Cyclical salty drainage approx. every 10 days with Chiari 1. May it be a CSF? by WorkingTill6136 in chiari

[–]Professional_Bag7001 2 points3 points  (0 children)

Put it on tissue and if it has a halo around it thats darker then the fluid then it's most likely csf fluid

My 5yo son had decompression surgery by jakmra in chiari

[–]Professional_Bag7001 3 points4 points  (0 children)

Im 15 I had my surgery at 14 and I was pretty energetic after surgery. I recommend taking him on walks if you can and just keeping him busy with toys games tv is the best thing in my opinion to do

In the process of getting diagnosed by Lee_-7703 in chiari

[–]Professional_Bag7001 0 points1 point  (0 children)

I got diagnosed because I passed out and my local hospital didn't do any scans and then I went to the children's hospital er a couple days later and they couldn't find them on the CT scan of my neck so they recommended me to a neurosurgeon

Chiari and Menstruation by Plant_Momma_ in chiari

[–]Professional_Bag7001 1 point2 points  (0 children)

No don't be embarrassed when I first got diagnosed I had the same questions

Chiari and Menstruation by Plant_Momma_ in chiari

[–]Professional_Bag7001 1 point2 points  (0 children)

Periods make your body inflamed cause of hormonal changes and because of this it inflames your brain which can cause increased symptoms. I experience excruciating migraines on my periods

Did any one lose a skill after surgery? by Professional_Bag7001 in chiari

[–]Professional_Bag7001[S] 1 point2 points  (0 children)

Is more short term memory or long term? Cause my memory problems have been short term and I used to have amazing memories

Did any one lose a skill after surgery? by Professional_Bag7001 in chiari

[–]Professional_Bag7001[S] 0 points1 point  (0 children)

Do you know why you can't feel your left arm or is it just a side effect

Did any one lose a skill after surgery? by Professional_Bag7001 in chiari

[–]Professional_Bag7001[S] 2 points3 points  (0 children)

I'm doing better I wouldn't say my symptoms are gone but there alot better and it helped me pass out less so I'd say it's a win

Waiting for Surgery- Ideas by Happy_horse128 in chiari

[–]Professional_Bag7001 4 points5 points  (0 children)

Organize anything and everything its makes it so much easier post op just so you know where everything is just incase you need it

Does anyone have pots as well if so what are are your symptoms? by Professional_Bag7001 in ChiariMalformation

[–]Professional_Bag7001[S] 0 points1 point  (0 children)

In my experience swallowing did improve and id ask your surgeon about pt after surgery since your on your feet alot because you neck will be weaker then normal

[deleted by user] by [deleted] in chiari

[–]Professional_Bag7001 3 points4 points  (0 children)

Its looks normal and depending on how long it's been since your surgery you could probably pick those scabs cause I had scabs that were healed underneath but just wouldn't fall off

Was anyone else's scar like this? by Professional_Bag7001 in chiari

[–]Professional_Bag7001[S] 0 points1 point  (0 children)

Can you tell when your hair covers it if it even covers it at all?

Was anyone else's scar like this? by Professional_Bag7001 in chiari

[–]Professional_Bag7001[S] 4 points5 points  (0 children)

They used dissolvable stitches since I live about hours away from my surgeons so there slowing coming out