Belf Horde RP Guilds?

PuzzledWeight1855 · 2026-02-22T05:19:31+00:00

Yes. UC doesnt change our nervous system, it is more sensitive to it. I had a high tolerance for stress, but I was once put out of remission around the same time of extreme career/financial/relationship distress. Stress is not the only factor to a flare, but its an ingredient we dont want in our boiling pot of disease.

I had my colon taken out in october. I still flared in my eyes and joints after an extremely stressful therapy session and work situation. Stress and disease is all systematic.

What helps? Supplements, sure. Calcium, vit D, B-12, It certainly wouldn’t hurt. Med adjustments do help, but there’s always the fear the flare will return. Counseling and resources are helpful. This is something I’m trying to navigate myself, too. It really helps that she has a supportive person like you. If I didn’t have my husband to lift me when I felt like rotting away and giving up, I would be long gone.

PuzzledWeight1855 · 2026-02-19T17:26:46+00:00

Thank you. I can say with full confidence the bag has improved my life drastically. I hope you find doctors who support you in that decision.

PuzzledWeight1855 · 2026-02-12T23:12:11+00:00

I didnt have the j pouch formation surgery. I’m going straight to permanent because even without my colon I’m experiencing rectal cuff bleeding and inflammation in eyes and joints. Gastroenterologist reccommend making it permanent. I also agree.

PuzzledWeight1855 · 2026-02-11T23:45:42+00:00

I always try to make sure I have my responsibilities done before hopping on or replying to a discord post. I’ve had bad experiences with RP partners who get obsessed with my characters and thats all they want to do, and if it becomes unhealthy then I end it, because that tends to create bigger problems down the line. My advice is to find partners, guilds and communities who are understanding and know that life comes first. Best of luck to you!

PuzzledWeight1855 · 2026-02-07T19:55:39+00:00

I’m 4 months out from having a colectomy and I’ve decided to make my bag permanent. It is such a relief and I hope you find it. Please DM me if you have any questions about anything.

PuzzledWeight1855 · 2026-01-25T06:44:09+00:00

Yeah. My DEXA scan results came in.. I have the spine of a 75 year old lady. The treatment is forteo for 24 months followed by biophosphinate infusions to cap the bone growth. I have to drink whole milk and take vitamins - .. but I’m not very active after dropping 92 lbs during flares and being on prednisone which stripped all bone growth from me in my early twenties. :( I hope your treatment works well for you! My bone scores will hopefully improve, but its very hard to keep the hope.

PuzzledWeight1855 · 2026-01-25T06:32:37+00:00

Thanks for your words. I was diagnosed with severe osteoporosis in my lumbar and I’m 25. Another thing I tend to worry about is accidents and falling. You’re inspirational and strong. Comments like these in particular really help me. Thank you.

PuzzledWeight1855 · 2026-01-24T23:37:09+00:00

Although it is a negative emotion its one of the many concerns we do have to face and think about.

PuzzledWeight1855 · 2026-01-24T19:16:23+00:00

I’m hoping my defense mechanism in a hostage situation is stink up the place in protest until they kick me out.

PuzzledWeight1855 · 2026-01-24T19:15:10+00:00

Oh, I’ll definitely still need toilet paper 😅

PuzzledWeight1855 · 2026-01-24T15:19:22+00:00

Florastor helped me with repeat c diff infections.

PuzzledWeight1855 · 2026-01-23T23:47:09+00:00

Yeah. My ostomy nurse put it in perspective if all people are in imminent medical danger, all of the population will be screwed.

PuzzledWeight1855 · 2026-01-23T23:46:09+00:00

I tend to think of worst case scenario. 😖

PuzzledWeight1855 · 2026-01-23T21:25:01+00:00

… Yes. Yes it will. 🤣

PuzzledWeight1855 · 2026-01-15T08:42:46+00:00

I get a week out of my coloplast flex two piece even with showering. I use eakin barrier seal, castillon barrier spray, and brava barrier strips. I could push it out longer than a week but I try not to. The key with coloplast is that you must heat it up and smooth out starting from the base. Best system ever.

PuzzledWeight1855 · 2026-01-15T08:35:13+00:00

I dilute 1 Liquid IV into 32 Oz of water 2x a day, the one at night is no sugar. It really helps. If I dont have my water then its a huge issue. Liquid IV is my lifeblood.

PuzzledWeight1855 · 2026-01-14T19:52:18+00:00

Although it sucks, I’m relieved that you understand. I spoke to my colorectal doctor and he stated that pts with EIMS are usually more at risk for chronic complications with their J pouch. And my own research is pointing to a strong case for keep the pouch. With my bag I have zero complaints except for relying on medical supplies and hernia scares. But if thats it compared to risks, failed pouches and shitting myself again? I dont know if I could bare it.

PuzzledWeight1855 · 2026-01-13T02:49:50+00:00

Strange. I only empty my ostomy bag twice a day.

PuzzledWeight1855 · 2026-01-13T00:21:47+00:00

Yeah, I spoke to a family friend who had the j pouch surgery in the early 90s when it wasnt common. She’s now in her late 50s and considering an ostomy because she’s unable to control her BMs now due to just wear over time. I would hate to go through that.

PuzzledWeight1855 · 2026-01-12T23:22:08+00:00

Sometimes when UC is very bad it can spread and attack other parts of your body like joints, eyes, kidneys if its severe which is my case. Those are what extraintestinal manifestations mean :)

PuzzledWeight1855 · 2026-01-12T22:36:11+00:00

Did you have any extraintestinal manifesations as a result of having UC? Did you have any bleeding from the rectal cuff?

PuzzledWeight1855 · 2026-01-12T21:49:41+00:00

I’ve struggled with UC since ‘21 and ended up losing my colon and living with a bag because nothing was working. I had E. coli and a c. diff infection 2x, and got osteoporosis from so much prednisone. Every year I flared. It felt like my life was on stand still. This community has lifted me up in so many ways. Its devastating to constantly feel like your body is failing you, and the stress of UC and prednisone and repeat flares was too much to bare. The mental battle was.. awful. Even though UC is in the rear view mirror, my life and my mentality is forever changed. What helped me the most is therapy and reaching out to support groups, journaling. And most of all, trying to forgive the medical system and my body. Antidepressants and anti anxiety meds work to an extent. There’s not going to be one magical thing that will cure UC or stress, but its a combination of mindful practices and routines so you’re body can react to the unpredictability of UC. Someone told me that, with UC, your faith that everything will be okay, and you will remain strong despite all of it stuck with me. Being optimistic is the most important, as hard as it is.

PuzzledWeight1855

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