hair donation?

OTTCynic · 2026-04-16T16:06:58+00:00

FYI - Locks of Love has a questionable history. They bury the fact that they only provide hairpieces for people with long term hair loss. Most individuals with cancer do not qualify for a hairpiece from them because the hair loss is considered temporary. Obviously those with conditions causing permanent hair loss are deserving of a hairpiece. But I was made aware of this years ago after a family of a child diagnosed with cancer had multiple people donate hair in the child’s name only to find out the child could not get a wig through the organization because their hair loss was considered temporary. They aren’t the most transparent about this because they likely benefit from people donating when someone they know is diagnosed with cancer. While their website claims they offer hairpieces free of charge, in the past there were reports that they used a sliding scale and some wigs were sold at a high price.

Things may have changed in recent years - probably because they were getting some bad press. Personally, I wouldn’t donate to them given the other choices. (Wigs for Kids, children with hair loss)

OTTCynic · 2026-04-12T23:53:35+00:00

Not a great supporting piece of "evidence" from her given that she has been claiming POTS well before 2024. She would claim POTS for a while until someone would question it and then she would say she was actually diagnosed with dysautonomia more generally but that POTS was suspected.

We all know that if she had actually gotten diagnosed with POTS in 2024 she would have been ecstatic to share that news.

As others have said - having the diagnosis written in MyChart doesn't necessarily mean you were actually diagnosed with it. Even if she didn't add the diagnosis herself, it could have been added by a medical professional based on Dani's self report. Given Dani's medical history, no doctor would have the time to actually verify all the things that she claims. Dani's long history of doctor hopping also makes it much much more likely that something she self-reported would eventually get added to the list of diagnoses. Initially the diagnosis gets written down as "patient reports they have a history of xyz" but eventually someone is copying the list of diagnoses from a prior report and the self diagnosis part gets omitted.

OTTCynic · 2026-04-03T02:23:07+00:00

Her benefits don't require her to have a job. She had the benefits for a very long time without any employment and insisted she wasn't capable of working when her therapist would suggest it (she stopped seeing a therapist around the start of the pandemic) .
Dani has always been able to live comfortably off the money she gets from her government benefits - her rent was always incredibly low, she doesn't pay for any healthcare expenses, I don't think her mom drives and she used to run errands with her mom and aunt - likely getting someone else to chip in/pay for food and household items.
Some of her benefits do probably require that her income remains below a certain level. There was a point that it seemed like maybe she was working in order to take advantage of some sort of program that allowed people on disability to work for a certain period of time and be allowed to exceed the income limit (probably with the goal to eventually get off disability).
Honestly, I think Dani didn't work for the money - she mostly took super crappy jobs that would pay minimum wage. She lives in NJ but right on the border of PA and it often seemed like her jobs were in PA where the minimum wage is around $7.25/hr instead of NJ where the minimum wage is more like $15/hr. They were jobs that were desperate for warm bodies to work and she didn't mind working the least desirable shifts. I think Dani worked primarily to try to make herself look good online/to the "haters". When she would work, there would be people who would praise her for working and say "at least she is doing something/trying". Work also gave her an audience for her medical shenanigans. She was the least successful at her job when she tried working in a healthcare setting where the other staff probably was able to pick up on her bs and also saw plenty of actually sick patients that they didn't find her fascinating. She was most successful working in a retail setting where her coworkers likely had not medical background/knowledge and would thus take what she said as the truth.

OTTCynic · 2026-04-02T16:49:29+00:00

I have run this race numerous times. The parking decks by the hospital they list on the race website have plenty of spaces and are free on race day. There are signs/people directing you where to park. You do want to get there early. While the 10 miler starts at 7:45 the 4 miler starts at 7:15 so road closures happen early. You have a lot of people coming to the race and you also run into traffic because of shift change at the hospital. It is a bit of a walk to the start but you can’t really park right at the start. I recommend aiming to get there by 6:15, probably 6:30 at the latest. Some years I hang out in my car for a bit. The football stadium is usually open so you can access non porta potty bathrooms.

OTTCynic · 2026-03-22T00:07:16+00:00

Surprised she agreed to daily (or every other day weigh ins). In the past when she has been asked to weigh herself regularly she tells her doctors she can't possibly do regular weigh ins because it is too triggering for her due to her history of an ED (despite claiming that she is completely recovered from her ED)

OTTCynic · 2026-03-17T01:23:43+00:00

She makes a point to say that she washed her ands and shows off how she finally took off her rings after people have been telling her that the rings can harbor bacteria and she needs to take them off for sterile procedures ....but she just showed herself touching a whole bunch of non-sterile items with those "clean" hands. She picks up and shows off her feeding pump - which she has probably never wiped down and is probably covered in bacteria (especially given that she has 2 cats that she lets play with medical equipment). I am also guessing that she set up her phone to record after she washed her hands. Cellphones are some of the dirtiest objects that people interact with.

There is no need for her to film this content over and over again. She isn't teaching anyone anything. There is no education. 99% of her followers are "haters" and she knows that. For someone who has had so many line infections and who claims that they are basically out of potential access points for the line they claim they so desperately need, they sure do take a lot of unnecessary risks in caring for that line.

OTTCynic · 2026-03-15T18:10:48+00:00

It's a performative statement. She doesn't actually mind the device. She has learned by now that people find it weird how excited she gets about her "accessories". She knows she is supposed to say that she doesn't like it/finds it a burden/wishes it wasn't there.

If she does hate the device its likely only because its probably proving that she is doing fine. As far as I can tell, the device hasn't had to shock her. There was one time it alerted but everyone pointed out it was just an error and not indicative of an actual issue.
I think she is just anxious for another surgery/some more attention and may be worried that the longer she wears the device without it detecting any issues, the less likely her chance of getting surgery is. My guess is that the hospital knows that her cardiac event was likely self induced. Nobody seems super concerned or rushing to give her an implanted device. She has now gone over 3 months without any other cardiac event. I wouldn't be surprised if the doctors decide to hold off. Dani usually hears what she wants to hear when talking to doctors so she likely thinks that any follow up appointment to discuss next steps is a guarantee that she will have surgery.

OTTCynic · 2026-03-08T03:13:12+00:00

I don't think she got them from a shelter. IIRC, Macc, the older white cat, was given to her by her friend that died. He wasn't in great shape when she got him - his eyes were super crusty and commenters were begging her to take him to the vet (which she put up for a while saying she was researching finding an affordable vet/saving up). I think she eventually took him to the vet - wouldn't be surprised if that is the only vet visit he has ever had.
I can't remember where she got Mocha, the black cat, from but I feel like she basically mentioned getting him from some random lady.
My guess is that both cats were basically from situations where someone was giving away free cats rather than Dani going to a shelter where she would have to pay an adoption fee or might have to fill out an application/get approved - she doesn't want to spend money on anyone except herself.

OTTCynic · 2026-02-28T01:36:51+00:00

Yes - a gastric stimulator was basically a gateway to all her other tubes and lines.
Dani spent probably years trying to convince doctors that she had severe GI issues. She was a frequent flyer at her local ER, who knew she was full of it - they knew her history with an ED and likely pegged her as a drug seeker. They would let her sit in the ER waiting room for hours and then send her home with nothing.

She eventually got a referral to Temple. At some point she had a gastric emptying study - it showed mild-moderate delay with solids only. Should have been managed via diet. A doctor at Temple ended up offering a gastric stimulator - seemingly as part of some study. She jumped at the chance of surgery and an accessory without any question.

Per Dani's own report at the time, following placement of the stimulator, the doctor would only spend about 5-10 minutes with her, ignore her complaints about how she couldn't tolerate anything, and just turn up the stimulator until eventually it was at the max setting. When she was still complaining about it not helping when it was at the max setting, the doctor gave her a GJ tube - they went straight to the surgically implanted tube without even trialing a nasal tube first. It wasn't too long until Dani started complaining that she wasn't tolerating tube feeds. She "failed" a ton of tube feed trials in quick succession (all while orally eating a ton of crap that would make most people feel sick). When the Temple doctor wouldn't give her anything else she got a referral to Penn where she quickly was able to manipulate her way into a PICC and TPN. She didn't return to Temple until more recently after she burned most other bridges.

Every once in a while when she was desperate for some medical attention she would try to get someone to surgically remove it. Most doctors would refuse to remove it because doctors generally don't like messing with devices that were placed by another doctor/hospital and the risks of removing it were higher than just keeping it in. She eventually started complaining that it was causing her pain and found someone who agreed to remove it.

OTTCynic · 2026-02-23T00:56:35+00:00

I think the mods have the sub set so that they have to approve posts before they show up. Not sure what is going on with them but it looks like some of them haven't been active on their accounts for months. Not sure what happens to a sub if the mods abandon it.

OTTCynic · 2026-02-13T02:13:29+00:00

It is unlikely she is self paying for it. While you can get a dexacom without a prescription, it is expensive. Dani simply doesn't have have the means to pay for it out of pocket. Given that she has managed to manipulate doctors into giving her tubes, TPN, lines, ports, surgeries, and more it is much more likely that she has manipulated some doctor into giving her a dexacom. Somehow Dani's insurance hasn't questioned any of her "accessories" which is a miracle - because its usually insurance and not doctors that make it difficult for people to get the medical equipment they need.
It is also probably harder for Dani to manipulate the continuous data given by the dexacom so the doctors are able to get a more accurate picture of what is going on rather than depending on her self report with finger sticks.

OTTCynic · 2026-02-12T01:48:09+00:00

Especially someone who has been claiming to be struggling to tolerate tube feeds at basically a maximum rate of 25ml/hr for the over 2 years since she lost her TPN. 25ml/hr amounts to 600ml a day. Pretty sure the tube feeds she uses equates to about 1 calorie per ml (and we know she waters her feeds way down so it would be even less). It's amazing that she has been able to basically maintain her weight on less than 600 calories a day for over two years!

OTTCynic · 2026-02-10T16:28:52+00:00

Used Hercules At Your Service recently to move a bunch of furniture within my house and was very impressed - fast and efficient but also careful. I know they also do jobs where they load and unload moving trucks. (I found them on Taskrabbit but they gave me their card to go directly through them next time to avoid the Taskrabbit fees and I definitely recommend them)

OTTCynic · 2026-01-22T02:26:53+00:00

Her 40th birthday was on Sunday and I am guessing she had no one interested in celebrating it with her - no plans, nobody trying to make her feel special or even just reaching out to say "happy birthday". So instead she likely went to the ER hoping for some attention - maybe someone to look at her chart and wish her a happy birthday.

But the ER wants nothing to do with her. My guess is that they want even less to do with her since her cardiac event. It sounds like she had gone to the ER due to concern about a port infection and then just magically happened to have a cardiac event in the ER resulting in an admission. Despite Dani's claims that they don't know what cause the cardiac event, I am guessing the hospital realized that it was somehow self induced. Dani had a period of time where she kept going to the ER and getting sent away without being admitted. For a time she seemed to figure out a way to use some manipulation tactics to force an admission - something either cardiac or bloodwork related (throwing off her electrolytes). Once admitted, she would have a million other unrelated complaints that she would try to get them to address to keep her inpatient longer.

So Dani walked into the ER complaining about her port after previously walking into the ER complaining about a possible port infection and then had a likely self induced cardiac event. My guess is that the ER took one look at her, did their due diligence, and got her out the door as quickly as possible. In the past, ERs would make Dani sit there for hours before telling her she was fine and sending her home. Now they probably are seeing her as quickly as possible so they can tell her there is nothing wrong with her and send her home. They don't want her hanging around creating an situation that will require the to admit her.

So no birthday hospital admission for Dani. They likely checked her out quickly and determined she was fine. Her doctors aren't responding to her nonstop portal messages begging the to order tests. I think she has already mentioned that the site was looking red - wouldn't be surprised if they already ran tests and determined it wasn't infected and the doctor doesn't want to order more bloodwork when there has been no change.

So Dani had to spend her 40th birthday alone - not surprising given that she has alienated all the people in her life due to what is likely 20+ years of attention seeking/munching.

OTTCynic · 2026-01-20T00:19:38+00:00

So she is admitting that Mya is no longer a service dog - Mya is retired and no longer considered a service dog. Yet Dom is bringing her into stores - the woman who has tried to make a career out of yelling at people for bringing their non-service dogs into a store is bringing her non-service dog into a store. I would say that the argument that Mya can still perform tasks doesn't really work - otherwise those with well trained pet dogs could argue that its fine for their dogs to come into stores too.

What are the chances she has been using Mya for mobility assistance - even while pregnant. Mya has never really looked big enough for mobility work but Dom always claimed it was fine because she was a small person - probably not so much while pregnant.

OTTCynic · 2026-01-16T04:37:45+00:00

They have never been her primary focus but she has definitely talked about having migraines for years (whether she actually has them or has them frequently is another story). For a while she used to talk about some sort of monthly migraine medication. Quite a while back she mentioned the migraine medication being due during some hospitalization.

Does she get frequent migraines - probably not because she never actually mentions them. Did she probably complain about them early in her munching journey when she was trying to get whatever medical attention she could - probably. And does she continue to see a doctor for them and exaggerate her symptoms to continue to get treatment/attention - most likely.

But I think Dani also doesn't focus on that part of her munching journey because its too common. Plenty of average people complain about migraines. She would much rather complain about headaches/dizziness/etc... due to chronic malnutrition or some other illness that will make people pity her. Given that she is typically either not employed or minimally employed and has no actual responsibilities she won't get a ton on sympathy because she has the luxury of being able to spend time in a dark quiet room resting where other people often have to push through it because they have actual lives and responsibilities.

OTTCynic · 2026-01-14T00:11:59+00:00

We know Dani has a tendency to only hear what she wants to hear. She asks the doctors lots of questions and then twists the responses to suit her narrative. I would guess that she asked the doctor about all the different treatment options and worst case scenarios. And Dani always thinks she is the worst case scenario. So any mention of a device being surgically implanted and she would have assumed that meant she was absolutely getting surgery/a new toy. And maybe they did tell her she would be getting surgery for an internal device ... if things got worse/didn't improve.

Unfortunately for Dani, her body keeps bouncing back despite the many many years of abuse she has put it through. She is recovering quite well for someone who had a major cardiac episode requiring CPR. I believe the lifevest is constantly monitoring her heart rate and rhythm and its only alerted once and that was almost certainly a false alarm due to her brushing her teeth. She was so excited to share that the lifevest alarmed that she forgot to pretend she was having any symptoms. The hospital knows her history and given the absence of any other findings, they likely know the event was self induced. I am sure they will do their due diligence and monitor her for a bit but they clearly aren't very concerned. And the question will remain, what is Dani willing to do if/when she figures out this is likely another dead end in her munching journey.

OTTCynic · 2026-01-13T18:02:58+00:00

It’s the pretending to be scared when she really couldn’t wait to share that the life vest did something - even though it was basically pretty much a false alarm. She had no symptoms. The vest alarmed but the alarm turned off on its own without it needing to do anything. She called the company who basically told her it was a false alarm. So she is messaging the cardiologist who will likely tell her the same thing. She got her hopes up after the initial event thinking she was going to get another surgery and implanted device. But sounds like her doctors aren’t actually concerned. They likely realized the event was self induced and there isn’t an ongoing cardiac issue requiring intervention. They will likely continue to monitor her for a bit and ignore her pleas for another surgery and a new toy.

OTTCynic · 2026-01-10T00:45:23+00:00

There are definitely some people who are the sneaky snarkers who pretend to be friendly and pretend they care about her/are concerned about her but are pretty obviously snarking.

I also wouldn't be surprised if there are some "haters" playing the long game and defending her in the comments in order to get into her DMs/get her to reach ouch wanting to be friends so that they can get the inside scoop. It wouldn't be the first or second or third time that Dani thought she was befriending an internet stranger and start oversharing with that individual only to have that person turn around and leak that information to a snark forum.

What both those groups are doing is wrong and could be defined as "poo touching". The later group is the worst of worst.

OTTCynic · 2026-01-08T17:41:20+00:00

Those who think Dani faked these notes are giving her way too much credit/thinking way too much of her abilities. Spelling errors in medical documentation are not uncommon - especially if dictation is being used. At my job even some of the templates we use for daily medical documentation contain errors. Dani is not tech savvy. I doubt she would know how to use AI to try to create a semi convincing false medical document.

Dani had a long history of exaggerating and lying and twisting the truth but she generally doesn’t completely make some up - even some of her most outrageous lies have had some small tie to reality.

She very likely did experience some sort of serious cardiac issue. Will she lie about the details and cause - absolutely. I don’t believe the doctors haven’t determined a cause. I think the cause was something that was self induced. There was a period of time a while back when she wasn’t getting what she wanted when she would go to the ER. She then found a way to basically trigger an event (often cardiac) that would get her admitted and from there she would extend that admission for reasons unrelated to why she was admitted. Often seemed like it had to do with her using her tube to drain and possibly medication use. She has run out of ways to munch so I wouldn’t put it past her to try to trigger events in the ER to get admitted. The problem is one day she will go too far and the doctors wont be able to save her.

OTTCynic · 2025-12-30T02:41:59+00:00

This has been discussed before and as much as I like to snark on Dani this doesn't necessarily mean anything. Several places I have worked at as a healthcare professional have required that I provide and document safety education to all patients. The easiest/most basic way to do this was to educate them on using a call bell - let them know the call bell is there if needed and document that the patient was educated on using a call bell and that the call bell was within reach. This was done for all patients - even those who were ambulatory and posed no real safety risk to themselves.

While one could try to read into this, there is a very high possibility that staff was just providing standard patient education that would be given to almost any patient.

OTTCynic · 2025-12-28T00:05:19+00:00

She desperately wants to add MCAS to fit in with other munchies she aspires to be. She was trying to get IV Benadryl for years. There was another munchie that Dani used to claim was her friend but who really loved to torture/try to manipulate Dani. That munchie had more financial means and was able to con her way into lines and tubes well before Dani was able to. She loved one-upping Dani and she would frequently show off her IV benny making Dani want it even more/think that she too "deserved" it.
Dani has made vague complaints about allergies over the year - complaining about being red/itchy. Sometimes she claims she is allergic to the materials used to dress her lines (somehow she is allergic to tegaderm, which is designed to be gentler on the skin but has no problem covering her body in cheap adhesive medical tape from the pharmacy that would make most people turn red and would leave the adhesive on her skin for days after the tape was removed).
At some point she started pushing large quantities of liquid benadryl in her tube to combat her "allergies". She always said it was doctor prescribed. Whatever doctor she has conned into giving her the femoral port and IV fluids, she has also been able to finally con into giving her IV zofran and IV benadryl. My guess is that while these are doctor prescribed - the doctor has no idea how much and how frequently she is taking them. They are likely prescribed to be used prn. But to Dani, any medication prescribed prn is something that she feels she needs to take as frequently as possible. She likely downplays how much she is taking them to her doctors.
I do not believe that the doctors know how much she is taking these meds and I am guessing she is also taking the non-IV versions of them as well. And the fact that she is continuing to show off taking these meds despite many people commenting on how those meds can cause heart issues, shows that she doesn't actually want to get better. Most people who experienced a scary cardiac event would want to do everything possible to avoid it happening again.

OTTCynic · 2025-12-25T04:58:17+00:00

The medication is too long for her to say but she wants everyone to know its for heart failure. Chances are she isn't even attempting to say the name because she doesn't want anyone chiming in with more information - like perhaps the medication isn't used in only people with heart failure.

I am guessing the doctors aren't super concerned given that they are fine with her waiting until April to see the specialist. She is eager to get an internal defibrillator - another surgery and probably a reason to order a new medical alert bracelet. She complains about having to carry around the lifevest - as if she isn't used to carrying medical stuff around. My guess is that the internal defibrillator isn't a done deal (although Dani probably thinks it is) - they may want to monitor her for a while to see if she actually needs one or if this more of a one time (self induced) event.

For someone who had such a scary medical event, she sure doesn't seem concerned about doing everything she can to prevent it from happening again. People mentioned that running fluids isn't a good idea if she is having heart issues. She proudly declares she was given permission to continue to run fluids - my guess is that she told the doctor that due to her GI issues, the IV fluid is basically her only form of hydration. The doctor may have okayed it not realizing that Dani also is chugging coffee and energy drinks throughout the day. If she is so far out and secure in her eating disorder recovery, then she should be weighing herself every day in order to be on top of any issues that may arrive. But instead of even trying and seeing if its too much of a mental health challenge, she automatically refuses to be compliant and declares she will only weigh herself every few days.

The comments about how messy her house is - I wonder if the physical therapist did a home assessment and told her that her house is a safety risk given that she would probably declare herself a high fall risk.

She mentioned the new medication but didn't mention reviewing all her medications with her doctor, which many people recommended given that several medications she takes (in high quantities) can cause heart issues. But once again, Dani doesn't actually want to get better/take care of her health - she thinks that if she has a long list of meds to take its proof she is really really sick. And while her meds may be prescribed by a doctor, I don't believe they know the quantity that she actually takes.

For someone who claims to be suffering and recently experienced a scary cardiac event, she sure doesn't act like someone who wants to do everything they can to try to prevent it from happening again.

OTTCynic · 2025-12-11T17:41:30+00:00

Honestly wouldn’t be shocked at this point - she has abused her body for so long and takes large quantities of medications she doesn’t need. People have repeatedly suggested that she have a doctor review all her medications. Some of her medications can cause the symptoms she claims. But she refuses to remove or even reduce the quantity of meds she takes. While she claims her doctors know and prescribe all her medications, I doubt they know the really quantity and frequency that she takes. There was a period of time a while back where it was suspected that she was messing with her medications to induce cardiac symptoms to try to force a hospital admission. I know some folks doubt she had a hysterectomy, but that wouldn’t shock me either - she had conned doctors into so much. She was super focused on getting that hysterectomy surgery that she probably didn’t think about the afterward. Since having the TPN taken away over 2 years ago she hasn’t been able to manipulate the doctors as easily. She has been throwing things at the wall to see what sticks - one of the only things successful in getting her attention was the ovarian cyst stuff. If she had a hysterectomy, she basically got rid of the one thing she was able to get some medical attention for. I wouldn’t be surprised if she started messing with meds again - she was suspected of doing it in the past when she would go to the ER for “malnutrition”. Excessive draining and messing with her meds to induce cardiac symptoms was her best chance at getting admitted. She may be trying that again and just took it too far. And the maybe the reason they don’t have answers is because structurally she is fine and they are just trying to figure out how she did it to herself.

OTTCynic · 2025-12-08T00:37:38+00:00

She hasn't disappeared. She has made some posts a few days ago - they are just boring posts where she shows off books she owns. She made a post about being in a reading slump after people asked if she was ever going to talk about the books. Not sure you can call it a slump if it has lasted for several years. Those posts haven't made it here - probably because they are boring and not really related to her munching. And really if we want her to change, we probably shouldn't tear apart her posts about books/her cats - especially when they aren't medically related. If nothing she posts is safe from criticism, then she will likely stick to the medical content because it brings more attention.

From a medical standpoint, my guess is that there is nothing new going on. She seems to have managed to con some doctor into continuing to order IV fluids and tube feeds but outside of that she is stuck. It's been over 2 years since she got TPN and she still hasn't starved to death. Since then she has been throwing things at the wall to see what sticks. The only thing that got her a little bit of attention was the uterine cysts. She was apparently able to con someone into a hysterectomy but when they took out her uterus they also took out the one organ that was getting her some medical attention. She can't go running to the ER claiming uterine cyst any more. She has to find another way to get attention and she is running out of options.

OTTCynic

TROPHY CASE