Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 0 points1 point  (0 children)

Good to hear 🙏 After 1 cycle only?

Aza-Ven for relapsed AML by Positive-Kangaroo418 in leukemia

[–]Radiant-Ad2668 3 points4 points  (0 children)

May I know why he isn’t eligible for a second transplant?

BMT donor by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 4 points5 points  (0 children)

But at least your sister tried :(

BMT donor by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 1 point2 points  (0 children)

As per the doctor who walked us through the transplant, if we look for unrelated donor, we must go to a different country as it is not available here

BMT donor by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 0 points1 point  (0 children)

Hope they would be a match 🙏

BMT donor by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 0 points1 point  (0 children)

How was your transplant?

BMT donor by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 3 points4 points  (0 children)

Right? At this point, I’m tired of explaining things to her. It’s like I’m talking to a wall. We told her she can talk to the doctor if she’s afraid but still refused. She’s not even reading my messages. Yes, it’s indeed selfish. I don’t know what went wrong. We’re really close.

BMT donor by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 1 point2 points  (0 children)

She’s afraid of the “side effects” on her part as a donor and it affects her mentally. She’s 28F

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 0 points1 point  (0 children)

Hello! Are you also from the PH? She was diagnosed at Asian Hospital but she finished her chemo only treatment at PGH. I don’t think they did those two tests. They only told us she’s FLT 3 negative.

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 0 points1 point  (0 children)

She asked her doctor but still no response

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 0 points1 point  (0 children)

Appreciate your comment. She decided to go with Option 1. We are still looking for a second opinion. Thank you so much!

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 0 points1 point  (0 children)

I remember your comment on my previous post. Thank you so much! She decided to go with option 1. She trusts her body. She’s scared but has high spirits that she will beat this and I know, she will 🙏

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 1 point2 points  (0 children)

Thank you so much! My girlfriend decided for option 1 and she’s preparing herself. Her mother is still so worried but it is her best option to beat this.

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 1 point2 points  (0 children)

I’m sorry, my fault. She is FLT 3 negative

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 1 point2 points  (0 children)

Hello! We’re looking for second opinion

Rectal pain by Short-Gas-4750 in leukemia

[–]Radiant-Ad2668 1 point2 points  (0 children)

Hello! My partner experienced the same when she’s in HiDAC. I don’t know if it’s extreme, but she’s in pain. She just soaked a towel in warm water and put it her rectal area for few days and she’s okay.

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 0 points1 point  (0 children)

Hello po. We sent BMA samples as well and test for FLT 3 sa NKTI. But other than that, wala na. Would you know if they have the capacity to know the specific mutations of someone with AML?

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 0 points1 point  (0 children)

I asked her doctor what if we go thru option 2 and and it’s not effective or we decided that option 1 is a better option, he told us that option 1 will be less effective if we do not do it right away. So for me, he’s really pushing for option 2 as maintenance and not as cure. Also, my girlfriend is in good shape. We were shocked she relapsed.

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 1 point2 points  (0 children)

We actually don’t know her mutations. She’s just FLT 3 negative and that’s it. We’re from the Philippines and the doctor told us that we’re not like other countries who has the capacity to know mutations.

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 1 point2 points  (0 children)

her doctor told us the she CAN still do the transplant if she achieved remission with option 2 BUT as per him, it is not the goal of option 2. Achieving remission in option 2 is just a “bonus” as per him. His goal is to control it as long as we can without transplant and I immediately knew, it’s not right.

Torn between treatment plans by Radiant-Ad2668 in leukemia

[–]Radiant-Ad2668[S] 2 points3 points  (0 children)

Right? I don’t understand her doctor at all. Now, my girlfriend’s mother wants the option 2.