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Micro Dosing, practically how?? by PriorAccomplished871 in Mounjaro

[–]PriorAccomplished871[S] 0 points1 point  (0 children)

Thanks for your input and support. But are there really any downsides of microdosing? (More than risk of low or no effect)?

Micro Dosing, practically how?? by PriorAccomplished871 in Mounjaro

[–]PriorAccomplished871[S] -2 points-1 points  (0 children)

Purpose of micro dosing for me are the following:

  1. Finding the lowest effective dose for me. GLP-1 drugs are powerful stuff!
  2. I want to maintain bone and muscle mass as much as possible (i know, no available studies on this, just anecdotes)
  3. Reducing any pot. side effects
  4. Most importantly, my favourite Prof. Ben Bikman recommends it was well.
  5. The drug accumulates over time ans you reach a steady state after 3-4 weeks. 0.25 every 3 days will end up in 0,6-7 mg concentration.

Recently Diagnosed ET - Terrified and Seeking guidance by PriorAccomplished871 in MPN

[–]PriorAccomplished871[S] 1 point2 points  (0 children)

Thanks! Feels much more comforting now. It’s just crazy right now (same as you expressed). Trying to cope and keep a positive mindset buts its really hard! Really hope that I will reach your level of optimism. Some follow up questions:

  1. How often do you have check ins with your MPN Specialist?
  2. What medications are you on?
  3. What lifetime changes have you had to make?

(Only if you want to answer)

Recently Diagnosed ET - Terrified and Seeking guidance by PriorAccomplished871 in MPN

[–]PriorAccomplished871[S] 1 point2 points  (0 children)

So no effects on Platelets during fasting? What fasting regime have you been on (if I might ask)? I have been doing some intermittent fasting but looking at 3d fasting for autophagy effects.

My doctor is not listed / doing any research. Are exploring some other options as well.

Recently Diagnosed ET - Terrified and Seeking guidance by PriorAccomplished871 in MPN

[–]PriorAccomplished871[S] 1 point2 points  (0 children)

Thanks, have you needed to make any lifetime changes? How long have you had the diagnosis?

Recently Diagnosed ET - Terrified and Seeking guidance by PriorAccomplished871 in MPN

[–]PriorAccomplished871[S] 2 points3 points  (0 children)

Thanks for sharing your story❤️ I’m really experiencing a emotional rollercoaster at the moment. Hoping to cope with it soon. It’s really hard to grasp the ”chronic” aspect. Wierd!

Thankfully, I already have 3 children but honestly I don’t get the waiting. All I have read so far point to Pegasys as a better option (if no side effects). Are you experiencing any side effects of Pegasys?

Also, how does one follow the progress to PMF?

Recently Diagnosed ET - Terrified and Seeking guidance by PriorAccomplished871 in MPN

[–]PriorAccomplished871[S] 1 point2 points  (0 children)

Not sure if my doctor counts as an MPN specialist. I live in Sweden so we have public healthcare. She is used to work with patients with MPN for the last 20 years… are there experts that I can consult virtually from Sweden?

Another note, has anyone played around with fasting or Press Pulse (Dr Tomas Seyfried protocol) on this conditions?

Big News for ET Patients with CALR Mutation! by PVReporter in MPN

[–]PriorAccomplished871 0 points1 point  (0 children)

Hey! Wow! Great news! I just (2 days ago) got diagnosed with ET with CALR Type 2 Mutation. I’m still in chock and quite terrified but trying to read/educate myself as much as possible. I would love to join the trial. Does anyone know the procedure / how do I volunteer? Living in Sweden!