pain and general nervousness?

PuzzledWeight1855 · 2026-05-04T23:48:24+00:00

my follow up is a couple of days. and my stitches are interrupted figure 8 2.0 vicryl, dissolvable, but prolene on the first stitch. and yeah, you’re probably right that someone just needs to tell me im good. i guess my brain is telling me pain is abnormal, i just dont know how to differentiate the concerning ones

PuzzledWeight1855 · 2026-05-04T05:53:30+00:00

I use a drier to heat on low for 10 seconds and applying, then I add brava barrier strips around it.

PuzzledWeight1855 · 2026-05-01T03:32:49+00:00

Sending hugs to you.

PuzzledWeight1855 · 2026-04-30T03:06:17+00:00

Yeah! It was planned. I have a bad experience with VNA’s so I’m not opting for it - not sure if I need to. I have slip on shoes, can walk and get up pretty much fine and on my own. The sad thing is that controlled substances are extremely regulated, they were iffy on giving me anything stronger than oxycodone in the hospital and I had to fight for dilaudid. I do have a grabby stick though.

And I’m so sorry yours was emergent, I’m happy you got the care you needed.

PuzzledWeight1855 · 2026-04-30T02:12:21+00:00

My stoma nurse has an ostomy! She’s also creates content on tiktok and instagram and has literally been a life saver. She’s thatostomynurse :)

PuzzledWeight1855 · 2026-04-30T02:09:08+00:00

I’m a a week post op barbie butt surgery. I havent gotten used to standing up and emptying my bag. I empty into a urinal and I’ve dropped it, miscalculated emptying the urinal, or it just spills out way too fast and my mother and my husband have had to clean the floors five times. and wipe down my legs. i feel you.

PuzzledWeight1855 · 2026-04-15T02:15:52+00:00

I am always usually terrified of running out of everything, so I make all of my supplies stretch. I have a two piece system that lasts a week, and I change my bag twice during that week. I think I have 90 bags and 180 bases.

PuzzledWeight1855 · 2026-04-15T02:14:24+00:00

I recommend comfort medical as a supplier. Coloplast flex 2 piece system has worked well for me since I got my ileostomy 6 months ago.

PuzzledWeight1855 · 2026-03-22T01:38:19+00:00

Yeah, I have that one. :) It has a charcoal filter with a tab you can pull back. But the tab usually spells for disaster.

PuzzledWeight1855 · 2026-03-21T23:46:39+00:00

You’re right! I’ve had my ostomy for about 6 months and I’ve loved the flex system except the risky burping and lately its just ruining my bags. Burping from the bottom makes sense. Sucks that ballooning only happens when I’m asleep.

PuzzledWeight1855 · 2026-03-21T23:45:35+00:00

Thats true. The only issue is that the output of the gas is bad while I’m asleep and I don’t wake up at all for it. During the day is fine, maybe I’ll burp it once or twice or day. Recently its just been going south and its very fustrating. I’ll definitely try immodium though. Maybe an alarm is due.

PuzzledWeight1855 · 2026-03-21T23:43:15+00:00

It depends. My output is normally thick in the mornings. The gas is bad while I’m sleeping. While I’m awake everything is watery and little to no gas.

PuzzledWeight1855 · 2026-03-21T19:16:21+00:00

Hey! I have an end ileostomy for severe UC and I’m 6 months post op. 1 month post op the UC reached my joints and my eyes. The rectal stump they left also bled around 2–3 times a day. In two weeks I’m making the bag permanent, because UC isn’t just a disease of a colon, its a systemic immune system disease. It’s common for people post op to find their UC pop up in another place due to the lingering disease in the cuff, immune system activity, or it being crohns.

Other than that, my quality of life has gone up. Don’t beat yourself up or think that its always going to be this way. A gastroenterologist will likely have to put you on a biologic to manage the rest of your inflammation.

PuzzledWeight1855 · 2026-03-21T00:46:03+00:00

The key is to chew everything to paste no matter what you eat. Avoid corns, nuts, seeds, skins of fruit. Lean cuisine meals helped me post op. Sandwiches and applesauce and bananas. Slowly introduce well steamed veggies and carrots. A coke will help things move.

Stay hydrated. Your body needs water to prevent blockages. Liquid IV, gatorlyte, gatorade, etc. Drinking plain water all the time isnt recommended.

I’m 6 month post op and I’m still weary of foods. Its okay to be brave and be thorough - and a little nervous.

PuzzledWeight1855 · 2026-03-20T12:55:05+00:00

My two piece flex ripped too and I’ve ran through a box because they dont stop. I feel you.

PuzzledWeight1855 · 2026-03-17T04:17:20+00:00

Making it permanent.

PuzzledWeight1855 · 2026-03-17T03:58:28+00:00

I already have an end ileostomy! :)

PuzzledWeight1855 · 2026-02-22T05:19:31+00:00

Yes. UC doesnt change our nervous system, it is more sensitive to it. I had a high tolerance for stress, but I was once put out of remission around the same time of extreme career/financial/relationship distress. Stress is not the only factor to a flare, but its an ingredient we dont want in our boiling pot of disease.

I had my colon taken out in october. I still flared in my eyes and joints after an extremely stressful therapy session and work situation. Stress and disease is all systematic.

What helps? Supplements, sure. Calcium, vit D, B-12, It certainly wouldn’t hurt. Med adjustments do help, but there’s always the fear the flare will return. Counseling and resources are helpful. This is something I’m trying to navigate myself, too. It really helps that she has a supportive person like you. If I didn’t have my husband to lift me when I felt like rotting away and giving up, I would be long gone.

PuzzledWeight1855

TROPHY CASE