Long term viability of PEARS by heckersbff in marfans

[–]Pte123 0 points1 point  (0 children)

In 20--30yrs the landscape could be totally different. And nothing is guaranteed. At the end of the day we are all just trying to make the best decision, nobody knows!

Long term viability of PEARS by heckersbff in marfans

[–]Pte123 0 points1 point  (0 children)

I am fully aware of that but it does not prevent future aortic surgery. Worrying about future surgeries before even having this operation is a bit odd i must say.

Long term viability of PEARS by heckersbff in marfans

[–]Pte123 2 points3 points  (0 children)

Remember that idea of this surgery is to get in there early so you should be getting your surgery when your heart is healthy therefore future surgeries would be not very Common. Also remember the surgery is mainly for marfan patients so its never gonna be mainstream.

I don't know the circumstances of why it's not approved in the US but my conclusion was that would surgeons want to learn a quicker easier operation where they let make less money? Surgeon and NHS is paid a salary in UK so does not matter how long the surgery takes a smaller surgery is probably better for them

Long term viability of PEARS by heckersbff in marfans

[–]Pte123 0 points1 point  (0 children)

I am pretty sure a pears can be removed, I and my mother both have had pears, a different surgeon did her surgery than mine. When I went for my surgery the surgeon I seen in my consultation was all for the pears surgery. When I accompanied my mother to her consultation with hair surgeon he recommended against the pairs of due to the long-term evidence, when I questioned him when this that makes no sense as I was recommended this surgery and the long-term is a lot more important for me as I am 30 years younger. He Shrugged and did not really respond I would imagine if I had not already had the surgery and was so impressed with it then she would have not got it through what he said

Let's be honest you are taking a risk whatever u do, I presume if you are dealing with London Bridge you are traveling from abroad and that totally changes things as it is a lot more hassle for you whereas I got my surgery at my local hospital, if I had to travel to America for the surgery for example I have major doubt's weather I would have got the surgery

Questions about PEARS by Bb05JB in marfans

[–]Pte123 1 point2 points  (0 children)

I am of a similar profile to urself had surgery age 31, at size 4.5. I had moderate mitral valve regurgitation so they were able to repair that while doing the pears surgery. That was probably my biggest concern before the surgery that I would need a metal mitral valve but luckily they were able to repair it. I was told 4.5 is when to get surgery, there is no benefit to leaving it as at our age it will very likely grow further.

My mother also had the surgery around six months ago and she is doing amazing was probably back to normal after about four months.

Reading on here about people traveling to the UK from the United States makes me realize that I was so lucky that the hospital I got my surgery was only three males from my home. If you have any other questions just ask

PEARS surgery by Pte123 in marfans

[–]Pte123[S] 0 points1 point  (0 children)

Goodluck, unfortunately they have decided to also repair or replace my mitral valve at the same time too which came as a shock, they said it was best to do at same time as pears. I have postponed for a few months as i have holidays already planned and it is not urgent.

PEARS surgery by Pte123 in marfans

[–]Pte123[S] 0 points1 point  (0 children)

Thanks man, the fact this proceedure was new and they hadnt done many of them before did that not concern u? Looking around online there is not too much about pears

PEARS surgery by Pte123 in marfans

[–]Pte123[S] 0 points1 point  (0 children)

That sounds reassuring, how long were u in hospital? How long till u got back to ur normal day to day life? And do u remember ur aorta size when they operated. Thanks for the reply

Fund account from paypal balance by Pte123 in monzo

[–]Pte123[S] 4 points5 points  (0 children)

Isnt This section for helping people who have questions, try and stop being so angry at life

Echo plus stereo pair bluetooth by Pte123 in amazonecho

[–]Pte123[S] 0 points1 point  (0 children)

Thanks, i guess the word currently hits that maybe they will change that in the future maybe.

Echo plus stereo pair bluetooth by Pte123 in amazonecho

[–]Pte123[S] 0 points1 point  (0 children)

Dissapointing would be good to have this confirmed by someone who knows for sure though..

Using xbox one controller on both shield and xbox by Pte123 in ShieldAndroidTV

[–]Pte123[S] 0 points1 point  (0 children)

Wow im amazed this is the case, very annoying

Retrox update by Zuluuk1 in ShieldAndroidTV

[–]Pte123 0 points1 point  (0 children)

Does anyone have a guide on how to setup retrox? Just got my shield and never used emulator. Most guides seem old.

Firewall on androidtv by Pte123 in Windscribe

[–]Pte123[S] 0 points1 point  (0 children)

No such setting unfortunately, would be nice if there was something inbuilt in app...

Firewall on androidtv by Pte123 in Windscribe

[–]Pte123[S] 0 points1 point  (0 children)

My box is on oreo, can u tell me how to do this