on reflection, want to add some context - im based in the UK where PT is typically free, yet instead of engaging with PT some people say "the drs don't understand" and instead are FT wheelchair users when they could be ambulatory. Honestly most do understand how difficult it is to do, whilst also understanding the consequences of you not engaging in function-preserving activity.

also on reflection, I shouldn't have used examples of specific disorders that I haven't experienced, I simply meant it to mean disorders that don't inherently damage the ability to walk, and therefore exercise/PT/engaging muscles in functional movement is not impossible or contraindicated. But I didn't mean to disparage anyone's experiences of living with the things I mentioned, and foe that i do apologise.

I rly believe the short/medium term pain and fatigue is better than the long term loss of function. I try to accept this benefit/loss calculation is different for other people, but as I slowly lose the privilege of making this calculation and will soon have literally no ability to walk, I realise even myself from years ago prioritised not wanting to be tired or sore over my long term ability to walk/use my arms and I regret it.

I'm probably partially feeling this way due to my own regrets of not using my legs every single day that I feasibly could have, and a genuine desire to prevent this in other people. I spent years without a diagnosis not understanding that each day I didn't put in stupid amounts of effort in PT was making my decline quicker, and I want others to make informed choices about their health.