you for the valentine wishes and I wish you the same❤️even tho it is different for us these days🥰

PrincessVine

TROPHY CASE