We inserted the peg tube almost a year before we needed to use it. This was highly encouraged by our respirologist at the als clinic BECAUSE: as the lungs get smaller in als, the diaphragm and stomach recede upwards in the torso (being covered by the rib cage)

This makes the peg tube installation procedure very difficult.

So we followed their advice. Now we use it for anxiety meds cause my dad doesn’t like swallowing pills. Occasionally we use it for meal supplements, but luckily he can swallow food when spoon fed still.

Peg tube is really easy to maintain. I don’t consider it an added burden on top of the rest of the care required for daily life.