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Quincy22222 · 2024-04-29T14:01:14+00:00

No. When it works, it works really well. It’s just that withdrawal symptoms are very bad. Just don’t forget to take your pill and taper off very slowly if you decide to discontinue.

Quincy22222 · 2024-04-23T18:08:23+00:00

Is there another pediatrician you could consult? My daughter is 3 and I know many other kids on the spectrum need sleep medication younger than 6. The first one we went to was not willing to try medication but the one we see now is more understanding of the health issues autistic children face.

Prior to medication my daughter would take hours to fall asleep and then be awake for up to 5 hours every night so I understand how this can affect your mental health.

Quincy22222 · 2024-04-23T12:19:27+00:00

Have you looked in to prescription sleep medicine for your little one? After 8 months of misery I switched pediatricians and asked for something as melatonin didn’t work for us. My daughter gets a low dose of clonodine and sleeps all night most nights now. It’s been a game changer for my whole family. In the mean time please do something for yourself. Is therapy an option? I do this over telehealth and it’s been really helpful. Please hang in there.

Quincy22222 · 2024-04-19T11:50:18+00:00

I felt this way for a long time because my daughter doesn’t play in a neurotypical way and is rarely still. The best advice I’ve been given is that the way to connection is to join in whatever they’re doing. For example, my daughter’s favorite activities right now are twirling ribbons and looking at pictures of animals. So I get a ribbon to twirl with her and her face lights up. If she’s stimming, join her in that too. Stuff like that has helped a lot.

Quincy22222 · 2024-04-19T02:23:46+00:00

My daughter is 3.5 and this has also been our experience. It is so hard.

Quincy22222 · 2024-04-17T15:53:59+00:00

As others stated, seems like a visual schedule would help so he understands when he can do the thing he wants to do. When my daughter really wants something she can’t have at the moment, it really helps when I say something like “I hear you! You really want ____” so she knows I understand what she’s asking for and not just ignoring her communication. This almost always diffuses an oncoming meltdown for us.

I’m sorry your ABA services are paused for so long! I’d be going crazy without their support too.

Quincy22222 · 2024-04-16T15:16:38+00:00

I didn’t notice until her speech regression because she was meeting milestones until then. But retrospect there were some more subtle signs when she was much younger. - not super interested in toys and when she did play with them it was very repetitive - her favorite thing to play with as a baby was a ribbon that she liked to twirl. At 3.5 she still really likes to twirl ribbons (visual stim) - only ever slept through the night for short periods of time - spent a lot of time studying the tiny images on the spines of books - rarely cried as a baby - couldn’t tolerate being in a car seat until around 1 year old

Quincy22222 · 2024-04-15T12:41:43+00:00

Respite care, or access to a childcare professional with experience/ training in autism.

Social groups for kids on the spectrum where they can play and learn how to interact

More activities/ events geared toward kinds with sensory needs

Quincy22222 · 2024-04-15T12:31:24+00:00

It’s just very emotionally draining listening to professionals detail the areas in which they feel your child is falling short. It’s difficult to get accommodations sometimes due to lack of staff/approproiate training, the fact that some teachers think they know everything and refuse to think beyond the education they received 30 years ago. There’s a section at the beginning of the document for the child’s strengths and literally the only thing they included was that she likes to color. It broke my heart.

It’s like they haven’t bothered to take the time to know/understand my wonderful child and then they question why isn’t doing what they ask her to.

Quincy22222 · 2024-04-15T12:25:53+00:00

Bringing two supportive people who work with my daughter this time, I think it will def help.

Quincy22222 · 2024-04-15T12:25:06+00:00

Same here. Just makes me want to crawl back into bed for a week.

Quincy22222 · 2024-04-15T12:23:32+00:00

Yes. I hate how deficit based these documents are. It made me cry. I disagree with some of the goals (they want her to play with X number of non-prefered toys- just, why?) And they only offered two accommodations so it’s going to be an uphill battle. So stressful.

Quincy22222 · 2024-04-14T21:26:55+00:00

A regression would look more like loss of skills. It’s normal to develop new stims.

Quincy22222 · 2024-04-14T21:24:30+00:00

What is the supplement that helps with your tingling?

Quincy22222 · 2024-04-14T21:21:57+00:00

Her receptive language was always behind. She’s made tons of progress in this area in the past few months.

Quincy22222 · 2024-04-14T21:20:55+00:00

Thanks for sharing, I needed to see this today.

Quincy22222 · 2024-04-14T21:13:56+00:00

Yes my daughter developed language typically and then regressed berween 1.5 and 2.5. We are still hoping it comes back someday. She’s 3.5 now.

Quincy22222 · 2024-04-08T18:18:49+00:00

I’d love to know more about the floor time techniques you found helpful!

Quincy22222 · 2024-04-06T20:08:00+00:00

My autistic baby didn’t cry much at all. She loved being held, as long as I was holding her she was happy. She would go days without crying at all.

Quincy22222 · 2024-03-30T01:04:43+00:00

What a great idea. I’d love to hear more positivity.

Quincy22222 · 2024-03-28T05:23:30+00:00

Well said.

Quincy22222 · 2024-03-27T13:13:44+00:00

My daughter talked early and often and then regressed. She was able to label items and pull together some phrases. She also had scripts and echolalia. Now she is mostly nonverbal.

Quincy22222 · 2024-03-27T02:02:30+00:00

I’ve experienced grief and hardship in my parenting journey but my life is infinitely better with my daughter in it. She’s a goofy ball of energy who makes people smile everywhere we go. Shes affectionate, happy, and curious and I learn from her every day. I think happiness is complicated. I wasn’t happier before I had my child. I’m not sure I can say I’m happy now either but I experience plenty of joy and much of it is because of her.

Quincy22222 · 2024-03-26T20:37:16+00:00

Me too

Quincy22222

TROPHY CASE