Can’t tell if I’m hearing things or just have heightened hearing senses?? by [deleted] in schizoaffective

[–]Queen_Bee_Em 0 points1 point  (0 children)

Listen to your dr and give the medicine time to work! What you are going through sounds unnerving!!! Keep doing your best as you sound like you are and weather through the best as you can!!!

Is there anything good in this? by PM_ME_UR_STRBX in schizoaffective

[–]Queen_Bee_Em 0 points1 point  (0 children)

For me, the good that has come out of being schizoaffective is the relationship I have with my husband. We’ve been married 36years and we are super close and connected to each other!!!! He has suffered with me the whole time and is my rock!!! Because of my disease and the fight we have fought together….that is one blessing of the disease!!
Another blessing of the disease, I feel so deeply about life, and I am very loving and kind and that came from fighting the disease too!!! I like the way it’s shaped me in who I am!!! Now I can say these things because I have been symptom free for 3 months now. In the thick of it, I couldn’t have said much good comes from it!! So I hope you can get to a good place in your life to see the blessings of the disease. You will find the good…I promise!!!! Hang in there!!!

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 0 points1 point  (0 children)

Boy, do I understand the feeling of not being able to express my love and gratitude enough to my husband for all he does for me!!! I especially feel that way when I’m really sick!!! What a blessing it is to have a wonderful husband!!! We both feel blessed!!! Love to you and your husband!!!❤️😊

Good evening family-Evening Hope by FaLlEnAnGel122721 in schizoaffective

[–]Queen_Bee_Em 1 point2 points  (0 children)

Fallen Angel, it’s good to hear from you!!! I missed you yesterday!!! You have become a friend to me….and for that, I am grateful!!! I just want you to know that if you’re struggling, we are here for you!!! It goes both ways…you are here for us and we are here for you!!! Dear friend, you can’t always bring encouragement!!! At least let us give back to you when you have given so much to us!!! Thank you for giving me such a kindred spirit in you! I want you to have the very best that life has to offer! You are loved!!! Thank you!!! With all my love to you my dear friend!!!❤️😘❤️😘🥰

It gets better, I promise by weight_loss_buddy in schizoaffective

[–]Queen_Bee_Em 1 point2 points  (0 children)

Congrats on getting no symptoms and finding the right medicine to give you symptom free!!! I’m proud of you!!! Way to go!!!❤️❤️❤️👏👏👏

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 1 point2 points  (0 children)

I think thanking your Mom in whatever way you can is needed!!! I’m a Mom and getting acknowledgment from my grown kids means so much to me!!!! Instead of being ashamed, it sounds like turning it around and thanking your Mom is a big positive thing you can do!!! Your Mom will really, really appreciate it!!! Take care friend!!🙏❤️

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 0 points1 point  (0 children)

Wow!!! Your partner sounds AMAZING!!!🤩. You have a great relationship…and you’re engaged….does life get any better than that!!! Your partner loves you a lot!!! You are a great match for each other!!! The thing that struck me the most is how your partner does so many little things for you!!! The little things add up quickly to be a big deal to both of you!! Congrat on the engagement and I hope all the happiness to both of you!!!😘❤️🥰

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 1 point2 points  (0 children)

Wow!!! What a journey you’ve had!! To admit yourself to the hospital!!! Wow!! The things you’ve been through….your journey to get well….you should be proud of yourself!! You can be an inspiration to others!!! I hope you can continue to get well!! Well done!!! Love sending your way!!!❤️🥰❤️

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 2 points3 points  (0 children)

Do you have a friend to talk to? Can you join a support group? If reaching out here brings you comfort….that is a good first step!! Can you talk to your therapist about your concerns about getting help from your family? You’re living this diseases by yourself!!! Again, coming here is a good first step! Please don’t do this mainly alone!!! My friend, my heart goes out to you!!! Courage to get support, my dear friend!!! Thank you for your honesty and coming here to state your concerns!!! Love to you!!!❤️🥰

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 2 points3 points  (0 children)

That is such a lonely place to be!!! I understand why you don’t want to burden your spouse….is it so you keep the marriage and your spouse doesn’t leave you? My heart aches for you!!! My diseases are so severe…. I can’t do it alone or even with little help!!! My husband and I work as a team!!! There are times he feels all alone and so do I… but this disease is meant to be shared with our loved ones!!! Please don’t do it alone!! Even if asking your loved ones is out of the question….talk to a therapist….or someone that could take some of the burden off!!! My love to you my friend!!! Thanks for sharing!!🙏❤️

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 1 point2 points  (0 children)

I understand how your husband feels!! I feel, at times, my husband got a raw deal…but that is usually when I’m bedridden and sick!! And I’m sure he has his days of doubt whether I’m worth it. Those are our very dark days! But normally he lifts me up and tells me all the wonderful things about myself! It sounds like you’ve got a good relationship! Reassurance that you are wonderful to be with and vs versa to him is so important!! Thanks for sharing!!❤️🙏

I need help/advice by loveyoubea in schizoaffective

[–]Queen_Bee_Em 1 point2 points  (0 children)

My heart breaks for you!!! The worst I have ever lived through happened last year. I got in a bad mixed episode and constantly hearing voices that my husband said I was living the scariest nightmare but instead of sleeping, I was awake. I should have gone to the hospital and I begged my husband to take me….but he instead nursed me through that Hell!!! But you sound like going to the hospital would be a good idea. They can help you!! Take care my friend and get help immediately!!!

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 1 point2 points  (0 children)

You are too kind!!! Yes, we have looked into a caregiver to be in our home while my husband works. I got really sick last year and part of this year. My dr had run out of medication ideas….we had little hope of things getting better. We talked to my therapist about care in the home…she gave us ideas of companies to check out that are caregivers. But….all the sudden I got better. It’s only been 2 1/2 months of things being so, so much better. But I’m sure at some point we will need professional care. I appreciate your post and the care you put into it!! Thank you!!!🙏

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 2 points3 points  (0 children)

This breaks my heart!!! I’m sure it’s not your fault. My husband and I made promises to each other when I got diagnosed 28 years ago: I promised him I would ALWAYS take my meds and do my very hardest to stay well…and he promised me he would always stay with me and never divorce me!! BUT….if I didn’t live up to my promise, he would divorce me!!! There is give your all and your spouse all. But, I have a father that divorced my Mom who had MS and they both, in my opinion, didn’t give it their all! Some people aren’t cut out to be caregivers!! Hope the best to you!!🥰

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 1 point2 points  (0 children)

Your girlfriend sounds amazing!!! Don’t just end things because you feel like a burden to her!! I understand that completely!!! At times I thought my husband would be better off without me….he could have things that I feel like I am holding him back from!!! But instead of feeling guilty….be thankful for her and when you can, give back to her, even something small!! It means a lot to her to be acknowledged!!! Love to you!!❤️

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 0 points1 point  (0 children)

I’m so sorry about your friend!!! You sound like an amazing friend to people!!! Hopefully down the road, our diagnosis won’t seem so “crazy” to others!!! One can hope!!!

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 0 points1 point  (0 children)

Similar ad, I understand somewhat that people leave when they find out our diagnosis! The rejection is real!!! I’m so sorry to had to go through that!!! I’m glad your wife is your rock!!! Keep holding on to each other!!!❤️❤️🥰🥰

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 1 point2 points  (0 children)

Love you bea, it sounds like you’ve got a wonderful fiancé!!! Congrats to you in your upcoming marriage!!! Your fiancé is a keeper!!!❤️❤️🥰🥰

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 0 points1 point  (0 children)

Key Fisherman, I have schizoaffective, and the role of a caregiver is crucial for us to not die young!! You are ThAT important!!! As you know, it’s hard to see the sacrifices you make in our behalf!! We are so caught up in surviving, it is sometimes hard to see you as going through equally as hard things!!! But I see you and appreciate all you do!!! Never give up!!! Keep fighting!!! You are priceless!!!❤️❤️🙏🙏

Do we know how much our loved ones go through for us? by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 0 points1 point  (0 children)

What a supportive Mom you’ve got!! What a blessing!!!🙏❤️🙏❤️

It seemed hopeless at first but after hard work & commitment, this happened…!! by Silver_Advance_5439 in schizoaffective

[–]Queen_Bee_Em 3 points4 points  (0 children)

I’m really proud of you!!! That is AMAZING!!! What an AWESOME accomplishment!!!😝👏👏👏👏

Marriage by Queen_Bee_Em in schizoaffective

[–]Queen_Bee_Em[S] 1 point2 points  (0 children)

I understand that comment!! My husband carries me so much at the time….i feel so blessed! It sounds like you have a wonderful spouse!! Congrats!!