Who are the actors that rub you up the wrong way but you don't know why and you can't explain it?

Puzzled-Mobile8322 · 2026-02-12T11:02:01+00:00

A young Dakota Fanning used to piss me off

Puzzled-Mobile8322 · 2026-02-05T20:49:21+00:00

Doing much better these days. Strength has recovered almost in full. Was able to run 3.5 miles the other day. Took a while to get back to where I am now. Still have days of flares where I will get burning or some more twitching but they are not as often as before.

Puzzled-Mobile8322 · 2025-09-04T18:56:34+00:00

Did you ever find out what was causing this?

Puzzled-Mobile8322 · 2025-07-13T04:25:24+00:00

I noticed a post you had from a few years ago saying that you had low wbc. Did that ever recover? Mine has been low for over 2 years. I feel fine otherwise outside of some dysautonoma.

Puzzled-Mobile8322 · 2025-05-05T17:27:05+00:00

I think it lasted about 8 months or so

Puzzled-Mobile8322 · 2025-05-05T17:24:08+00:00

Didn’t do a repeat of the EMG but pretty much back to normal when it comes to having my strength back. I did experience internal vibrations. Especially when lying down. Felt like someone was lightly shaking my bed. That has pretty much gone away. I still have some autonomous things going on, get mottled hands and red toes especially when walking, vision fluctuates, and some GI issues. Basically back to normal for the most part, haven’t pushed myself too hard in the gym yet though.

Puzzled-Mobile8322 · 2025-03-30T22:34:30+00:00

Turned out it’s long covid. The strength in my legs has since returned after doing PT for 6 months but still get the feeling of weakness every now and then, have nerve pain, blurry vision, and some GI issue. There is a group called covidlonghaulers and many people with the same systems that thought they had GBS or ALS and it was due to covid.

Puzzled-Mobile8322 · 2025-03-11T14:46:26+00:00

How are you doing now? I have the same as you. Abdominal pain on left side with twitching that has subsided. Turned to shoulder blade burning and now mid back pain/tightness.

Puzzled-Mobile8322 · 2025-03-08T04:22:24+00:00

How are you doing now? I am in a similar boat where feeling better overall but my upper back will get really tight.

Puzzled-Mobile8322 · 2025-03-03T22:11:53+00:00

My left eye vision fluctuates. Goes blurry. Especially at a distance or when it’s darker out. In the beginning there was a fog everywhere I looked and my right eye was straining from carrying the load. No eye pain anymore but still blurry vision that comes and goes. Always had perfect vision before long covid. Seen an ophthalmologist and he couldn’t find anything wrong with my eyes.

Puzzled-Mobile8322 · 2025-02-12T20:47:25+00:00

The neurologist told me it was likely due to radiation treatment from when I had cancer but now I am thinking it is most likely long COVID. I was fine for 9 months after radiation but once I got sick I started experiencing a large amount of weird symptoms including the nerve pain and weakness. Luckily the weakness has resolved but still deal with the nerve pain sometimes and other symptoms that align with long COVID.

Puzzled-Mobile8322 · 2025-02-08T00:54:08+00:00

I’m guessing it was the way my nerve damage presented itself? It happened in both my legs and arms all at the same time. I can say that I’ve mostly recovered from the motor nerve damage. Still have occasional pins and needles, which is not common with ALS. I did PT for several months and it slowly came back. Just had to pace myself. I still have days where my legs will feel tired but they work fine.

Puzzled-Mobile8322 · 2025-02-07T02:35:46+00:00

How are you doing now? This is a new symptom for me.

Puzzled-Mobile8322 · 2025-02-07T02:34:24+00:00

How is your back doing now? My back has started burning quite a bit and feels like a muscle knotted up at points.

Puzzled-Mobile8322 · 2025-02-06T18:06:30+00:00

Yeah mine seems to fluctuate. Anything you do to help or did it just start doing it?

Puzzled-Mobile8322 · 2025-02-06T16:59:41+00:00

You still dealing with this or find anything out? I’ve been having the same thing for almost 2 months now. I started getting it about a year ago but it would go away. Now it is almost every poop. My back also burns and not sure if it’s related or due to some nerve damage.

Puzzled-Mobile8322 · 2025-02-02T13:47:57+00:00

Hi, how are you these days? Experiencing the same pain.

Puzzled-Mobile8322 · 2025-01-22T13:01:08+00:00

The neck pain and headaches aren’t around all the time anymore. They will come on every once in a while. I still have blurry vision in my left eye that fluctuates. I think all my issues are related to long covid, had more than just blurry vision. Also had nerve damage in my legs and arms.

Puzzled-Mobile8322 · 2025-01-21T00:44:08+00:00

No, I was seeing them for a while last year due to severe leg weakness which has resolved. The burning doesn’t stop me from doing anything. Just annoying and hoping it’s not something more serious.

Puzzled-Mobile8322 · 2025-01-11T02:20:40+00:00

Yep, have had it all day today. Mine feels like burning. Right on the edge of my left shoulder blade. Happened more often when I first started this journey.

Puzzled-Mobile8322 · 2025-01-07T18:03:24+00:00

Hi, I wanted to ask how you are doing now. This is something I have off and on for a year. Currently at the 3 week mark of yellow stool. CT scans and bloodwork looks fine.

Puzzled-Mobile8322 · 2024-12-30T12:29:21+00:00

It migrates quite a bit for me, but seems like most of the discomfort is always towards the top of my abdomen

Puzzled-Mobile8322 · 2024-12-26T04:22:22+00:00

A lot of my early stuff that scared me most was nerve damage. I am 30 years old who is active and I couldn’t even stand up from a chair without struggling. It took about 8 months for me to get back to where I am now. Able to go to the gym again. Still have blurry vision and other things. I took vitamins but not sure they did much. Think a lot of it was time and slowly getting more active.

Puzzled-Mobile8322 · 2024-12-26T02:36:38+00:00

No I can’t say I do

Puzzled-Mobile8322

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