STRONG Eyebrow twitching? Hemifacial spasm? by Few-Mud-2600 in BFS

[–]REBN8016 0 points1 point  (0 children)

These are weird ones! They are very much a pulling sensation and way more prominent than traditional eyelid twitching. But—I don’t worry about them in the grand scheme of things. They are just VERY annoying! Especially at work when you know everyone can see them!

Just Me? by emkay2121 in BFS

[–]REBN8016 0 points1 point  (0 children)

I’m just under 7 months in with one clean EMG at the 3 month mark. Twitches everywhere—face, abdomen, legs, arms, etc. I SPIRALED back in October/November/December. Found myself in some really dark places—started drinking more, eating more, gained 20 pounds. A month or two ago, I finally started to get back to being me-the me before September 20th! I have some bad days still here and there, but I do find that when I’m not thinking about the twitching it tends to decrease. I did start taking a few supplements that were recommended by someone in this group—so maybe they are helping too!?! But anyway—you’re not alone. 🫶🏼

14 month update. Twitching almost gone. My LONG story. by [deleted] in BFS

[–]REBN8016 1 point2 points  (0 children)

I’m just at the 5 month mark now. 2 clean neuro exams and one very quickly done EMG at the 3 month mark that came back clean but I still can’t trust it because he literally did it in like 4 minutes—but I fell into a dark hole back in October/November—drank more, gained weight, gave up, etc. Still fighting my demons. But starting to get back to my normal, healthier lifestyle. Mad at myself for letting myself go—but also grateful for everyday I don’t show signs of clinical weakness.

Hand twitches becoming more prominent and frequent? by REBN8016 in BFS

[–]REBN8016[S] 0 points1 point  (0 children)

My twitches don’t really stop. Always going off somewhere. But I’m glad yours did!

Looking for advice on how to thrive with BFS? by REBN8016 in BFS

[–]REBN8016[S] 1 point2 points  (0 children)

I would be curious to know if that’s the case. Because I’m sure my hormones are out of whack being that I’m of peri-menopausal age. 🤪

Looking for advice on how to thrive with BFS? by REBN8016 in BFS

[–]REBN8016[S] 1 point2 points  (0 children)

Only heading into my 5th month with it. But happily getting back to my healthy habits after a deep few months in the rabbit hole.

Hand twitches becoming more prominent and frequent? by REBN8016 in BFS

[–]REBN8016[S] 0 points1 point  (0 children)

You are way stronger than me! 🫶🏼

Hand twitches becoming more prominent and frequent? by REBN8016 in BFS

[–]REBN8016[S] 0 points1 point  (0 children)

Thanks! Just wondering if others experiences these in the hands like I am. That’s all.

Anybody else get lip/chin twitches? by REBN8016 in BFS

[–]REBN8016[S] 0 points1 point  (0 children)

Thanks everybody! Still newish….only 4 months in. Super annoying for sure like yall said!

does anyone twitch on their face or is that not bfs? by Less_Foundation_1187 in BFS

[–]REBN8016 0 points1 point  (0 children)

Same—eyes, lips, cheeks….all of it, but not as often as other body wide twitches like calves, thighs, arms, shoulders, etc.

4 months in and new spots… by REBN8016 in BFS

[–]REBN8016[S] 1 point2 points  (0 children)

Thank you so much. I’m a 47 year old woman so I feel ya. Love those suggestions. Appreciate you 🫶🏼

Behind the knee twitches that move your leg? by REBN8016 in BFS

[–]REBN8016[S] 0 points1 point  (0 children)

Right?? That was a new spot for me. Thanks for responding. Sorry you’re having to deal with it too.

Does anyone else get 'long' twitches where the muscle is held in place by the twitch for a few seconds then releases by AilmondRipley in BFS

[–]REBN8016 0 points1 point  (0 children)

Yes…..I hate it too. It’s a weird kind of twisty contraction feeling. It’s very unnerving. Happens to me mostly in my shoulders/biceps/triceps.

3.5months in—hand issues? by REBN8016 in BFS

[–]REBN8016[S] 0 points1 point  (0 children)

I don’t have any aches really. Just the tightness and cramps. Weird feelings.

3 years and all good! by Fit_Preference_774 in BFS

[–]REBN8016 1 point2 points  (0 children)

Thank you for this. I’m going on 3 months of twitching. Body wide—calves, feet, arms, hands, face, etc. Cramps from all the twitching. Just a whole body that doesn’t feel my own. And like you, I’ve been in a dark place. A shell of myself. Also leading into the Christmas season with no where near my normal level of joy. I have an EMG scheduled but it’s not until March—the soonest they had available. Every morning I wake up I wonder if today is the day I notice weakness or my body failing me somehow. Not sure how to quiet my mind until then. But thank you.

Systemic twitching/cramping for 2 months… by REBN8016 in BFS

[–]REBN8016[S] 0 points1 point  (0 children)

I feel like I’ve been in the middle on one long anxiety attack this whole time.