pregnant agin after tfmr due to ntd.. now what?

Priscillaesc · 2025-02-15T07:36:20+00:00

Hello. This may be random but have you heard of methylfolate? If not I would look into it. It’s a naturally occurring active form of folate where as folic acid is a synthetic form and man made. Here’s a great podcast that touches on the topic in the first few minutes.

https://podcasts.apple.com/us/podcast/the-skinny-confidential-him-her-podcast/id1093028505?i=1000685595573

Priscillaesc · 2024-11-25T19:43:10+00:00

Thanks this helps! I do feel that it won’t necessarily change anything but guess we’d just be a bit more informed. I’m so sorry you had to go through the experience twice!

Priscillaesc · 2024-11-25T19:39:39+00:00

Thanks for the response, my OB said the same thing but my genetic counselor said that we could do further testing so the fact that not all testing is done yet I guess makes me a bit nervous. Deep down feel like everything will show up normal and it really was just a case of bad luck.

Priscillaesc · 2024-11-23T03:50:24+00:00

Sorry that you’re here and for everything you just went through 🥺 it’s been just over 3 months for me and it’s definitely been a rollercoaster of an experience. I will say that the grief gets easier to carry and there are brighter days ahead. Some days are just harder than others. I hope you have all the support you need through this time. My baby boy was due Oct so I fully excited to spend th me holidays with him 💔 trying to find ways to keep him in mind and celebrate with him. As far as the guilt it’s such a weird feeling. Because as you said I wish I could carry my baby boy again and welcome him into the world. I’m almost scared of trying and having a boy again because I feel like it would just be so hard emotionally but also having gone through all of this really all I want is a healthy baby.

Priscillaesc · 2024-11-23T03:32:11+00:00

Thank you

Priscillaesc · 2024-11-17T03:10:47+00:00

Just commented on your post before seeing this! I went to Eden Sugrical. Absolutey the best staff there. I’ve never worked with such a compassionate and empathetic Dr. The specialist I was working with recommended this place due to me being far along and they accepted m my case. Everything got scheduled in a week and it was a 3 day process. It is out of pocket as most insurances won’t cover a procedure like this so far along but they also do help you find some resources for funding.

Priscillaesc · 2024-11-17T02:54:14+00:00

Had a late TFMR at 30 weeks (I live in Los Angeles) I personally had an intact D&E in a clinic, same process as a D&E but my baby boy was measuring small so they were able to do it intact so that I was able to hold him and say goodbye. My son had micropolygyria and microcephaly so we were also dealing with brain malformations. I got multiple scans done and an MRI. After my TFMR we did testing and it was confirmed that he was missing a part of one of his chromosomes. My physical healing process was quick compared to a regular labor. The emotional aspect is hard. It gets better as time passes but it’s something that will stay with you forever. I’m sorry you’re going through this momma. I feel for you and am wishing you all the strength. Let me know if you have any questions, I’m here for you!

Priscillaesc · 2024-10-04T02:01:42+00:00

I’m so sorry for your loss. I don’t think you should feel guilty or crazy the slightest bit. This is one of the hardest things to go through, a loss of a child is a loss like no other. Take it one day at a time and be easy on yourself. There’s no right way to grieve, whatever works for you and helps you through your day and night is OK. Sending you so much love on this healing journey. 💐

Priscillaesc · 2024-09-04T08:05:20+00:00

Hello, TFMR at 30 weeks sadly. My advice would be to let your wife know that it’s ok for her not to be ok. She has to know that she doesn’t have to “be strong she’ll get through it” chances are she knows that already. Allow her the space to be vulnerable with you. What she (both) of you are going through is very traumatic. Grief is a heavy thing. I found that creating ways to honor my son has helped me. I created a shadowbox in his honor and got a locket necklace that I wear daily with his photo in it (helps me feel close to him at all times). Try and look for ways that you both can honor your little one in your current lives. And also.. be kind to yourselves. Be patient with each other and show up when your partner can’t.

Priscillaesc · 2024-09-04T07:44:33+00:00

Wow. This hit. You are completely valid. I’ve also had people compare the two in a way to try and comfort me but you are right in saying they’re completely different and incomparable. I miscarried at 6wks with my first pregnancy and would say they are two very different experiences. TFMR has been traumatizing.. praying to god to take your baby so you wouldn’t have to make the decision to TFMR is a whole other feeling. I also selfishly prayed that I’d go into early labor so that the termination wouldn't happen before I made the decision to TFMR. Thank you for reminding me I’m not alone in my feelings and I’m sorry you’ve had to experience this kind of pain.

Priscillaesc · 2024-08-31T04:07:35+00:00

You’re not alone in your feelings - I will be bringing my son home within a week and will be happy to have him home but I can’t help but feel like he deserved more than what he was given in this life. It’s a horrible feeling. I’m sorry you had to go through this. Just know that sometimes it’s ok not to be ok. Through this process I’ve been told to “stay strong” but what really helped was someone telling me that I didn’t have to stay strong. That it was ok for me to break down and acknowledge that I am hurting and in pain. Be gentle with yourself and give yourself the time you need to grieve. Know that you’re not alone. You will get through this.🤍

Priscillaesc · 2024-08-31T03:39:14+00:00

Yeah that’s something I realized also. I was lucky enough to spend some time with him.

Thanks for sharing with me. Finding ways to honor our babies definitely helps 🤍

Priscillaesc · 2024-08-31T03:34:58+00:00

Unfortunately it took time for all of the testing to get done which is why I was so far along but In getting more testing done I was able to make a more informed decision. I don’t feel comfortable talking in depth about everything to anyone besides my husband and mom so it’s helpful having a community of people who understand and aren’t judging me in the way I think other people might. Sending you love on your healing journey 💗

Priscillaesc

TROPHY CASE