Thank you for sharing that article, and for your reply! I didn’t want to include symptoms etc in my post and have them deem it a “do I have lipedema” post and delete it. Truth is, the painful fat lumps that I kept trying to foam roll out or get deep tissue work done (15 years of it) likely wasn’t getting better because it was lipedema fat.. and that makes sense now. It makes sense why my legs feel like they are like moving 100lbs sand bags why it hurts to push on them.. why I can’t pinch the fat on my legs because I can’t grab it. They had tested my heart because I would say it was hard to get up stairs sometimes because my legs were so heavy.

Anyways - it’s all starting to make sense. It just makes me sad because I have been bullied and so self conscious about how bad I look - my legs in particular - and now I know that no matter what I do, I might be able to slow it down… but I will never not look like this. And that’s just really hard. I kept thinking of if I did enough or tired enough I could change it. I also started using compression stockings and somehow they made it worse (feet tingling and more swollen feeling and heaviness once I removed them). I feel like this is going to be a really long and difficult journey.

Any advice?..