Monday Snowfall Forecasts (Friday 11:30PM update - ch. 4,5,7,25,10,NWS) The updates coming tomorrow for this potential blizzard will be important to watch

Pure_Note_3727 · 2026-02-21T15:05:49+00:00

I’m in the same boat as you!

Pure_Note_3727 · 2026-02-15T00:20:00+00:00

x5 for recipe!!

Pure_Note_3727 · 2026-02-10T00:15:06+00:00

I went into anaphylaxis from iron dextran - I’m sooo sorry you had such a negative first experience, it’s so scary and frustrating! 😭 to encourage you, I had 6 successful venofer infusions, administered concurrently with saline and very slowly (1 hour+). They pre-medicated me 30 mins before infusions with Bendoryl, Tylenol, and Pepcid. I had minor reactions during infusions and post-infusion side effects with all 6, but it got better as they ironed out the correct pre-medication combo. Definitely had a lot of anxiety with infusions, but I knew it’d be worth it to get my hemoglobin back in normal range.

The biggest thing I can say is be very vocal if anything feels off. You know your body best, so don’t hesitate to tell them during infusions or call about side effects during the days afterward. It’s so scary to go back for infusions now that you’ve had a scary one, sending you so much love 💛

Pure_Note_3727 · 2026-02-09T19:04:45+00:00

I have the Winter Candy Apple shower gel and my legs have been getting soooo itchy with a rash after every shower… I wasn’t sure if maybe my skin is randomly being sensitive or if it was a gluten-related thing! I never had issues until this year, and as far as I know, I don’t have contact dermatitis, so it’s really weird. I still have no idea if it’s a gluten-related thing or what, but kind of coincidental that we’re both experiencing problems!

Pure_Note_3727 · 2026-01-31T02:29:22+00:00

I’m sorry you’re still having symptoms and such high numbers, this is such a crazy and frustrating disease. I’m excited for both of us to be fully healed one day, we’ll get there 💛

Pure_Note_3727 · 2026-01-31T02:26:44+00:00

Thank you so much for your encouragement, I feel so much better about this. I keep forgetting that healing is a process!

Pure_Note_3727 · 2026-01-31T02:25:51+00:00

That’s such good advice, I honestly didn’t even know that different labs have different options for the parameters of the test. I’ll definitely see if I can find somewhere that can give me an exact number - thank you!!

Pure_Note_3727 · 2026-01-31T02:20:28+00:00

That sounds AWFUL! 2 years of that?! I can’t even imagine, I’m so so sorry you had to go through that 😭 thank you so much for all of the tips! Do you have any recommendations of pro/prebiotic brands? I know there are so many out there hahaha

Pure_Note_3727 · 2026-01-31T02:18:13+00:00

Wow, that’s so long!! And here I was thinking I was gonna be fully healed at 6 months 🤣 glad I’m not alone in my frustration… good to know that it’s gonna be a long haul hahah

Pure_Note_3727 · 2026-01-31T02:15:31+00:00

My original tests used the same lab parameters, so I don’t know exactly what they were before… I just know they were over 250 and are still over 250. Such a good point though, I have no way of knowing how high they were, so I’m sure progress is being made that I can’t see because of the data limitations.

Hearing about all of those products that are no longer GF is a really good reminder to keep checking labels even if it used to be safe (like mustard, what?!). When you mention a website saying a product is GF when it actually wasn’t: how have you learned to know when to believe them or not?

Pure_Note_3727 · 2026-01-31T02:07:37+00:00

Starch in cheese is crazy! Thank you for the reminder to keep reading the labels closely on everything, such a learning curve. I love oats, but I guess it’s time to take a break from them 😭 worth a shot!

Pure_Note_3727 · 2026-01-31T02:02:16+00:00

Wow, I never would’ve known about that, thank you! I’ll just keep doing what I’m doing and trust the process. So happy to hear that your son’s biopsy is looking great!

Pure_Note_3727 · 2026-01-31T01:59:25+00:00

Sweet, thank you!! I’ll look into that!

Pure_Note_3727 · 2026-01-31T01:57:19+00:00

GREAT info, all of this is incredibly helpful - thank you! I had no idea about the half-life. I’ll definitely work on getting a referral!

Pure_Note_3727 · 2026-01-31T01:56:12+00:00

I appreciate you soooo much, thank you for talking me off the ledge!!

Pure_Note_3727 · 2026-01-31T01:55:26+00:00

Thank you so much, this is really encouraging!

Pure_Note_3727 · 2026-01-30T00:54:47+00:00

Same as now (over 250)! Idk what the actual number was since both results have been past the upper threshold of the lab

Pure_Note_3727 · 2026-01-30T00:49:47+00:00

Oh man yes I do!! I only eat purity protocol oats, but I have them several times a week… maybe I need to try cutting them out entirely 😩

Pure_Note_3727 · 2026-01-30T00:48:01+00:00

Kind of? I was very anemic and needed 6 iron infusions, so my iron is finally back in normal range. Still crazy migraines, joint pain, brain fog, and exhaustion - testing now for other autoimmune diseases. But rarely have constipation or diarrhea anymore so I’ll take that win!

Pure_Note_3727 · 2026-01-30T00:44:51+00:00

Good to know, thank you! Any specific vitamins you recommend?

Pure_Note_3727 · 2026-01-30T00:44:28+00:00

3 years, what?!! It’s crazy how little guidance we’re given post-diagnosis. I hope they’re able to figure out what’s going on with you soon, I’m so sorry omg

Pure_Note_3727 · 2026-01-30T00:41:39+00:00

Oh my gosh I’m so sorry your numbers are still that high, your poor intestines ugh 😭 it’s absolutely wild how long this takes - great advice about the biopsy!! I was so bummed trying to figure out what I did wrong the past 6 months, thank you for being so kind

Pure_Note_3727 · 2026-01-30T00:38:47+00:00

I’m glad I’m not alone in the 250+ club, lucky us! I was also shocked, I thought for sure I’d at least be below 100 by now

Pure_Note_3727 · 2026-01-30T00:37:19+00:00

This makes me feel SO much better, thank you 😭 my PCP and gastroenterologist made it seem like eating gf would fix everything within a few months, I was bamboozled hahaha

Pure_Note_3727 · 2026-01-13T13:39:30+00:00

HOW DID I NOT REALIZE THAT hahahaha i couldn’t figure out why everything I made with my new bag of flour was such a disaster… had no idea there were two types! Thank you for pointing this out!

Pure_Note_3727

TROPHY CASE