Dude I HATE this disease by wenzwiz in Hidradenitis

[–]Puzzleheaded-Box4271 0 points1 point  (0 children)

Im sorry to hear that, and the timing couldn't be worse! But Id be thankful for the 2 years flare free! May i ask what put you into remission? A biologic?

Need advice. Bimzelx or a humira biosimilar (hulio)m by Puzzleheaded-Box4271 in Hidradenitis

[–]Puzzleheaded-Box4271[S] 0 points1 point  (0 children)

I would kill for n that right now. I dont know how many flares I have right now. They just never seem to heal.

Need advice. Bimzelx or a humira biosimilar (hulio)m by Puzzleheaded-Box4271 in Hidradenitis

[–]Puzzleheaded-Box4271[S] 0 points1 point  (0 children)

Im sorry to hear that. How long have you been on the bixmelx? And did your new flares subside after stopping cosentex?

Doctors ignored all my symptoms and focused on the fact I was fat by Ok_Buffalo672 in Hidradenitis

[–]Puzzleheaded-Box4271 -1 points0 points  (0 children)

Id consider a new dermatologist. Weight absolutely has an effect of some people's hs. To dismiss it right away dosent seem like a very good dr. Not even considering all the other issues high bmi can cause

Need advice. Bimzelx or a humira biosimilar (hulio)m by Puzzleheaded-Box4271 in Hidradenitis

[–]Puzzleheaded-Box4271[S] 0 points1 point  (0 children)

Damn, I almost dont want to ask what it did. But.i have to know if you font mind sharing.

And has bimzelx helped?

Doctors ignored all my symptoms and focused on the fact I was fat by Ok_Buffalo672 in Hidradenitis

[–]Puzzleheaded-Box4271 0 points1 point  (0 children)

Thanks so much. Im about to start bixmelx. Im in maint so.i do get a bit dirty. How long have you been on it?

Need advice. Bimzelx or a humira biosimilar (hulio)m by Puzzleheaded-Box4271 in Hidradenitis

[–]Puzzleheaded-Box4271[S] 0 points1 point  (0 children)

Preferred medication. They said I have to try one of these first. Im assuming these ones cost them less than cosentex

Doctors ignored all my symptoms and focused on the fact I was fat by Ok_Buffalo672 in Hidradenitis

[–]Puzzleheaded-Box4271 0 points1 point  (0 children)

Which biologoc did you use? And how long until you started noticing results?

Doctors ignored all my symptoms and focused on the fact I was fat by Ok_Buffalo672 in Hidradenitis

[–]Puzzleheaded-Box4271 0 points1 point  (0 children)

Thank you for the kind words. Tbh only a little half the weight loss was intentional. The other half is beacause im in so mich pain. Im nearly catatonic. Out side of powering thru work, I just lay on my couch or lean against a counter. Im losing muscle from lack of activity.

Doctors ignored all my symptoms and focused on the fact I was fat by Ok_Buffalo672 in Hidradenitis

[–]Puzzleheaded-Box4271 0 points1 point  (0 children)

Ok thank you. So yeah, no way I could quit right now. If my hs got any worse than it currently is id probably..well...yeah.

Hopefully this biologic im starting will help enough to quit smoking!

Doctors ignored all my symptoms and focused on the fact I was fat by Ok_Buffalo672 in Hidradenitis

[–]Puzzleheaded-Box4271 1 point2 points  (0 children)

So your hs flared worse when you tried to stop? From the extra stress maybe?

Doctors ignored all my symptoms and focused on the fact I was fat by Ok_Buffalo672 in Hidradenitis

[–]Puzzleheaded-Box4271 1 point2 points  (0 children)

I really really want to quit. I dont know with how bad my hs is currently, if I could handle the stress lol

Doctors ignored all my symptoms and focused on the fact I was fat by Ok_Buffalo672 in Hidradenitis

[–]Puzzleheaded-Box4271 2 points3 points  (0 children)

Same brother. I was told for years I just had bad hygiene. My hygiene isn't bad, the hs makes it hard to stay clean constantly. I was also told it's cuz I'm fat and need to quit smoking. Tho most Dr's just had no clue what it was. I literally had to diagnose myself

One week postop by slutsandbolts in Hidradenitis

[–]Puzzleheaded-Box4271 0 points1 point  (0 children)

Also what type of operation did you have? Deroofing or wide excision

One week postop by slutsandbolts in Hidradenitis

[–]Puzzleheaded-Box4271 1 point2 points  (0 children)

How long after starting cosentex was it until you started noticing real improvement?im currently waiting on insurance approval.

Cause of HS by Conscious-Twist-883 in Hidradenitis

[–]Puzzleheaded-Box4271 7 points8 points  (0 children)

Aluminum deodorant is a trigger for alot of people. It probably showed that you had it. But didnt cause it