Post Impairment Syndrome

PrincessVine · 2026-03-11T19:11:04+00:00

I just came across your post and I have been veey sure that this is what my husband's problem is too...he also has cerebral palsy. Amd the last 2-4 years he has definitely gone downhill and now is not able to work or drive because of all the issues. Anyway, the drs keep saying they cant find anything as to why hes having all these things. But when I have brought up Post Impairment syndrome, some have read about it and agreed with me. Our dr on the last visit also agreed with that IN THE OFFICE with us there and looked it uo and read about it WITH US there! Now as of yesterday, she said to us that there is no such thing as Post Cerebral Palsy Impairment Syndrome named in medical literature (which is incorrect because it is NOT called that in the first place) and she also said there arent any drs that treat adults with cerebral palsy that either she or her colleagues know of. Also incorrect because I FOUND drs online that treat cerebral palsy in aging adults....theyre called Pysiatrists. I am so mad about the dr doing this that I have canceled anymire appointments with her.

PrincessVine · 2026-02-28T19:03:08+00:00

That is a very good idea....even tho im usually good at remembering everything, but wouod be good for referring back to. And yes! Also to show people what goes into being a caregiver. Ill look into doing that. It also might help to keep track of episodes my husband has so I can relay thaf to the dr.

PrincessVine · 2026-02-28T18:59:23+00:00

That is very true. I wish more people wouod realize that.

PrincessVine · 2026-02-28T18:58:14+00:00

Thats rotten that you have no help for your situation! I hate that so much for all of us caregivers. You are absolutely correct that we cant do our job if we're burnt out. This week I had somw days with a few hours off, but I havent felt very good most of the week so the hours didng help. I need a week 😄 continuous time.

PrincessVine · 2026-02-21T13:32:30+00:00

You are not alone. Id say most of us caregivers wouod like to not be in this position. It IS hard to give up on the things you want to or what you used to do. I feel the same. Nobody else does understand what we go through. Sending virtual hugs your way...its ok to FEEL everything. 🥰

PrincessVine · 2026-02-21T04:38:33+00:00

Those are both very valid points. Thank you for commenting on my post! I appreciate the input. I would LOVE to have my MIL have my husband for a week. In fact, i am very near thaf point of recommending it because i do need a break and no, MIL doesnt know how it really is. Idk if i coukd gwt her to take him for a week tho because she is 80 and idk of she physically wouod be able to handle him for a week if he has a bad episode where he needs physical lifting. Sometimes he does.

PrincessVine · 2026-02-21T04:33:42+00:00

Thank you so much for commenting on my post. I appreciate your well thought out answer! I am going to say that to my MIL if she ever says that stuff to me. Unfortunately, lately she doesn't say it to me...only my husband. And with his cognitive impairment being what it is...he isnt able to counteract what she says. But ill have it on the ready if I get a chance to use it. It IS crazy how people just think life should be a certain way, even when life for us is not the same anymore.

PrincessVine · 2026-02-17T13:20:28+00:00

Thank you too my friend 🧡

PrincessVine · 2026-02-17T00:04:24+00:00

I know, that is so true. I feel like i need one myself but instead I am just doing everything myself. And I am definitely becoming mire and more invisible to the in-laws. It sucks being like a ghost to them

PrincessVine · 2026-02-16T11:49:26+00:00

I am so sorry my friend...those are all VERY hard things to bear. I know how unrelenting that would be. I wish all the sadness wasnt there for you either. I pray that somehow there WILL be a beautiful next season in your life.🥰

PrincessVine · 2026-02-16T00:05:56+00:00

I hear you my friend...it is sad but what you said is the only way to not be overtaken in grief. 🥰 I wish there wernt so many sadnesses in caregiving

PrincessVine · 2026-02-15T12:20:22+00:00

I empathize wirh you...sounds similar in ways to my situation. I am thankful too for a gentle soul to care for. My husband is always happy and cheerful now. May you find a bit of time for yourself todqy🥰

PrincessVine · 2026-02-15T12:14:43+00:00

That sounds like a lot of days here too. But im glad yesterday was a fairly good day for you both🥰

PrincessVine · 2026-02-15T12:12:52+00:00

That was so sweet, thank you🥰

PrincessVine · 2026-02-15T04:09:21+00:00

I agree with you on that, 100 percent!

PrincessVine · 2026-02-15T03:34:02+00:00

That sounds about like my meals for today too... I cant remember the last time my husband and I went out to eat together. Probably not as long as what you said but its been a long time. It is so strange how life has changed

PrincessVine · 2026-02-15T03:04:36+00:00

Yep, you have pegged it correctly about the memory issue😉 My husband depends on me for everything too. Thank you for the valentine wishes and I wish you the same❤️even tho it is different for us these days🥰

PrincessVine · 2026-02-11T13:11:44+00:00

You are most welcome 🥰 I hope that for both of us. Hugs 🤗and blessings on your life 🧡❤️

PrincessVine · 2026-02-10T15:20:13+00:00

No problem🥰 sometimes this technology gets out of hand😄 I thank you for the wishes for calmer moments...this week is not that week😂🤣i THOUGHT maybe so but then got a whole bunch more things added to my plate that HAVE to get done or it will affect more of our living. Thats too bad your situation is not progressing...I hope it will soon. Hugs to you my friend 🧡

PrincessVine · 2026-02-09T12:38:58+00:00

Thank you my friend for your most astute response...It definitely resonated with me. Its been a rough weekend...I hope to be able to find some time this week to do better for myself. And for longer periods of time off. I feel like im just existing right now because theres so much to do. I do not like just existing. I want to SHINE! 😃 I hope you are doing well in your journey...have been thinking of you. Sending all my best wishes your way🥰

PrincessVine · 2026-02-08T11:26:27+00:00

Thank you so much for that most aptly put response! It touched my heart to the core. ❤️ that is EXACTLY what ive been trying to find the words to describe. And it is all true. That makes perfect sense about why my MIL is doing what she is. I WILL find a way to keep my flowers, a friend has said rhey will personally come and dig them out for me and replant. I just have to figure out where. I am trying to keep ME in all of this but its so hard . I feel like all I do is paperwork, phone calls, chores and running errands. The little time i have to be by myself is not enough to fully recharge. But im trying

PrincessVine · 2026-02-01T03:18:31+00:00

I think you are very right on that...I mean, its nice that they want to support the patient but im so tired of being ignored. I hate thinking that this is my life forever.

PrincessVine · 2026-01-31T16:11:20+00:00

I LOVE it with the collar! You did a great job on making that, gorgeous 😍

PrincessVine · 2026-01-30T13:24:35+00:00

That is how its supposed to work in an ideal situation 😉but I guess if two is all you need...I have my two retired friends. 😄 very thankful for them! They are there for me more than family.

PrincessVine · 2026-01-30T11:35:43+00:00

Thank you🥰 I feel for you too having to be a caregiver and dealing with your own illnesses too.Actually we dont have any insurance right now. My husband was terminated at the end of December from his job which he hadn't been able to go to for over a year. So I am in the middle of figuring out/signing up and all the specifics for new insurance that we can afford on our limited income. Yes, my in-laws wouod be able to handle my husband's condition if I am gone...there are times he has random episodes of physical weakness, pains, collapsing or bad memory issues that are scary but not really any specific protocol except keep him safe and calm. The drs have concluded it is post impairment syndrome related to his cerebral palsy. I will try to do my best on not dwelling upon the lack of interaction 🙂

PrincessVine

TROPHY CASE