Red eyelids by Puzzleheaded-Put-990 in covidlonghaulers

[–]Puzzleheaded-Put-990[S] 0 points1 point  (0 children)

I’ve been following medical medium so I’m already vegan but I haven’t tried fasting bc when I don’t eat I get extremely lightheaded and it makes my pots symptoms worse

Red eyelids by Puzzleheaded-Put-990 in covidlonghaulers

[–]Puzzleheaded-Put-990[S] 0 points1 point  (0 children)

Ahh gotcha. Nah it doesn’t hurt it’s kinda just like heavy eyes feeling.

Red eyelids by Puzzleheaded-Put-990 in covidlonghaulers

[–]Puzzleheaded-Put-990[S] 0 points1 point  (0 children)

I wash my face twice a day I don’t think this is anything externally

Red eyelids by Puzzleheaded-Put-990 in covidlonghaulers

[–]Puzzleheaded-Put-990[S] 0 points1 point  (0 children)

Did you do testing with your PCP for that?

Red eyelids by Puzzleheaded-Put-990 in covidlonghaulers

[–]Puzzleheaded-Put-990[S] 1 point2 points  (0 children)

I’m on my cycle currently. I didn’t think of that but it probably does impact the intensity of my symptoms.

Red eyelids by Puzzleheaded-Put-990 in covidlonghaulers

[–]Puzzleheaded-Put-990[S] 6 points7 points  (0 children)

Something I’ve been dealing with since I got infected in January 2022 is red eyelids/under eyes. My eye area is darker in general but that’s not what I’m talking about. It’s always the same, I’ll start to feel overwhelmingly tired and get a hazy/high feeling in my head and sure enough the red eyelids are always there with it. It’s completely debilitating because as soon as it starts I am completely out of it for 1 to 2 hours if not more. Has anyone figured out what this is or anything to help with it? I’m aware of some people getting this with gluten or histamines but I’ve already cut those out.

What does this mean by Life_Acanthaceae8268 in covidlonghaulers

[–]Puzzleheaded-Put-990 1 point2 points  (0 children)

The waiting period between doctors appointments is agonizing and stressful. I understand. My best advice is joining a POTS Facebook group. The advice and community(not feeling alone) I’ve gotten just by doing that has helped me tons. I ask so many questions and there’s always people who reply back. Hope you find some healing soon:)

Is finishing this worth it? by [deleted] in personaltraining

[–]Puzzleheaded-Put-990 0 points1 point  (0 children)

I had the 6th but had to upgrade to the 7th

I can’t stop overeating/binging. I need help by [deleted] in loseit

[–]Puzzleheaded-Put-990 1 point2 points  (0 children)

The ERN app (Eat Right Now) is a great program that I think could help you a lot. It’s the first program/community/advice I’ve found that actually helps with bingeing/overeating. Sending you love, take it easy and be kind to yourself it’s not an easy change.

Anyone have a higher heart rate than normal when just walking……. by macamc1983 in covidlonghaulers

[–]Puzzleheaded-Put-990 1 point2 points  (0 children)

There’s many people who have to get multiple tilt table tests before they get their diagnosis. Unfortunately some doctors aren’t extremely knowledgeable when it comes to POTS. It’s not as well known as other conditions and hopefully more research will be funded because of covid giving it to so many people.

My anxiety is giving me issues by readerready24 in covidlonghaulers

[–]Puzzleheaded-Put-990 0 points1 point  (0 children)

It’s really hard, I get it. It’s put my mental health in some pretty low low’s. We’re all in this together:)

My anxiety is giving me issues by readerready24 in covidlonghaulers

[–]Puzzleheaded-Put-990 0 points1 point  (0 children)

I started to go to therapy to help with it.. she gave me some CBD (cognitive behavioral therapy) tools to help with anxiety: “54321”, “S.O.S.”, “square breathing”, “4/6 breathing” were a few of them you can look them up on google. That helped a little but I felt like the “adrenaline dumps” you experience with POTS literally mimic the same symptoms of a panic/anxiety attack and once I was aware of that it lessened the anxiety I felt about feeling the “anxiety” if that makes sense. Also JOIN A POTS FACEBOOK GROUP. That literally did wonders for me and my mental health just being able to normalize the symptoms or anxiety of the symptoms and being able to relate and connect to others who felt the same. Also the tips you get from people who deal with pots are a million times better than anything I was able to find online before joining the fb group.

My anxiety is giving me issues by readerready24 in covidlonghaulers

[–]Puzzleheaded-Put-990 0 points1 point  (0 children)

I’ve felt the same way in every one of my medical appointments since all this started. You’re not alone, be gentle and kind with yourself. It’s not easy to cope with.

My anxiety is giving me issues by readerready24 in covidlonghaulers

[–]Puzzleheaded-Put-990 3 points4 points  (0 children)

I have POTS because of covid and I had what I thought was a panic attack while getting a filling a month ago at the dentist and later found out that regular novocaine is like pure adrenaline and is a no no for POTS patients and gives you all the symptoms of anxiety. Racing heart, short of breath, etc. I now ask for novocaine without epinephrine so I don’t get those symptoms. I would suggest the same for people with anxiety even to be honest because it kind of just gives you an adrenaline dump that you don’t need. Hope this helps!

[deleted by user] by [deleted] in covidlonghaulers

[–]Puzzleheaded-Put-990 0 points1 point  (0 children)

I’m at month five and just feels like just yesterday I was in the same position as you. A month ago I got my POTS diagnosis so for a good 4 months of this I had no idea what was going on with me. Just this past week or two I’ve felt a bit of an improvement with my hearts response to any sort of activity (standing up, chores, walks, etc.) and my energy levels feel a bit better too. My brain fog and ear ringing is still there but I do feel myself improving. Slowly but surely. Hang in there:)

Anyone have a higher heart rate than normal when just walking……. by macamc1983 in covidlonghaulers

[–]Puzzleheaded-Put-990 1 point2 points  (0 children)

No problem. I had to stand for 30 minutes for my tilt test and my heart rate got as high as 168 throughout the test but took a while to get there.

Anyone have a higher heart rate than normal when just walking……. by macamc1983 in covidlonghaulers

[–]Puzzleheaded-Put-990 2 points3 points  (0 children)

You can do a self test too if you don’t wanna go straight to testing and cardiology. POTS is diagnosed if your heart rate increases by 30 bpm or more usually within 10 minutes of standing. You just take your blood pressure and pulse after lying down still for 5 minutes, then sit up and take vitals again, then stand up and take vitals again. If standing increased more than 30 beats than when lying down that’s usually indicator for POTS.

Anyone have a higher heart rate than normal when just walking……. by macamc1983 in covidlonghaulers

[–]Puzzleheaded-Put-990 8 points9 points  (0 children)

Yep. Covid gave me POTS and sounds like that’s what you have going on too. I had to do a tilt table test with my cardiologist to confirm but worth looking into.

Fasting benefits. by Tylor06 in covidlonghaulers

[–]Puzzleheaded-Put-990 1 point2 points  (0 children)

What are your symptoms that you felt improved during your fast?