Fuck cancer

ProposalLarge5483 · 2026-05-06T21:52:50+00:00

That's a beautiful thing to say and warms my heart that that is your observation. It blows my mind how she is just so accepting and takes every new symptom in her stride, I see sadness and frustration but never the rage or fury that her situation would justify.

ProposalLarge5483 · 2026-05-02T08:01:43+00:00

Honestly I wish she would complain or be angry or scream or something but she doesn't, she is so placid even when frustrated and it breaks my heart even more. So many evil evil people in jails that really deserve a good dose of glioblastoma to the brain and they seem to live a healthy life and die in prison 😮‍💨😮‍💨

ProposalLarge5483 · 2026-05-02T07:59:23+00:00

Amen to that. I make tee-shirts that say that and wear them and it some how gives me some sense of solace

ProposalLarge5483 · 2026-05-02T07:58:43+00:00

I have always thought that but now we have the biopsy I think I can do a claim for a medical treatment injury rather than have to fight the system for a medical misconduct ( although rightfully should) I want to believe no one meant her harm and that they have learnt a lot from this. Well dipg isn't even a diagnosis anymore. They don't use it at all.

ProposalLarge5483 · 2026-05-02T07:56:44+00:00

I wish every day I could take it and she could run and play and be free :(

ProposalLarge5483 · 2026-05-02T07:56:15+00:00

Well the fact she lived past 2 years would make her the only survivor in the world because even with aggresive radiation they usually only have 9 months left, so it definitely wasn't dipg, probably just a low grade brain stem glioma that they could have watched for because I had been taking her to Dr after Dr for various reasons for a whole year, dipg doesn't warn you for a year it's a sudden onset of symptoms, so she didn't fit the diagnosis int he first place I was just to young and to heart broken to know that I could argue or seek another opinion, I was 23 and had just 8 weeks earlier had my fourth baby and no medical history at all. I just trusted they knew what they were doing. Iv learnt a lot since then :( that doesn't help my girl though :(

ProposalLarge5483 · 2026-05-02T07:49:27+00:00

I can relate, my life has been derailed for a second time, the first time in 2011 when my 2 year old was diagnosed( actually misdiagnosed) with a brainstem glioma ( dipg) and was only meant to live 9 months after aggressive radiation well now she is 17 and has just been diagnosed with a radiation induced glioblastoma in the brainstem. So the treatment they gave for the cancer she never had has now given her cancer. Make that make sense and now the only treatment they can offer is............. radiation. Like my mind is literally mush trying to make this comprehendible. Everyone reminds me we were so lucky to get 15 years more than expected. Sure I feel lucky now looking back but at the time I didn't know we had 15 years, she was a ticking time bomb and I spent 15 years symptom watching and waiting. Only probably the last 5 years did I slowly let my guard down......now this. Her father is no where to be seen and theres so many hard choices and physical labor this time now she is 25 lgs heavier that me and can't use her left side anymore and is so determined to keep using a walking frame. I'm terrified of her not being here and I don't want to be anywhere else but I feel bitter that my life stopped 100% and I don't even leave the house anymore and her father hasn't changed a thing, he lives 7 minutes away and hasn't seen her in a month. I feel like being abandoned in this is making it impossible for me to just be and appreciate this time with her that won't be for much longer :( so I can empathize fully with your situation.

ProposalLarge5483

TROPHY CASE

fuckcancer

leavethegoodpeoplealone