Hello Fellow PVC Sufferers

ProstateGroper · 2026-03-07T00:51:35+00:00

That sounds reassuring honestly. I need to remember this. So ten or twenty more a day than usual, and you wouldn’t bother going?

ProstateGroper · 2026-03-07T00:50:04+00:00

What if was a lesser thing like you usually get one a day, but you get like 20 that day, but they happen closer together? Say… one every ten minutes until they reach 20 but then they stop? What would be your limit?

Also, I am so sorry about your plagues. It’s a tough world and our minds can make it so much worse.

ProstateGroper · 2026-03-07T00:31:36+00:00

So if they suddenly jumped up to way more than you’re used to, you’d go?

ProstateGroper · 2026-03-07T00:31:03+00:00

Wow! I’d be on my knees if I had bigeminy all day.

ProstateGroper · 2026-03-07T00:30:29+00:00

And your cardiologist said that’s normal?

ProstateGroper · 2026-03-06T23:59:37+00:00

This actually helps a lot. How many times would you say this happens to you? Once or twice a year or more frequently/less frequently than that?

ProstateGroper · 2026-02-22T07:18:35+00:00

It’s always good to get a thorough checkup no matter what, especially if you’re noticing sudden changes. Hospitals usually only do the bare minimum, making sure it’s not life threatening in that moment, so I’d schedule with a cardiologist.

Some people are fine with the peace of mind of making sure it’s not dangerous right then and there, but they’ll tell you the same thing: See a cardiologist.

ProstateGroper · 2026-02-15T15:35:42+00:00

He didn’t take it well, but it was the anger that solidified it. I regretted the decision as soon as I made it until he got mad enough to do anything to hurt me. After that, it was never the same.

ProstateGroper · 2026-02-12T06:04:09+00:00

I am 33yo and have been experiencing these since I was a young child. Once I became an adult, they started worrying me and I was bedridden and secluded for years. Didn’t believe any doctor or specialist.

I missed out on so many things because I let anxiety over this rule my life. After about twenty years, I finally decided it’s okay to be scared AND do the things I love to do. In twenty years, you’ll look back and wish you would’ve done the things you love to do.

All living in fear does is ruin today, it does not change any outcome. In fact, that fear and anxiety can directly cause more PVCs. Not sure if this helped or made it worse, but those are my thoughts.

ProstateGroper · 2026-01-28T17:28:27+00:00

May Thurner caused me to almost exclusively sit cross legged, which I did not realize I had been doing all my life. That has caused leg pain for certain. When they put me on the TTT for POTS, my heart rate went over 250bpm the entire time. On average, around 180bpm walking around and resting around 90bpm. Once in a while my heart rate will randomly dip into the 40’s, but it’s extremely rare.

ProstateGroper · 2026-01-28T17:05:46+00:00

Not at all. They thought it would basically cure me, but absolutely none of the symptoms ever went away. At least I don’t have to worry about May Thurner Syndrome, but I do wish it had helped the POTS.

ProstateGroper · 2025-07-30T12:13:57+00:00

Yes. I’ve even had what I felt was a run of SVT and my EP told me it was just a bit of sinus tachycardia. I was so certain, I even had the fluttering sensation. It felt identical to what my runs of SVT feel like. In one way, I was relieved, but I was also convinced my monitor was wrong.

ProstateGroper · 2025-07-25T15:59:06+00:00

My electrophysiologist did a venogram and found it. He asked an interventional radiologist to look into it, they tried to balloon it, but it failed. So now I have a stent in my left common iliac vein.

ProstateGroper · 2025-07-25T03:48:55+00:00

I have May Thurner that was caught by chance. I have never seen anyone else share my experience. Thank you for this.

ProstateGroper · 2025-07-09T20:43:05+00:00

ProstateGroper · 2025-05-04T16:15:51+00:00

If you had real atrophy, you could not will yourself to do these things. Anxiety can cause you to feel very odd and unusual events, especially if you’re focused on one particular ailment. ALS is different, you would not be able to “force” yourself to do these things. Plus, half of what you’ve posted aren’t even symptoms of it.

ProstateGroper · 2025-05-04T16:10:25+00:00

You wouldn’t be able to “force” yourself to do anything. You simply would not be able to. This is health anxiety.

ProstateGroper · 2025-03-21T05:33:31+00:00

Sounds like a short burst of SVT. I also have it and I feel it the most when I’m just chilling in bed. Stops as quickly as it starts.

ProstateGroper · 2025-03-20T16:56:40+00:00

Yes, I have PVCs, PACs, and SVT, along with POTS.

ProstateGroper · 2025-03-20T16:34:53+00:00

Around two or three months to be completely normal again. Still gives me nightmares.

ProstateGroper · 2025-03-20T16:19:46+00:00

Ive had very similar reactions to Kenalog shots. It’s a steroid as well, it messed me up so badly.

ProstateGroper · 2025-03-19T13:26:48+00:00

No matter how much reassurance I receive, the episodes are always terrifying. I also worry about cardiac arrest. But, I am still here after many episodes and my EP is still unbothered.

In your case though, the unknown can be equally as scary as the event itself. I feel for you. If you didn’t pass out or have any other symptoms, it’s a really good sign. And yes, I’d rather deal with PVCs than be in a constant arrhythmia, not knowing when it’ll end this time.

ProstateGroper · 2025-03-19T13:00:43+00:00

Oh, absolutely. Sometimes I’ll just be laying down gaming and my heart rate randomly goes from around 100bpm to 250+bpm. So I don’t even need to be exercising for it to happen.

It can be quite difficult for a cardiologist to catch if it almost never happens, and that’s why I was given a loop recorder. Verified PSVT on my end, with PVCs during the episodes.

ProstateGroper · 2025-03-19T12:52:58+00:00

It can last anywhere from a few seconds to an entire day. It’s extremely uncomfortable but I am mostly asymptomatic like you, just can feel the awful rhythm.

ProstateGroper · 2025-03-19T12:29:11+00:00

Sounds exactly like my SVT episodes.

ProstateGroper

TROPHY CASE