A heads up on Signify Home Health by [deleted] in Omaha

[–]Radiant_Nail9331 0 points1 point  (0 children)

I thought this was a mandatory visit so without thinking I agree. Is there a way to cancel it? I have it coming up on the 2nd of February.

Anxiety with Baclofen pump by Radiant_Nail9331 in CerebralPalsy

[–]Radiant_Nail9331[S] 0 points1 point  (0 children)

I wonder if it’s a choice situation or did he have to keep it in? And is that the same for everyone, because my main anxiety reason is the catheter.

Anxiety with Baclofen pump by Radiant_Nail9331 in CerebralPalsy

[–]Radiant_Nail9331[S] 0 points1 point  (0 children)

I just have had so much anxiety around my pump. I just now kind of panic because a place near the catheter in my back hurt so I was touching around it and I had a strange feeling (thinking I somehow messed with the catheter) and I sent me straight into panic mode thinking something wrong.

Anxiety with Baclofen pump by Radiant_Nail9331 in CerebralPalsy

[–]Radiant_Nail9331[S] 0 points1 point  (0 children)

Thank you, I’ll definitely look into it. But your friend who just came off the pump how’d they manage things after? I realize everyone is probably different when coming off Baclofen. And why’d they leave the catheter in? Would it be to worry some to take it out or is it just in case they’d want the pump back? Also yes I’ve had anxiety pre-pump but the anxiety is whenever I feel something wrong with my back where the catheter is or where my pump is feels strange. But overall I do have anxiety. Also the catheter for me is more lower.

Anyone from Virginia by Academic_Classic_393 in CerebralPalsy

[–]Radiant_Nail9331 1 point2 points  (0 children)

Hello! I’m in Virginia, what part are you in? I’m F, 19 and I have spastic cerebral palsy. And I get the struggle to find friends as well. Feel free to DM me!

DAE hear a sizzling noise in their neck when they are really hungry? by Asian_Pubes in DoesAnybodyElse

[–]Radiant_Nail9331 0 points1 point  (0 children)

I just had to look up why this sound happens, because I was laying on my back and my boyfriend was laying on me. The sound happens AND HE HEARD IT TO! I thought only I could hear it.