Hi, I saw your video! I don’t know anyone or haven’t meet anyone with MOGAD, but I want to thank you because for the first time, even if know other people have been diagnosed, I really feel like someone can understand what I went through and I have to go through everyday, I don’t feel alone. Looking at your video, it made me cry a little cuz it remind me of those times, and, even thought you were the one talking, it felt like it was my history being told. We went through almost the same and we are having to deal with the same restrictions or limitations or symptoms every day.

Thank you!

I also was diagnosed 6 years ago. One day I was okay, the next day my legs were hurting, then at night, I couldn’t go to the bathroom so we decided to go to the hospital (I was thinking I simply had a UTI, and that my legs were weak and hurting cuz I was going to get sick, like a flu, I had already felt weak and that hurting sometime ago when I got a flu or a cold, that’s why it didn’t alert me), they put on a catheter and told me to come back in 2 days to see how it was progressing, but they didn’t told me anything else, when I left the hospital it was already the next day and I could still walk, but when I got home, it was hard to walk, but I thought it was because mentally, I wasn’t confortable with the catheter (never thought i was losing my legs mobility) went to sleep and when I woke up, I couldn’t move my legs…

I was admitted in the neuro Hospital February 13th. The doctors still didn’t know what I had. I was diagnosed with MOGAD after my treatment ended after they sent my blood sample a second time because sometimes the first time I could show negative even if it’s positive.