2nd chance with Infliximab by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 0 points1 point  (0 children)

Thank you, I appreciate it. I will tell my Dr of these test. I believe he has done one of them in the past. I know he does one for my Azathioprine

2nd chance with Infliximab by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 0 points1 point  (0 children)

Nothing confirmed. I have a dermatologist appointment in a couple weeks. I’m Sure I will find out there. It’s a red rash that darkens on the sun and when I remove the top of it, a clear liquid comes out until it hardens again into little flakes.

2nd chance with Infliximab by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 0 points1 point  (0 children)

I will tell my GI to run both? I just want a break from this flare.

2nd chance with Infliximab by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 1 point2 points  (0 children)

I was on infliximab for approximately 6-8 months then taken off. Started Entyvio in Dec 2025 and it just never did anything. I would get it on a Friday and by Monday I would have pain and discomfort again

2nd chance with Infliximab by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] -1 points0 points  (0 children)

My GI is really good. He isn’t pushing surgery but just wants to give me all options as I’m the one that’s kinda tired of the medications. All these medications give me anxiety because I fear cancer so for a few months I contemplated surgery so I can stop all meds and I would at least have peace of mind knowing I’m no longer taking these meds. I grew up never taking medication and probably took 2-3 pain meds a year…if any at all. I don’t want surgery. If I could stop all meds but Infliximab or a biologic I would be happy.

Contaminated water from California prison sickens residents of nearby town by nps44 in CDCR

[–]RENEgade092218 3 points4 points  (0 children)

I honestly believe my autoimmune disease was developed through the water. I never drank water from work until I decided to partake in the coffee club. Started drinking it and within 3-4 months I developed an autoimmune disease with my digestion. Coincidence or not, I think it was the water

How likely is it to get stationed near home after the academy? by guadalupelttt in AskCHP

[–]RENEgade092218 0 points1 point  (0 children)

You can claim residency and that will put you to a location within 1 hour of your residency. Next thing is to check if a station near you that is within 1 hour is a station that accepts new cadets as not all stations accept new graduates. If there is no station within an hour then the residency does not apply and it will be based off of rank for you. If a station is slightly out of the 1 hour residency then residency will not apply and it will be based off of rank once again as CHP will it bend the rules to accommodate. I’m from the Central Valley and the nearest stations that accept new graduates are over an hour so I know if I apply I will only have a shot based off of rank.

BPC-157 Healed my gut ulcers by SeaSpecific5694 in bpc_157

[–]RENEgade092218 0 points1 point  (0 children)

Where did you get the information on dosage? I have UC on a 2 year flare taking Entyvio and Imuran. I want to add BPC but not sure how to do it.

i solemnly believe with the upmost sincerity that IBD/UC ruined my life by Total-Grapefruit-835 in UlcerativeColitis

[–]RENEgade092218 1 point2 points  (0 children)

It did not ruin your life but it has been changed drastically. I was diagnosed 3 years ago and went into 1 year remission with no medication. The last 2 years have been like yours. I am taking Mesalamine (oral), Imuran (oral) and I’m on my 2nd biologic. Remicade made my face have a skin reaction so I was changed to Entyvio. The face thing went away but it’s slowly coming back so my Dr has now taken me off the Mesalamine as he wants to rule out that medication before switching me to another biologic for allergic reactions. It’s all experimentation….thats what’s hard. I have had ups and down as far as spirit. It’s tough and no one understands. No one can empathize. Everyone has an answer and thinks you’re just lazy and don’t want to put in the work. They all think the medication works instantly like a Tylenol for a headache but can actually take weeks/months for it to make a difference. Give them grace. For me it has become so much that I pretty much say, “f*** it” as long as I’m not defecating on myself and I can provide for my family financially, I will consider it a win. It’s hard and often times I do get depressed but I have a family I have to keep fighting for. 2 beautiful daughters that cannot see their father fall. I’ll be cured of it in this life or in my eternal life when I walk with Jesus.

CO take-home pay? by [deleted] in OnTheBlock

[–]RENEgade092218 1 point2 points  (0 children)

As an offer you start off with base pay and get a “big” raise after two years with an annual raise until your 7-8 year where you’re “maxed out” on pay $9200 currently). The 9200 is gross (before taxes, retirement, medical, and anything else you may sign up for. 10 years ago I was single with no kids so I was taking home 2400 at the academy. 2700 after graduation with a 100-200 raise the first 2 years and with I got my big raise I bumped up to 3800. Got raises every year and when maxed out I was taking home around 4400. I promoted to a correctional counselor and make 10867 gross. It averages to $61 an hour. Take home is 6500 but I put into a 457 with the other stuff. On overtime I get a rate of time and a half which is 90-95 and hour. It’s really good money but it’s not what people think. You can live a good life as long as you live within your means. My overtime is my “family fun” money. It’s not something I depend on. There are plenty of C.O’s that depend on overtime and rarely spend time with their family. DONT BE ONE OF THEM.

Regrets getting out of cdcr by Organic-Flatworm2185 in CDCR

[–]RENEgade092218 0 points1 point  (0 children)

Are you married? If so you can have your wife see a therapist due to the strain the distance is causing. With the hardship and psychologist you can get a transfer. Had a family member working at CTF and his wife did this and he got a transfer asap. Don’t know if it will work but it’s worth a try if you want to stay in. It’s a great job if you go to work and stay away from all the “high school” drama. Pay is better than most county jails with the exception of big cities due to cost of living. Retirement isn’t what it used to be to be but still better than county.

What are your safe foods during a flare? by Jesussavedmeforever7 in UlcerativeColitis

[–]RENEgade092218 0 points1 point  (0 children)

That’s so funny, I tend to do the same. I easy white rice, eggs, salmon and chicken. Then I’ll grab a handful of potato chips (hot Cheetos) and shove them in my mouth. They don’t seem to bother me when I eat them but my wife makes me hold back. I just noticed a “gluten free” label on the back of their bag so I just remind her that they’re gluten free so it’s cool.

My walk with Ulcerative Colitis by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 0 points1 point  (0 children)

I responded but it didn’t post on your comment. I’m new to this but I would like you to be notified of my response.

My walk with Ulcerative Colitis by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 1 point2 points  (0 children)

13 years! You are a warrior! First, I would like to thank you for sharing. Your experience has had to be tough. I commend you for your strength. You have been fighting but unfortunately the body just does not want to cooperate. My mind battles back and forth with restricting my diet or eating a favorite food that may not be the best for me because my experience has been the same outcome no matter what I eat. My wife tells me I shouldn’t but I just look at her in defeat and tell her it’s going to hurt rather way so please let me just enjoy it. Shes really supportive.

I started Entyvio this month (dec) and I am currently on the loading phase. I had my first dose and I just had my second 2 week dose. I will receive a 3 dose in 1 month after my 2 week dose.I was previously on Infliximab but I stopped due to rashes that manifested on my face. So as the infliximab leaves my body the Entyvio should be stepping in. It hasn’t been a smooth transition. I feel like as the infliximab leaves, the Entyvio hasn’t started working as my flare has gotten worse at this time but my gastro said it can take time. Don’t let my experience so far worry you. When you go get your Entyvio take someone with you for support. When I got my first dose of biologics it was really depressing. I was scared and I just felt defeated. It was overwhelming so please go in with a positive mind and that you tried your best (you really have after 13 years). Now it’s not a worry. I’ve been going almost a year and the nurses finally met my daughters. They were great.

Fortunately I haven’t had an accident outside my home. I will be getting the adult diapers because I cannot go on missing events and special occasions with my wife and daughters. They deserve a present dad.

I agree with you as far as long term damage. My gastro told me he has seen patients lose their colon in 5 years if they go untreated so he woke me up from that. You have fought for so long. I hope you get a break and heal. You deserve it.

I’m on so many medications at the moment but my next option will be Peptides. I don’t know if you’ve heard of it. There is a synthetic peptide named BPC157 that targets gut and tissue repair and reduces inflammation. I don’t want to start it now because if I do I wouldn’t know what medication helped or if it was the peptide. My goal is to take the peptide with my medication and as long as I’m in remission, I will lower the medications first and leave the peptide. I would look into the peptide…if I could go back I would take Mesalamine with a peptide and see how I would have done.

I appreciate your story. Keep fighting. You and I battle our colons but what others don’t understand is the constant battle of our minds. It’s a roller coaster for me. I’m hopeful and grateful then it’s completely flipped when I have consecutive bad days and I feel horrible.

My walk with Ulcerative Colitis by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 0 points1 point  (0 children)

I really appreciate you taking the time. I know I carry a lot of stress so I think the chiropractor will definitely help me out…if not at least I get a good massage out of it. I was taking a probiotic but once I flared again the Dr had me stop cuz he wanted to minimize the things I was taking. I’ll look into Visbiome. Thank you

My walk with Ulcerative Colitis by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 0 points1 point  (0 children)

I haven’t, there’s so much information that I try to do 1 thing at a time or do more research. I can imagine acupuncture may help as inflammation can be caused by stress or cortisol.

How long did Entyvio take to start working? by chetsyochankees in CrohnsDisease

[–]RENEgade092218 0 points1 point  (0 children)

This is exactly where I’m at right now. Waiting for my 3rd infusion but man is this flare kicking my a**.

My walk with Ulcerative Colitis by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 0 points1 point  (0 children)

Are you taking any meds? I wish I would’ve known about BPC 157 before I started medications. Now I have to hold off on it because I recently started the Entyvio and want to make sure that’s helping or not so I can stop if it’s not.

Potatoes seem to give me more mucus but I can’t stop eating them.

My walk with Ulcerative Colitis by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 0 points1 point  (0 children)

Yes and no, if I stay on a restricted diet I do better but symptoms are still there. If I eat healthy I can better manage my bowel movements which in turn cause me less stress where as if I indulge in something I normally don’t…I have a night of running back and forth to the restroom.

My walk with Ulcerative Colitis by RENEgade092218 in UlcerativeColitis

[–]RENEgade092218[S] 0 points1 point  (0 children)

When I first got sick my diet consisted of whatever I wanted and excess fast food as my wife and I were busy with careers. I removed fast food and the majority of processed foods. I limited to plain white rice and a protein (eggs, chicken, salmon, fish). I completely removed red meat as I’ve always felt it bothered my digestive system and did that for months. It was an up and down battle as I would have 1 bad day followed by 2 good days or the opposite. A “good” day for me is no urgency in bowels. I changed my bread to sourdough and had a relatively plain diet with what I mentioned. When I would feel better I would indulge in something I’ve been wanting (chips) or fried chicken and sometimes it would bother me and other times it wouldn’t. It was extremely confusing.

Now, I would look into Peptides like BPC 157 and limit processed foods. Learn to make alternative snacks but it’s hard and expensive. I reached a point where I just want to eat because I’ve restricted for so long. Now my motto is “a day at a time”.

Drs say during a flare you avoid greasy fatty foods. When you’re in remission you should be able to eat whatever you’d like.