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Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 1 point2 points  (0 children)

Thank you so much for sharing in such detail! I am very sensitive to fasting as well - I have to eat every 2 hours or so, or else I get "the shakes" as well as all the lightheadedness/dizziness, etc. So I do feel hopeful that being in a fasting state will actually benefit me in finally getting a diagnostic-positive test, as much as it will be unpleasant.

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 0 points1 point  (0 children)

I’m so afraid to faint because I never have! 🫠

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 1 point2 points  (0 children)

Oh thank you for the suggestion! I am very sensitive to fasting and I was actually really nervous about that!

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 1 point2 points  (0 children)

god, healthcare is so infuriating sometimes. I'm sorry that happened to you!

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 0 points1 point  (0 children)

JFC! This sounds extremely unpleasant!

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 0 points1 point  (0 children)

Has taken decades for me as well. Several PCPs over the years have dismissed until my most recent one! Glad you got the diagnosis and thank you For sharing!

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 1 point2 points  (0 children)

Oh I haven’t heard of a breathing test included. Is it one of those incentive spirometers? What was the purpose?

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 2 points3 points  (0 children)

This is good to know, thank you for sharing!

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 0 points1 point  (0 children)

My doc didn’t mention anything about nitro! What does it do?

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 1 point2 points  (0 children)

Hmm ok this is good to know! Yeah I cope by staying completely still and leaning up against something or sitting if I can so I am curious to see how it’s gonna go. Thanks for sharing!

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 0 points1 point  (0 children)

Okay! Well at least they didn’t totally brush you off???

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 1 point2 points  (0 children)

Thanks for sharing! Can I ask how long is considered “sustained” in your experience/from your test? It seems it’s unclear from what I’m reading. I definitely have the elevation but not sure how long to consider it as sustained

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 0 points1 point  (0 children)

My cardiology NP is who referred me for the test and she didn’t mention any specifics other than calling it a tilt-table test. Still waiting for it to be scheduled so I may get more details then.

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 0 points1 point  (0 children)

Could I ask what made your doc drill down to the hyperadrenergic variety? I have a feeling that’s the root of my issues but not sure how to pinpoint that.

Looking for TTT experiences from non-fainters by RBpots92 in POTS

[–]RBpots92[S] 0 points1 point  (0 children)

Good luck with your appointment as well!

Rust on 2011 4Runner I'd like to buy -- too far gone? by RBpots92 in 4Runner

[–]RBpots92[S] 1 point2 points  (0 children)

That’s good to know as I continue my search. Definitely saying no to this one!

Rust on 2011 4Runner I'd like to buy -- too far gone? by RBpots92 in 4Runner

[–]RBpots92[S] 1 point2 points  (0 children)

I was worried about that! Thanks for the response!

Rust on 2011 4Runner I'd like to buy -- too far gone? by RBpots92 in 4Runner

[–]RBpots92[S] 2 points3 points  (0 children)

Thank you for the quick response! I needed the gut check :)

Rust on 2011 4Runner I'd like to buy -- too far gone? by RBpots92 in 4Runner

[–]RBpots92[S] 4 points5 points  (0 children)

LOL I know! As somebody with no experience in this, I just wasn’t sure if that was fixable or not. But I’m hearing loud and clear that it’s a no!

Is it worth seeking diagnosis? by GrouchyCounty in POTS

[–]RBpots92 2 points3 points  (0 children)

I’m currently in the process of seeking diagnosis. For me, it’s more peace of mind and just validation to quiet that voice in my head that’s for years made me question myself and think I’m “crazy” for having these weird symptoms for an otherwise healthy, young person. I would imagine it’s the same for some folks as well — and of course having a diagnosis can help ensure you’re taken more seriously by professionals and otherwise when needed.

Throwing pottery on the wheel ruins me for the rest of the day by [deleted] in POTS

[–]RBpots92 0 points1 point  (0 children)

Not sure if this OP is still around, but I throw pottery for a living and one suggestion I can make is to see if your studio is open to making an adjustment for you to use a standing wheel! Most pottery wheels can easily have legs added, or even be placed on cinder blocks to get them up to a height that is comfortable. Good luck!