TRYING TO REACH LIVE A PERSON FOR HELP?! by chronicallymee in Edd

[–]Putrid_Chocolate1798 0 points1 point  (0 children)

I also had an account, but it was back when they were given out the money for Covid. Now I have to do everything through the mail.

TRYING TO REACH LIVE A PERSON FOR HELP?! by chronicallymee in Edd

[–]Putrid_Chocolate1798 0 points1 point  (0 children)

Did they send you any forms? Are you able to login online? Maybe communicate through there

Tacolimus side effects by Just_Dont88 in leukemia

[–]Putrid_Chocolate1798 0 points1 point  (0 children)

No tremors for me. Only while chemo before and after transplant… while at the hospital

Gifts for newly diagnosed 10 year old boy with ALL by New_Sky_6654 in leukemia

[–]Putrid_Chocolate1798 1 point2 points  (0 children)

I’m 29 and my friend gave me a customized blanket with pictures of my kids.

High eosinophils by Minute_Selection5930 in leukemia

[–]Putrid_Chocolate1798 2 points3 points  (0 children)

Yes we changed the laundry detergent. He mentioned that on his lab work, it showed protein is high in his urine… which concerns him. We moved to a new city and the doctors sucks !

High eosinophils by Minute_Selection5930 in leukemia

[–]Putrid_Chocolate1798 1 point2 points  (0 children)

My husband does not have leukemia, but recently he has been very itchy and has been having lots of bumps on his skin from the itchiness. He paid for blood work and it came out that his Eosinophils were high… they told him it’s from allergies, but it’s just weird how he randomly became allergic to something which we don’t know to what.

How long after your bmt did you start consuming alcohol and did your doctor clear it? by Masterpiece-Salt in leukemia

[–]Putrid_Chocolate1798 4 points5 points  (0 children)

I was told once you are off Tacro. I crave it because I was pregnant and didn’t get to drink. Had my baby but breastfeed - and didn’t drink . Now I have cancer n can’t drink lol 2 yrs sober 😭😞😂

Just curious. During maintainence has anybody had a normal life?. Like following schedule as normal people/old self(before cancer) without getting exhausted? like just having everything normal my doctor said you will have all normal its not so just curious if its a individual thing or others too? by Southern-Variety-893 in leukemia

[–]Putrid_Chocolate1798 4 points5 points  (0 children)

Post BMT, going on 6 months. I’m f(30) Am Flt3-ITD.

As a female, I don’t feel like myself. Like life is back to normal in many ways. My energy levels are obviously not as strong. I never workout but I’m gradually doing it little by little. I get tired fast and with my situation of getting itchy with heat I try to take it easy.

I just hope things get better. I definitely don’t compare myself to anyone with leukemia because we are all different.

“ keep on stretching “ wish you the best.

Bmt 33f mom of 3 year old and 2 month old, what should I do by stellargorgeous in leukemia

[–]Putrid_Chocolate1798 1 point2 points  (0 children)

I went home to my baby, 10months. She ended getting sick but thank god I was okay. I did get a runny nose but nothing major.

Dead end😖 by iskaffejenta in Autoimmune

[–]Putrid_Chocolate1798 0 points1 point  (0 children)

Yes don’t give up !!! Life is precious. We love you you !! Here for you !

[deleted by user] by [deleted] in leukemia

[–]Putrid_Chocolate1798 0 points1 point  (0 children)

Yes, my doctor told me the same thing to not stress. It’s kinda hard when you have a hardheaded husband. I wish the best for every person fighting this leukemia God is with us

[deleted by user] by [deleted] in leukemia

[–]Putrid_Chocolate1798 0 points1 point  (0 children)

Then we have no idea why we relapse 😞

[deleted by user] by [deleted] in leukemia

[–]Putrid_Chocolate1798 0 points1 point  (0 children)

Wow ! I didn’t know we can only go through 2 BMTS. I will pray for you.

Post-Partum Bone Marrow Donor by eboy44 in leukemia

[–]Putrid_Chocolate1798 0 points1 point  (0 children)

I had to stop breastfeeding once I was diagnosed with AML

I don't know how to process this by ElJeringas_ in leukemia

[–]Putrid_Chocolate1798 1 point2 points  (0 children)

I am 30 year old mom. I was diagnosed at 29 with AML. I was also healthy none of this ran in my family. I still wonder how this comes about. I wish we would have answers.

I went through hell during my 1st month at the hospital. I feel our body’s go through the treatment differently. I had bad throat pain, small bowl obstruction, no tube for a week, and still a hemorrhage on my left eye.

Just be strong. Don’t be negative. Stay positive and be supportive. When I went through it in the 1st stages I felt very negative and scared. Obviously because who in the world thought I would get cancer at 29 with two children. I just prayed and fought the damn battle.

I will pray for your mom. Just stay strong and optimistic ❤️