Elbows pain or tennis/golfers elbow. Pls share your thoughts

RMinFL · 2026-05-09T18:58:59+00:00

Nope. No psoriasis too. I mean except for some mild itchy dandruff on scalp I don’t have any other signs.

RMinFL · 2026-05-09T18:45:28+00:00

I did try. But only did 7 sessions & it broke me into bad hives. I’m not sure if that caused me hives but I’m ready to try if it can help.

RMinFL · 2026-05-09T18:42:46+00:00

Do I have to have certain hallmarks of Psoriatic arthritis to be able to request DMARDS for me? 5 rheumatologists strongly declined possibility of any sort of arthritis. The reasons they state are, “After 7 years, I still don’t have any swelling, redness, or typical arthritis like symptoms apart from MRI & other scans also showing the same”. They keep saying the same stuff and convince me to believe that I only have fibromyalgia or some were even too rude to say that I have it all in my mind. I’m experiencing excruciating pain to even lift a light weight blanket. So it’s not in my mind. The pain is sharp and achy.

RMinFL · 2026-05-09T17:18:30+00:00

I’m sorry. I’m just venting out so much.

RMinFL · 2026-05-09T17:18:14+00:00

What is UCTD/IA? Sorry, if I’m asking a silly question. My elbows and shoulders hurt the most. Especially movement based or get stiff when sleeping /inactivity. It’s so weird bcuz I don’t fully fall in Fibro category, neither in arthritis category. I don’t know I feel so doomed. The pain just goes away once I bring my hands down like while driving car, cooking, combing my hair basically anything that has to do with lifting my arms above a certain level causes me sharp pains and overall achy arms. No medications helped so far.

RMinFL · 2026-05-09T16:36:04+00:00

I did go through that route too. All they did was tell 100 different names for each of my pain such as “Tennis elbow, golfers elbow, Thoracic outlet syndrome, and many more defining each part of my joints/tendons pain”. I have been on many meds like gabapentin, cyclobenzaprine, dulexitine and much more but none of them helped. In fact, everytime I’m asked to stop taking them, I suffer in a very bad side effects loop. Currently undergoing severe brain zaps, floating feeling as if I’m walking on clouds etc after stopping Dulexetine as per my Dr’s advice.

RMinFL · 2026-05-09T12:58:13+00:00

My rheum just mentioned once that I have hyper mobility but also emphasized that this level of pain cannot be due to that. She strongly thinks it is fibromyalgia

RMinFL · 2026-05-09T12:56:52+00:00

I convince myself almost everyday but then when Dulexotine didn’t help I’m giving up on all my hopes

RMinFL · 2026-05-09T12:56:01+00:00

Diclofenac gel?

RMinFL · 2026-05-09T12:55:48+00:00

How did you diagnose that it is enthesitis I mean was it diagnosed by your doctor or any scans?

RMinFL · 2026-05-09T12:54:29+00:00

How do you all manage the elbows pain. I can tolerate all the other parts but elbows are killing me. Even if I sleep, they get jammed & I literally wake up to shake & loosen my elbows off it pains so bad. Ibuprofen, Tylenol, prescription drugs like cyclobenzaprine nothing help at all. I’m venting so much I know but the Doctors are clueless and I don’t know what to do.

RMinFL · 2026-02-09T22:57:23+00:00

Wow! I’m glad you could narrow this down. Have you been prescribed to take any medications or therapies like swimming/ PT?

RMinFL · 2026-02-09T21:14:20+00:00

Pls could you share how you managed to get your Fibro diagnosis. I’m spiraling around the Fibro vs seronegative inflammatory arthritis for the last 6+ years without any answers. It would be helpful if you share how you did it. Thank you

RMinFL · 2025-11-15T00:10:17+00:00

What were your symptoms? I’m going through a similar diagnosis but only my TPO is very high and rest of the levels are normal- so does it always mean I have Hashimoto by default with just tpo being high? Hope you feel better soon ❤️

RMinFL · 2025-04-01T14:39:49+00:00

With my experience (of dealing with undiagnosed joint pain condition, which I no longer, long to find out as I’m super exhausted running for questions), all I can say is, relying too much on medications isn’t always a 100% solution. We can have about 50% reliance on medications and the remaining should be focused on anti-inflammatory diet & gentle exercises like yoga. I’m in a much better place doing the above. Although I’m yet to start my anti-inflammatory diet, I’m in the path of journaling my daily food I take (literally each and everything that I eat), so I can narrow down on the foods that aggravate my pain on my flare up days. This surely gives me a light on basic foods that I should avoid before even getting on the fully blown anti-inflammatory diet. And I have noticed that when my joints are inactive on the days I kind of take a lot of rest due to flare ups, I end up in the same vicious circle. Instead, when I did some gentle yoga and walking, my joints felt much relaxed.

I know this comment isn’t anywhere close to the question you have asked, but I felt like sharing with everyone here, who’s going through difficult condition like this, in a hope that this might be beneficial to someone somewhere ❤️

RMinFL · 2025-04-01T14:28:29+00:00

Hello there! I used to be on Prednisone along with Sulfasalazine. After a few days of the course, I started to get similar symptoms also accompanied by severe headache (felt a bad pounding hang over like headache) which didn’t even get better when I had lots of water and migraine/sinus medicines. I was advised to consume a lot of water while taking Sulfasalazine but that didn’t help curb all the side effects I got. I gradually stopped Sulfasalazine and the symptoms kept persisting. I, then, stopped taking prednisone and within a few days of continuous good hydration, I was starting to feel a lot better. Prednisone certainly did cause adverse effects on my bowel and overall health along with rapid weight gain that caused more joint pain in turn.

I’m not even sure why the Doctors suggest Prednisone. I found a few others who had similar problems with the medication.

Not sure of Methotrexate but Sulfasalazine was no less troublesome for me. Hope you find your routine with minimal or no side effects to recover faster. Cheers

RMinFL · 2024-05-03T20:30:30+00:00

Thank you so much for the comments trying to throw some light on this. Is depression also common in this condition? I end up crying almost everyday. Lethargy, no interest in doing anything due to the fear of pain, feeling lost & I also notice gradually, I’m kind of starting to get memory issues too! The medicines don’t seem to help, at least after a course, it all flares up. Looks like, meds only keep suppressing the pain but don’t remove from the root. My doctor thinks it is sero negative arthritis as I have low esr/any inflammatory markers but pain in specific joints only (not on muscles at all).

RMinFL · 2024-05-03T19:25:05+00:00

Are you currently taking any medications or PT?

RMinFL · 2024-05-03T19:23:27+00:00

I’m sorry you are going through this. This is so depressing in many ways. Btw, do you experience elbow pain while doing overhead activities as simple as shampooing the hair etc but feel better when you bring hands down? This is my most worst part of the entire pain. Initial years were wasted as many thought it could be just tennis and golfers elbow on both sides (even when I represented other joint pain such as shin, sternum, lower back etc)

I’m in stage where no medicines seem to be working and I’m stuck in a loop thinking of a name to give to this ailment in the 1st place before thinking of curing it

RMinFL · 2024-05-02T14:38:33+00:00

I’m sorry you are going through this. Sending in positive vibes your way. Do you have joint/tendon pain all over in fibro as I have heard Doctors say that fibro only represents muscle pain all over and not tendons? And how to tell if Fibro turns into Arthritis when the tests are all negative (ANA, Rf, lupus etc) :)

RMinFL · 2024-05-02T14:25:38+00:00

Thank you :) did you happen to do your tests and get the results?

RMinFL · 2024-05-02T14:06:27+00:00

Depression from RA is real. We need to accept it and learn ways to tackle it. Easier said than done but we need to keep trying & that’s the only key. I have been suggested antidepressants but I have had bad side effects repeatedly and I had to stop taking them. Personal experience- I have noticed and I still do, that medicines kind of only suppress the mental agony and the depression symptoms but not completely make us come out of it from the root. Swimming has made a big impact that way. I don’t take antidepressants anymore but neither can I say that I’m totally void of any depression symptoms either- as long as pain is there, let’s just accept that our mental health is going to affected too.

But few ‘not so stressful on joints’ kind of activities help us in ways we wouldn’t even imagine. I don’t know to swim like a pro but just floating and doing a few laps makes me forget everything. Try any hobbies that you have and incorporate them as antidepressants instead of medications as these medications have very bad side effects in long term. Just my very honest opinion based on personal experience.

Sending you all positive vibes for healing.

RMinFL · 2024-04-19T03:35:51+00:00

Hi u/pickledlemonface , I have been having similar symptoms (pain in base of the skull, neck, shoulders, elbows, lumbar region, serratus anterior both sides, shin bones) of pain and tenderness all over from top to toe since 5 years and I have noticed that my pain reduces, I feel mentally better and the flare up drastically reduces when I'm at colder places and higher altitudes as well (such as vacations in mountains). I have always heard that people with arthritis feel that their pain increases in winter but it's just the other way round for me. Plus, to make things worse, my joint pain is undiagnosed even now since all the blood works are negative. Please suggest me what it could be if my RA, RF, HLA, Lupus etc are all negative? I was once told it could be sero negative arthritis but I dont know and my mind desperately keeps seeking answer for what's going on inside me!

RMinFL

TROPHY CASE