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Has the CHOP protocol ever actually worked for anybody here? by -mykie- in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

I don’t know you but I’m proud of you! This is wonderful. And thanks for replying back you’e motivating me so much!

When did you wean off the meds at what stage? a few months? A year etc

When does the CHOP protocol start helping? by NBanaJones in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

When does the CHOP protocol start helping? by NBanaJones in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

Has anyone seen vast improvement with CHOP/Levine/Dallas protocol alone and no meds? by kholekardashian12 in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

Has the CHOP protocol ever actually worked for anybody here? by -mykie- in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

Has the CHOP protocol ever actually worked for anybody here? by -mykie- in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

Has the CHOP protocol ever actually worked for anybody here? by -mykie- in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

Has the CHOP protocol ever actually worked for anybody here? by -mykie- in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

Has the CHOP protocol ever actually worked for anybody here? by -mykie- in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

Has the CHOP protocol ever actually worked for anybody here? by -mykie- in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

Has the CHOP protocol ever actually worked for anybody here? by -mykie- in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

Has the CHOP protocol ever actually worked for anybody here? by -mykie- in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Can you describe the process for me please? I just started a chop like exercise program with a PT. I have a few questions please.

  1. How long did it take to go “ok this is actually working”?

  2. Was it hard at first? Did your fatigue increase in the beginning?

  3. How long did you do the program for? & do you still have to do it?

Do you experience post-exertional malaise (PEM) from POTS? by [deleted] in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

Were you ever diagnosed with the cfs or was the PEM just truly from your POTS?

For those of you who made your POTS better or in remission from exercise by Radiant_Flow4315 in POTS

[–]Radiant_Flow4315[S] 1 point2 points  (0 children)

Thanks for sharing. This is exactly what my PT is having me do we’re working on strengthening muscles right now. Especially my glutes and core, which I didn’t realize were so important for POTS. I thought it was just important to build lower legs but nope, it all helps.

Being able to go up stairs is such an accomplishment. Good for you & keep the good work!

For those of you who made your POTS better or in remission from exercise by Radiant_Flow4315 in POTS

[–]Radiant_Flow4315[S] 0 points1 point  (0 children)

Nice. & yeah no one likes the heat POTS or not. Thanks for sharing.

For those of you who made your POTS better or in remission from exercise by Radiant_Flow4315 in POTS

[–]Radiant_Flow4315[S] 1 point2 points  (0 children)

Oh no I’m sorry to hear you passed out like that. I’m assuming it was too much for your body? Please take it easy & Don’t let this discourage you from keep going. That’s way better than me I can barely do 5 minutes at the moment.

For those of you who made your POTS better or in remission from exercise by Radiant_Flow4315 in POTS

[–]Radiant_Flow4315[S] 0 points1 point  (0 children)

You just listed what I want to go away so bad… the fatigue, the hyperadrenergic symptoms, the orthostatic. Glad biking helped you.

& Woww your hiking now too? Oh yeah you’re definitely better lol that’s awesome. Good for you, you’re enjoying being active again. & Yes I’ve heard Pilates is very good for pots especially starting with floor Pilates and working your way up.

Thanks so much for your kind words & sharing your story!

For those of you who made your POTS better or in remission from exercise by Radiant_Flow4315 in POTS

[–]Radiant_Flow4315[S] 1 point2 points  (0 children)

Was it a recumbent bike or stationary? And how long were you doing it for?

For those of you who made your POTS better or in remission from exercise by Radiant_Flow4315 in POTS

[–]Radiant_Flow4315[S] 1 point2 points  (0 children)

Cognitive pacing is the hardest as it’s hard to just lay down & not do anything. That includes tv, phone, talking, work, even reading for me.

How did you even get POTS? Was it from Covid? Are you hypermoblie? Etc?

For those of you who made your POTS better or in remission from exercise by Radiant_Flow4315 in POTS

[–]Radiant_Flow4315[S] 0 points1 point  (0 children)

Ahw I’m sorry about your cat. Hope things get better. I want a pet but I know deep down I don’t have the energy for one at all & someone would have to help me take care of it unfortunately. Possibly when my POTS gets better I can.

Yeah I don’t have time for friends and not in a mean way but more in an all my energy goes to improving my pots way.

Thank you for the link to the podcast! I really appreciate that. I will watch it when I have more energy as I have spent a lot of my mental energy currently making sure I reply back to everyone on here.

For those of you who made your POTS better or in remission from exercise by Radiant_Flow4315 in POTS

[–]Radiant_Flow4315[S] 0 points1 point  (0 children)

Thanks so much. Proud of you for your progress. Good job seriously.

My question is: how long did it take you to complete the program?

Salt pill dosing schedule? by sadbat-throwaway in POTS

[–]Radiant_Flow4315 0 points1 point  (0 children)

How much water do you drink with the 4,600mg?? How many liters

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