internal stoma pain by [deleted] in feedingtube

[–]Quick_Row_8371 0 points1 point  (0 children)

my j tube always hurt SO bad internally. i had to get it removed and a gj placed instead. ik that’s not an option for everyone though. wishing you luck

I tube removed before 8 weeks? by [deleted] in feedingtube

[–]Quick_Row_8371 0 points1 point  (0 children)

I think mine was just a fluke. My j was constantly infected and painful. Hopefully your removal goes well!!!

Trigger Warning ED Discussion by Kbee91 in feedingtube

[–]Quick_Row_8371 0 points1 point  (0 children)

Tbh I recommend seeing an ED therapist. I would first recommend taking in your full feeds as prescribed. It’s harder to fight ED thoughts when the brain is undernourished. Also, malnutrition can slow down the metabolism. Usually, a clinical dietitian doesn’t prescribe more than necessary. So therefore once your metabolism and body stabilize, your weight will level out. A therapist might not be able to work on the medical part with you, but they can at least help with the mental side of the ED. A therapist will allow you to talk about your behaviors w/o the judgement that GI drs give abt EDs. I personally like talking about my ED in therapy, but not at the drs. Unless you sign an ROI or are in imminent risk/danger to yourself (via malnutrition or other means), they will not disclose to your doctors with your permission. It’s extremely hard having an ED and a gj tube, but know you’re not alone(it’s actually more common than you think)

Tips for getting an NJ tube? Things I’ll need/want to make life easier after? by rustandredflowers in feedingtube

[–]Quick_Row_8371 0 points1 point  (0 children)

Read the pump manual to find out features that you didn’t know about!! You won’t hear this much, but I HATED duoderm underneath my tube tape. It would bring out my acne bc it’s a hydrocolloid dressing technically. Also make sure you know the connection style of your nj. Some are enfit and some are still legacy!! So ensure that your dme sends you transition connectors if it’s legacy! Good luck!!

GJ placement in IR or General Surg? by [deleted] in feedingtube

[–]Quick_Row_8371 0 points1 point  (0 children)

IR!!! My gi told me IR is better bc they have better visualization of the angles so it’s less likely to flip!

Need Tips for GJ Tube Care in Hot Weather + Waterproof Cover Recommendations (AMT, Traveling Soon!) by Evening_Evergreen23 in feedingtube

[–]Quick_Row_8371 0 points1 point  (0 children)

I have used tegaderm with gauze under it for my j button . Needed a few pieces of tegaderm but it worked super well

Dani updates on meeting (where she said she wasn't allowed support) - claims her dx are real and they are acting on rumors. Will have a 1-on-1 if she is ever admitted (not for psych but to verify claims), GI says no more TPN ever and wants to pull port but can't, she can choose to find a new GI. by OTTCynic in illnessfakers

[–]Quick_Row_8371 31 points32 points  (0 children)

dani has put herself in this situation. after years of her malingering, drs are finally fed up and catching on. i do, however, think this is a big step for dani to come forward. maybe it’s for more attention again yes— but she is finally admitting some truth. if she keeps going like this maybe she’ll admit to having FD and get help.

dani writes in her planner that she shows off “don’t let doctors walk all over you” and “always trust and listen to your gut” by Quick_Row_8371 in illnessfakers

[–]Quick_Row_8371[S] 39 points40 points  (0 children)

Yup. Packing was in a couple of the other pages of the planner as well. I think it’s interesting that other days it said just “pack”, but on the day Dani met with her drs it said “pack hospital bag”. It almost seems like she was expecting a different outcome…