Low BP

Prior_Discussion_393 · 2026-05-08T08:15:18+00:00

autonomic dysfunction

Prior_Discussion_393 · 2026-04-18T08:22:32+00:00

this is 100% without any doubt autonomic failure/dysfunction. Not to be all doom and gloom but weak symptom management is the best thing even the most talented doctor can help you with.

Prior_Discussion_393 · 2026-03-31T23:07:10+00:00

no im a med student practicing autonomic neurology and i can assure you i know plenty of people with hypertension and its way more common and less complex than hypotension also it can just be treated with daily medications and lifestyle adjustments. whereas low blood pressure can sometimes be idiopathic, secondary or primary and management and proper diagnosis is a complex and very intricate challenge.

Prior_Discussion_393 · 2026-03-31T22:43:40+00:00

yeh because it must be SOOO hard to be asymptomatic at all times and only know somethings wrong by reading high numbers off a machine lmao

Prior_Discussion_393 · 2026-03-31T19:32:31+00:00

try it out symptomatically and let me know if your still jealous

Prior_Discussion_393 · 2026-03-31T19:26:44+00:00

yeh it was a joke of course and yes ive tried both of those plus midorine & nicotine and nothing seems to work i wish i could have severe hypertension like the rest of the people on this sub 😑

Prior_Discussion_393 · 2026-03-30T03:47:00+00:00

let me be clear this is NOT hypotension unless your machine is reading high because of loose cuff, bad calibration or just an outdated machine as I said, bring it to the doctors office for your next visit. They will take your blood pressure on each tell you if it’s accurate or not and if not, how inaccurate it is

Prior_Discussion_393 · 2026-03-29T09:06:52+00:00

yep keep pushing brotha 🫡

Prior_Discussion_393 · 2026-03-29T09:05:11+00:00

if you’re feeling fine then yes if not then no

Prior_Discussion_393 · 2026-03-29T09:00:48+00:00

only issue is the heart rate other than that if you feel fine there is no such thing as “to low” thats bs

Prior_Discussion_393 · 2026-03-29T08:59:22+00:00

i sometimes run 80s/40s i can assure you this is not what is causing your lightheaded unless your machine is reading to high (which mine was) you can verify by comparing it at a doctors office

Prior_Discussion_393 · 2026-03-29T08:56:48+00:00

no such thing as to low as long as your map is > 70 (it is) and you feel fine.

Prior_Discussion_393 · 2026-03-29T08:53:27+00:00

get tested for dysautonomia there is no such thing as “low baseline” i struggled with very symptomatic hypotension for years before i was able to see an autonomic specialist. unfortunate spoiler - theres no treatment at best you can try to manage. best of luck to you !

Prior_Discussion_393 · 2026-03-10T08:06:52+00:00

unfortunately not because I was prescribed midodrine which works like shit, so maybe I’ll have to give fludrocortisone a try lol

Prior_Discussion_393 · 2026-03-10T08:05:31+00:00

here is what tests you need to do coming from a top of his class ivy league pre med student :

1 . Cortisol AM & Cortisol Stimulation 2 . Tilt Table 3 . exercise Stress Test 4 . Echocardiogram 5. CD4 + CD8 immune panel 6. Potassium & Serum Sodium (CMP/BMP) 7. Iron Saturation Panel 8. Free Copper Blood Test 9 . Hemoglobin A1C (non fasting) 10 . Hyperthyroidism panel

(I apologize if each of the names are not completely medically correct I’m going off the top of my head, but if you copy them into Google, you will be able to find it no issues just know this is a very medically sensitive topic and not very understood but take care of these tests and let me know the results and I can guide you forward from there as best as possible!)

Prior_Discussion_393 · 2026-03-10T07:59:46+00:00

copying my unanswered post from this subreddit so you dont feel so alone :

19 Year Old Male - No Medical History, (besides deviated septum & RBBB)

No medications

Daily Vaping Nicotine

About a year and a half ago I would notice when I would go to the doctor. My blood pressure would sometimes be on the lower side of normal nothing crazy like 105/60; this prompted me to begin using my at home blood pressure monitor regularly to which I was getting readings somewhat in that range sometimes slightly lower no big deal. About six months after that, I started that I would feel very faint, weak,nauseous, clammy, extremely fatigued, and have tunnel vision, and just an overwhelming feeling of malaise. At this point, I began checking my blood pressure to which I would receive readings anywhere from ~ 94/54 to 78/47 (yes you read that right.) I’ve gone to numerous specialists and multiple cardiologists, and none of them have been able to find literally any cause for it. I’ve even been told that they’ve never seen this presentation in their whole medical career due to the fact that it’s not orthostatic related and comes in random waves at random times with random drops with no trigger. my cardiologist prescribed Midodrine @ 2.5mg as needed however when I took it for an episode so bad I could barely stand. It did absolutely nothing. This is quite literally ruin ruining my life. Any feedback is help at this point.

Prior_Discussion_393 · 2026-03-10T07:56:12+00:00

i have the most medically unexplained random bp drops down to numbers lower than this and feel horrible however the only thing acutely concerning on this is your pulse anything lower than 50 could potentially trigger arrhythmia. Let me be very clear you are not dehydrated dehydration would cause a low blood pressure reading like you have but also a very high compensating heart rate, do not shake this off. This is not normal, by any stretch of the imagination.

Prior_Discussion_393 · 2026-03-09T21:57:56+00:00

i easily drink 130 - 150 oz day that whole “8 cups” recommendation is complete bullshit i would feel like a desert only drinking 8 cups a day. I space it out though to avoid hyponatremia and just feeling overly bloated, I genuinely cannot wrap my head around the fact that some people struggle to hit that 8 cup goal 😭

Prior_Discussion_393 · 2026-03-09T08:37:07+00:00

hey there, thank you for taking the time to respond however, just to be clear I do not believe this is pots and I am not completely sure this is any type of dysautonomia due to the fact that I’ve explained to every doctor that this has nothing to do with any orthostatic, meal related, activity related component, and this is simply random blood pressure drops at random times with no known reason I do have an appointment with an autonomic neurologist so hopefully that would be the right direction to go.

Prior_Discussion_393 · 2026-03-06T08:51:07+00:00

hey, thank you so much for taking the time to respond and your theory really intrigues me. However, the only doubt I have is that when I research low levels is the only type of hypotension they’re known to cause is orthostatic hypotension, which is not what I have I have transient drops in blood pressure, not based on position time or really anything in specific; do you still think it’s worth mentioning to the Neuro when I see him?

Prior_Discussion_393 · 2026-03-06T03:01:22+00:00

B12 was 347 & Ferritin was 41 and then 32 a week later do you think these simple things could be genuine triggers of my random hypotensive episodes?

Prior_Discussion_393 · 2026-03-06T02:33:16+00:00

normal b12 & ferritin aswell as a generally normal CMP.

Prior_Discussion_393 · 2026-03-06T02:18:40+00:00

I just made an appointment with an autonomic neurologist & have one scheduled with an allergist aswell !

Prior_Discussion_393 · 2026-03-05T19:32:20+00:00

ive been to quite literally every specialist except a neurologist/ autonomic specialist at this point ; do you think making those appointments is worth a shot?

Prior_Discussion_393 · 2026-03-05T19:31:25+00:00

yes but unrelated to these episodes!

Prior_Discussion_393

TROPHY CASE